I know that I have not posted an update in a very long time. I apologize for that. Life got the better of me, and this time the outside stress was a little tougher to bounce back from. In true Sandye-style though, I have gone through all of the stages of emotional healing that I needed to go through. My process is complete and I'm back to being me!!
I have just celebrated the 21st Anniversary of my PH diagnosis. Why do I celebrate such an awful diagnosis? I celebrate not the diagnosis itself. I celebrate my strength, my ability to overcome the constant obstacles that PH throws at me. I celebrate my courage. I celebrate the friends, family, and the PHriends (other people dealing with the same horrible disease) that have either stuck by me, or have joined my journey along the way. I celebrate the simple fact that..I...AM...STILL...HERE. That last reason is reason enough all on its own. I'm here. I'm here to laugh and talk with friends. I'm here to love family and friends who have become family. I'm here to experience the best, the worst, the good, the bad, the funny, the tragic, and well just....life. I wasn't supposed to be here. I am though, and I am thankful for that every single day.
My word of advice to everyone out there; the healthy, the sick, the poor, the rich, the angry, the happy, whoever you are, whatever you feel, whatever you believe....listen up because this is important; Life is NOT a privilege or entitlement. Life is NOT guaranteed to last to a ripe old age. Life will give you back what you put into it. No matter what your situation is now, or what it becomes in the future...make the most of every single second as best you can. Have no regrets. Do what's right no matter how hard "right" might be. Until next time.....Live Well and Breathe Easy. <3
May 12, 2016
ANNOUNCEMENT: The fashion show fundraiser that was scheduled for Sunday May 15th 2016 at First United Methodist Church has been officially cancelled. We needed to sell 100 tickets before the fashion show coordinator would agree to follow through with the show, and we did not meet that goal.
Please stay tuned to my patient page here at HelpHOPELive and any further fundraiser events will be listed here as they are planned. I'm sorry for any disappointment or inconvenience this has caused anyone. I have contacted my HelpHOPELive coordinator who assists me with everything here and asked her what to do about refunding people's money who have purchased tickets to this event. I will post another update when I have more informaiton.
Sep 29, 2015
I've had two weeks packed with activity. I can't remember what I've updated everyone on and what I haven't at this point. Please bear with me if I repeat anything.
First, I saw my Cardiologist...
Jul 30, 2015
Why do I love the autumn season so much? On a personal, more emotional level...I love to see the leaves changing into beautiful vivid colors. I love apples and just about anything you can make with...
Jul 27, 2015
Hi everyone! I know I haven't posted an update for awhile, and I apologize for that. I recently had to make the trip out to Pittsburgh (I currently live in Philadelphia) to see my Cardiologist, and...
Jul 12, 2015
I had an Transthoracic Echocardiogram (complete with Doppler and sound) done on May 27th of this year. Thanks to cuts in Medicare, it is no longer completely covered. I received a bill in the mail...
Jun 26, 2015
I've been focusing on a new way of life. It always takes me about a month before it starts to become routine, and at least 2 or 3 weeks before I perfect it. That being said, the first part of my...
Jun 16, 2015
I just recently took a small vacation. I was thankful to escape to the peace and quiet of the PA mountains. It's an inexpensive trip (which a close friend paid for) because I had somewhere to stay...
Jun 08, 2015
I've been on the Furosemide for just under 2 months. I've been very dilligent in keeping up with my low sodium diet, and weighing myself every day. I've stayed under 2000 mg of sodium every single...
May 29, 2015
Health update & new gameplan as of Thursday, May 28, 2015... my Cardiologist increased my Lasix to 40 mg a day. I have flexibility with this new dose. I can take it all at once or split it up into...
May 15, 2015
Latest update on my most recent health setback...I've continued to take the Furosemide every day. I am down 3 lbs as of a few days ago. I had some bloodwork done on May 12th. It included my regular...
May 02, 2015
I've been on Furosemide (generic of Lasix) since this past Wednesday. I already notice a difference. I've lost 1 pound so far. I have more energy. I'm sleeping better at night. My breathing is...
May 01, 2015
Been on Furosemide (the generic for Lasix) since Wednesday. I am starting to notice a definite difference! I have real energy for the first time in ages! I was able to swap out my summer and winter...
Apr 29, 2015
I will be calling my Cardiologist today...in a few minutes actually. I had swelling in the outer side of my left ankle yesterday and my breathing all day yesterday was not nearly as good as it...
Apr 28, 2015
It's 5:20 AM. I can't sleep. My mind is stuck in the dungeon of despair as I've nicknamed it over the last hour. Ever since the swelling in my legs came up about 10 days ago, I can't get out of...
Apr 27, 2015
I haven't posted any personal updates in a little while, so I feel I owe you all one now. A little more than a week ago, I went to my old hometown for a few days to visit with some dear friends...
Apr 07, 2015
The best resource to learn about Pulmonary Hypertenstion is at the PHAssociation website! They have started a new-ish campaign called PHAware. They are trying to spread the word about this horrible...
Apr 02, 2015
A few minutes ago I joined in the Blue Lip Kiss Challenge that was started by a young lady who is also PHighting Pulmonary Hypertension. She wanted to do something to raise PH Awareness as she...
Apr 02, 2015
Each month I get a statement from AARP, my prescription insurance coverage provider. It details what medications I got for the month, what AARP paid for, what I paid for in copays, and what...
Mar 13, 2015
After a bitterly cold winter with freezing temperatures, and lots of windy days...I finally got out of my apartment for more than an hour or two!! I had gone out in early February for about an...
Feb 15, 2015
I recently discovered a song which I am falling in love with! It's performed by an amazing woman who is also fighting PH, just like I am! I wanted to share this song with all of you! It's...
Jan 22, 2015
OK, so I now have 4 doses of the Doxycycline Hyclate left....and I'm NOT taking them. I know you're supposed to finish all antibiotics. Believe me every other time I have finished my prescribed...
Jan 07, 2015
What is it like to be fighting PH and ending up with some type of other sickness at the same time? It's officially day 8 of being on antibiotics. While I'm definitely not 100% better yet, there is...
Jan 05, 2015
I've been fighting a sinus infection since New Years Eve. I'm just now starting to feel human again. However, because I have breathing issues to begin with, and have been all stuffed up for about a...
Jan 01, 2015
HAPPY NEW YEAR to everyone! I hope you celebrated safely and with lots of good times shared with loved ones! Unfortunately for me, 2015 is starting off with a sinus infection. I've been living...
Dec 28, 2014
Two of my dearest friends just created a new page on Facebook. We're trying to create a social media page that everyone interested can access for easier availability. This page has a link to my...