Well, apparently, I am still quite a luddite. My posting of the video didn't seem to work, so here is the text of what I said:
Hi everybody! Today is February 14, 2017, Valentine’s Day! It’s also National Donor Day. Further it is the 890th day since I was added to the waiting list for a heart transplant. While it is likely I will have to wait another year or more, I am optimistic that God will provide when I need it most.
I know many people who are in much more desperate need than I am right now. I am so grateful for the gift I have been given of my LVAD, which was placed in September of 2014. WIthout it, or a heart transplant, I would not be here today. With it, not only am I here, but I am able to function and be relatively independent. Although I am unable to work, I am able to drive. I am able to do my own dressing changes and have, thank God, been free from infection since I had the heart pump placed. I have also been able to do some volunteering with LifeCenter in Cincinnati and Life Connection in Dayton. This has brought me great joy to share my story, listen to others who have been affected by transplant in some way and spread the news of the great need that still exists for registered organ, eye and tissue donors.
Please, on this National Donor Day, take the time if you haven’t already, register to become a donor. You can save up to 8 lives with your gift, and can positively affect hundreds of others. Not only is it the recipient’s life you will change, it is their family, friends and anyone who comes in contact with them that will be affected. Organ donation is an amazing way to leave a tremendous legacy.
This week, I will head to Cleveland for a series of what I hope will be routine follow up appointments. It includes a right heart catheterization, which is the best test to see the current condition of my heart function.
As always, please continue to pray for Amy and me. Please also pray for my future donor and his or her family. Give Love. Give Life.
Feb 14, 2017
I figured National Donor Day was a good excuse for a video update. See. I'm not such a luddite!
Nov 25, 2016
Special thanks to Amy for putting this list together for #GivingTuesday
Here are some FAQs about HelpHOPELive and why we are using them for our fundraising for Pat's Heart Transplant.
Sep 11, 2016
When I had my LVAD implanted on Sept. 11, 2014 I was told I could expect to wait a couple of years for a new heart. It's now been a couple of years and by all indications, I'm not particularly...
Jun 09, 2016
Tomorrow, Amy and I will drive to Cleveland once again. Only this time, we are not going to follow up appointments, blood tests or other heart related issues. In fact, there is a strong...
May 10, 2016
Who knows what tomorrow will bring.
After about six months free from Atrial Fibrillation, I received a call last week letting me know that my remote monitor sent my doctor a transmission that...
Apr 01, 2016
Tomorrow I will attempt to tackle my second 5k since I've had my LVAD. I don't run, but if intend to walk. Team Patulence is growing in numbers (we are at 5 who will compete this event to raise...
Feb 23, 2016
Three months. If all goes well (and I don't get "the call) I don't have to make the trip to Cleveland until May.
I had an appointment with Electrophysiology on Monday and I continue to have...
Feb 13, 2016
On Monday, I returned to the Cleveland Clinic for routine follow up appointments with my LVAD team, my cardiologist and my bone doctor. Next Monday, I will return for a routine follow up with my...