For the last 11 days Alan has been experiencing severe chest pain and we have been back and forth to the ER about it (as well as about the CMV). We found out yesterday that the chest pain is due to the CMV which has caused inflammation of the tissue around Alan's heart. At present Alan does not have fluid accumulation around his heart and all the EKG and stress tests on Alan's heart are coming back normal. We are in daily contact with our transplant hospital (University of Wisconsin in Madison, Wisconsin) and our doctors here in Colorado.
We live in Parker, Colorado which is a suburb of Denver. We have not yet been advised to return to our transplant hospital in Wisconsin and are taking it one day at a time.
Dec 04, 2016
Alan is going through a rough time. We were in the ER all day Friday. In addition to the CMV symptoms (everything but fever) he has been having severe chest pain since Monday. CMV is CytoMegloVirus and Alan is CMV negative and the transplanted pancreas is CMV positive. Alan has been sick since November 10th. He was put back on Valcyte on Wednesday (on mega doses of it) and it has not helped. We are in touch with Alan's transplant nurse coordinator at Univ. of Wisconsin who has been in contact with the ER people and to Alan's other doctors. So far we haven’t been told to get on a plane to Wisconsin. The latest blood work about CMV (from last Wednesday) will not be back until at least tomorrow.
If the Valcyte doesn’t knock out the CMV, Alan may have to be taken off his transplant anti-rejection meds to fight the CMV, and would end up rejecting his transplanted pancreas. The ER did all the heart tests – EKG, stress test, x-rays, etc. and whatever is going on doesn’t seem to be a heart issue - but the chest pain Alan is experiencing isn’t getting any better.
Nov 30, 2016
Alan is having issues with Cytomegalovirus (CMV). He was CMV negative before transplant and his transplanted pancreas is CMV positive. Our transplant hospital put Alan on Valcyte for 6 months...
Jul 01, 2016
We will be in Wisconsin for Alan's 3 month follow up appointment with his transplant surgeon on August 5, 2016.
Apr 08, 2016
The surgery staples were removed today (53 of them). We will be leaving soon to return home. Alan and I are thrilled. We cannot wait to return to Colorado. There is a new article about Alan in...
Mar 19, 2016
Alan is now four days post transplant. His new pancreas appears to be working well. As of a few minutes ago, he is off of all IV’s He has been up and walking since Wednesday. He was started on...
Mar 15, 2016
Alan received his pancreas transplant today!!!!
He is out of surgery. He will be in recovery for about an hour and then come to his room on the transplant floor of the hospital. I spoke to the...
Mar 15, 2016
We are at the University of Wisconsin Transplant Center and are hoping Alan will have his pancreas transplant today. We have been here since 8:00 a.m. and Alan has gone through most of his pre-op...
Mar 14, 2016
We received the call that there is a pancreas for Alan coming from out of state. The OPO has not yet retrieved the pancreas. That should happen early tomorrow morning. The pancreas will not arrive...
Feb 21, 2016
We have decided to "multi-list" Alan for pancreas transplant and have decided to have a transplant evaluation with the University of Wisconsin Transplant Center before we return home to Colorado. ...
Feb 15, 2016
Alan is completing his 10th month of being on the waiting list for pancreas transplant with the University of Minnesota Medical Center in Minneapolis, Minnesota. Our expected wait, based upon...