Got my 2nd bronchoscope last Friday still waiting for results.my lung function test came out very good fev1 was at 85% hasn't been that good since ,,,well I don't remember when it was that good.thanks for all your support
Jan 13, 2017
My latest spirometry had me at 80% lung function
Dec 17, 2016
Got my second bronoscope on Monday,doctor says everything looks fantastic,Friday I got a call from coordinator saying the biopsy detected a bacterial infection an to start cipro immediately,praying...
Dec 13, 2016
Spent the whole day at Tampa general yesterday.my labs are looking better.got to wear a heart monitor for next 2 weeks to check on heart rhythm.and ended the day with a bronchoscope to check for...
Dec 06, 2016
Spent the afternoon at Tampa General, the anti rejection meds caused my magnesium level to drop again. So mom drove me over for the 3 hour infusion. And they scheduled my first bronchoscope for...
Dec 05, 2016
Spent the morning at clinic, had my first spirometry test. Did 67%, amazing considering 30 days ago I was at 19%. Magnesium levels are off again so back for infusion tomorrow morning.
Dec 01, 2016
Sitting here at Tampa General waiting for IV infusion to ward off the cmv virus. I never had it and my donor did. Makes for a long day. Thankfully my mom has been great driving me to TGH twice a week.