Hi everyone! It's Alyssa here. I just wanted to post an update to let all my amazing supporters know what's been going on recently and where I'm at in life.
Around this time last year I was struggling very much mentally. Due to this I relapsed with an eating disorder, something I've struggled with since I was 14 years old. I received treatment inpatient 2 times, the most recent being this past August. Since then I've been doing really well with my ED. I was lucky and while inpatient for my ED encountered an amazing therapist and I was even more lucky when that same therapist offered to see me in his outpatient clinic. So right now I'm going to individual talk therapy once a week, seeing a psychiatrist once a month, and maintaining my mental health by taking several medications for it.
In terms of my physical health: my lung function is stable at 63%. I am pretty deconditioned though and will be starting pulmonary rehab. I will also be getting physical therapy at some point in the very near future for my serious back pain. In terms of pain I have the diagnoses of chronic pain syndrome, arthritis, chronic migraines (4 types) and fibromyalgia. I also recently was diagnosed with chronic fatigue syndrome and I definitely have another sleep disorder that we're currently trying to diagnosis. In terms of the chronic pain I am currently on a very strict pain management regimen and have been on some type of pain management regimen since 2014. As of last month though I am weening off my pain meds. It's a huge, scary and literally painful time, but I don't want to be on pain meds anymore or for the rest of my life so it was time for this decision to be made. I will be honest that it is my goal to be pain med free by August 18' and instead using edibles to help not only my pain but my mental health issues as well which include but are not limited to depression and PTSD. I have my doctors support both mental and physical health doctors, so hopefully we can make this happen in 2018.
So that's what's going on currently. I will actually update again in several days because I have some appointments in the next several days and will update after them.
Thank you EVERYONE for your continued support and love. I am so grateful for my friends and family. I feel like the luckiest girl in the world often, due to the great people I have supporting me. Once again, thank you all, I love you all <3
Oct 04, 2017
Hi all, it's been a LONG time. Alyssa's lungs are in good health but she continues to suffer with other problems. She is dealing with severe chronic pain from arthritis, gastroparesis and fibromyalgia. She is continuing to battle her eating disorder and is in the process of being diagnosed with a sleep disorder. She has good days and bad and appreciates everyone's continued support. - Ducky
Nov 08, 2016
Hello all! It's been awhile since we've updated. Alyssa has been relatively stable for quite awhile, until a couple weeks ago. She had a numerous gastric and feeding tube issues that resulted in...
Mar 08, 2016
Alyssa has been back in the hospital for about 2wks. She had to have a feeding tube placed and is having numerous complications from that surgery.
Jan 17, 2016
Alyssa is doing fantastic!! She's still having issues with her digestion and is awaiting surgery to help correct that problem. Bills are still a huge issue and we appreciate everyone's help!
Nov 05, 2015
Alyssa was home for 6 days before having to be admitted again. As of right now, she's not doing great.
Oct 22, 2015
Alyssa is FINALLY HOME!!
Oct 17, 2015
Alyssa is STILL in the hospital and bills are really starting to pile up. She could really use all the help she can get. Every dollar counts!
Sep 19, 2015
Alyssa went home last Saturday, unfortunately on Monday night she was brought in via helicopter after suffering 4 seizures. She remains in ICU but is showing improvement. That being said, expenses...
Aug 26, 2015
Alyssa has been back in the hospital since Thursday. (6 days now) It was supposed to be a quick stay, just for a bronch. Unfortunately she is retaining too much fluid and went into bronchospasm...
Aug 14, 2015
Alyssa is currently HOME for the weekend!! and home for good next week!
Jul 27, 2015
Alyssa was discharged on July 15th and had been doing wonderfully! Unfortunately she was taken back to the hospital Saturday (7/25/15) via ambulance with low oxygen sats. She's been readmitted with...