Mariah Needs Your Help
Mariah Neiswender is a 46 year old single mother of three who is very ill. For years she has been struggling with Alpha 1antitrypsin deficiency, a genetic disorder that causes COPD. Mariah’s is complicated with bronchiectasis and emphysema, she is now in end stage COPD. Mariah’s condition had worsened to the point that she had to be put on the waiting list for a double lung transplant. Since then, Mariah and her caregiver have been traveling back and forth 160 miles every 6 weeks for her medical appointments. Transplants are life-saving but are very expensive.
September 13, 2018
Hello and thank you so much for your support, I appreciate it tremendously. It helps more than you know. AsI said before, I have been traveling back an forth from Temple Hospital in Philadelphia several days a month. Between my normal testing and Doctor appointments, I also have to see the surgeon, and receive my chemotherapy infusions there. I am able to receive the other IVIG infusions here in my home, which I am thankful for. My insurance is fighting to not pay for my infusions, which I hope and pray they end up covering. Just for one month of the Chemo and IVIGV, it costs well over thirty thousand dollars! Medications are so costly. I do finally have some wonderful news to share with you, my antibodies have gone grom 95, to 89 down to 30!! It’s great news my Doctor said, I’m on the right spot I n the transplant list and with my antibodies lowered I’m more likely to find a match! Yay! I wanted to share my news with you all, thank you.
August 2, 2018
Hello, sorry it’s been awhile since an update but I’m still waiting for my new numbers for my antibodies. I was hoping to post them as well. We have been continuing the infusions, hoping to bring the antibodies down and make me a better/easier candidate for transplant. I have been receiving two IV/IG infusions in my home and I travel to Philadelphia/Temple Hospital for my other infusion. It’s been alot of traveling back and forth, and overnight stays. I want to thank you all for your donations, I appreciate it more than you know. All the expenses have gone up quite a bit, of course, with the amount of travel and need to stay overnight at times. Thank you for helping!