Chandler was at 85 lbs over Christmas due to bacteria call C-Diff that affects the colon and causes you not to eat or be able to keep anything you do eat. We almost lost him at Christmas. But he made a turn for the better and has now gained to 112 lbs. and is doing real well. Chandler has not been listed as of now due to the fact his weight and BMI was way to low to survive surgery. He now has a Bi-pap machine that helps with Breathing at night and he is resting and getting 8 hours or more sleep a night. We have had a second round of C-Diff in the last couple of weeks but caught it early enough to keep Chandler from losing to much weight. We hope to go back to Cleveland in June and that at this time his weight and all will be good and he will finish all testing for listing. Please continue to pray. Chandler has grown so much through all this, and we live for today and not what tomorrow might bring to us. Thank you so much for all your support.
Dec 21, 2016
Chandler is being admitted to Medical ICU at Cleveland Clinic in really bad shape. We need transplant now if at all possible. Please keep him in your prayers.
Dec 20, 2016
My husband and son, Chandler, have just left to for Cleveland Clinic in Ohio. He is at that point of no return in need of double transplant. This will be the first Christmas my family has ever been...
Dec 17, 2015
Home from Duke, we will do a follow up Dec. 30th.
Dec 10, 2015
We are home from Duke. Chandler goes back for Check up on 30th of Dec. Please continue to pray that the blood clot dissolves that is in his neck. Thank you for all the prayers. ANY DONATIONS are...
Dec 06, 2015
Please we are in need of donations to help cover our expenses while at Duke. Any thing will help to cover food, parking and all. I am staying in the room so that I do not have to cover the expense...
Oct 22, 2015
3 days until we head out for Duke and the journey of a life time. Please share and donate if possible. Thank you for our family to yours.
Aug 26, 2015
Still really having a difficult time. No strength to get up and get around. White counts up more now than it was when we started meds. Red count is down and carbon monoxide levels are up. Please...
Aug 12, 2015
Starting back on steroids to try and help with breathing.
Aug 04, 2015
Today is Chandler's 23rd birthday and we are thankful for this. Strong young man.
Jul 27, 2015
Please take a minute and look at Chandler's page. We need your help in order to be able to do this with the lung transplant. Thank you so much for sharing. #65 Rose #Lung #transplant...
Jul 23, 2015
Update on how Chandler's doctors appointment went today. Lung functions were down slightly but over all doctor was pleased with how he look and was doing. Hopefully she will be able to help us push...