From our recent Caringbridge post: Andrew was injured on April 19, 2015. I used to report how many days ago that was - today makes Day 515. As I was creating a summary of every hospital or rehab admission we've had (for emergency purposes), I added up the total days we've been in institutions - 207 so far. There have been admissions for rehab, emergency surgeries, infections and (of course) the initial trauma. That means 40 percent of the last 17 months have been spent in institutions. Whew....we are hoping that is it for awhile!!
Two days ago we concluded that, once again, Andrew has a UTI and we are treating it. Yesterday was a recovery day as his antibiotic started to kick in. I'm pleased to report his alertness today has been good. He answered questions with (somewhat) audible responses and he shook his head vigorously yes when asked if he was feeling better.
This past week we had a great visit from Andrew's friend Katie who he hadn't seen in a little while. He really perked up for that.
Many heartfelt thanks to the folks who have signed up (or are regulars) to sit with Andrew while we run errands, attend meetings, etc. The sign up at: mealtrain.com/trains/39qm78 seems to be working pretty well (Ok maybe a glitch here and there) but it is such a help. Thank you all.
A quick reminder of the fundraiser breakfast for Andrew at Oakdale Church on October 1 sponsored by the United Methodist Men. If anyone is interested, I will be sharing a little about our journey to the Men's Group at their September 27 dinner meeting (7:00-8:30pm). If you would like to come out and be a friendly face in the audience, please do [but please email me so I can give them the extra head-count: [email protected]).
Aug 13, 2016
From our August 6 CaringBridge entry: This past week presented two challenges that could have landed us in the hospital. Last Sunday morning Andrew knocked or pulled his feeding tube out of his abdomen! Apparently the inflation device holding it in place had deflated slightly and it came out much easier than it should have. We made a quick decision to reinsert it on our own and reinflate the balloon to its proper amount. A visit to our gastroenterologist later in the week confirmed that we followed appropriate procedures and that the tube was properly placed - but it was a little scary for those few minutes!
Then on Tuesday, Andrew started minor storming during an OT session. We had to start our drug routine to try and bring him back to normal. This is always an anxious time since we often cant figure out a cause and we never know if it will escalate to a 911 call or whether we can bring him back with meds here at home. Thankfully, the meds worked - it took about 6 hours but we could breath a sigh of relief by about 9:00pm when Andrew had finally returned to his baseline.
Thanks to everyone for their prayers and contributions of time and resources this past week. Please continue to pray for recovery, no matter how small the gains are!
Jun 20, 2016
Having been at Moss Rehab Hospital for three months in Philadelphia, we are glad to be back home now and getting back into a routine. Andrew has made some progress and we are very hopeful that a...
May 02, 2016
Andrew has been recovering well from his latest surgery and we just got word that we have been approved to move back to the Moss Rehab Unit here at the Einstein Campus in Philadelphia. We are...
Feb 23, 2016
We are home after 10 days in the hospital for UTI and bowel problems!!! Really glad to be out of the hospital. Hoping to stay clear of it for awhile. We have some new training and knowledge that...