Update for November 17, 2017 Journal entry by Tom Gallup — 11/17/2017
Some very interesting and exciting progress this week as Andrew has responded more to his therapists! In speech he has demonstrated he can "hit a switch" consistently so we have ordered a large bluetooth switch that can act as a kind of mouse to coordinate with an ipad that we have clamped onto his wheelchair. Hopefully he will be capable of working with some great new communication software that our speech therapist has downloaded.
And today Andrew had a good time curling up with his dog Lokie on the new, extra-wide workout mat we have set up. But more importantly he made it clear he wanted to sit up before we asked him and started to on his own. Then he made it clear he wanted to stand. And he did - his best efforts yet. No sling just holding onto the stander's control bar. Usually he is very hunched over when standing on his own, but today he made great efforts at straightening up.
So we are really looking forward to keeping this momentum going!!
Sep 19, 2017
Andrew had a good week and is making slow but steady progress standing up in his new device. We have had him stand for up to 20 minutes at a time and we're confident it will only get better. OT/PT Diane has devised a way for him to start lifting weights (see video) which is a beautiful thing to watch. It seems to be helping the spasticity in his right arm. She has found, and is encouraging, muscle movement in his left arm and leg - something we thought impossible not that long ago. He is getting used to the very awkward, very heavy new shoe/leg braces that were made to help him stand. We think his first steps could be soon, although they will take much time to develop.
Aside from some skin irritations, he is healthy - and for that we are grateful.
Prayers please for more speech during his alert periods.
Sep 18, 2016
From our recent Caringbridge post: Andrew was injured on April 19, 2015. I used to report how many days ago that was - today makes Day 515. As I was creating a summary of every hospital or rehab...
Aug 13, 2016
From our August 6 CaringBridge entry: This past week presented two challenges that could have landed us in the hospital. Last Sunday morning Andrew knocked or pulled his feeding tube out of his...
Jun 20, 2016
Having been at Moss Rehab Hospital for three months in Philadelphia, we are glad to be back home now and getting back into a routine. Andrew has made some progress and we are very hopeful that a...
May 02, 2016
Andrew has been recovering well from his latest surgery and we just got word that we have been approved to move back to the Moss Rehab Unit here at the Einstein Campus in Philadelphia. We are...
Feb 23, 2016
We are home after 10 days in the hospital for UTI and bowel problems!!! Really glad to be out of the hospital. Hoping to stay clear of it for awhile. We have some new training and knowledge that...