Andrew had a good week and is making slow but steady progress standing up in his new device. We have had him stand for up to 20 minutes at a time and we're confident it will only get better. OT/PT Diane has devised a way for him to start lifting weights (see video) which is a beautiful thing to watch. It seems to be helping the spasticity in his right arm. She has found, and is encouraging, muscle movement in his left arm and leg - something we thought impossible not that long ago. He is getting used to the very awkward, very heavy new shoe/leg braces that were made to help him stand. We think his first steps could be soon, although they will take much time to develop.
Aside from some skin irritations, he is healthy - and for that we are grateful.
Prayers please for more speech during his alert periods.
Sep 18, 2016
From our recent Caringbridge post: Andrew was injured on April 19, 2015. I used to report how many days ago that was - today makes Day 515. As I was creating a summary of every hospital or rehab admission we've had (for emergency purposes), I added up the total days we've been in institutions - 207 so far. There have been admissions for rehab, emergency surgeries, infections and (of course) the initial trauma. That means 40 percent of the last 17 months have been spent in institutions. Whew....we are hoping that is it for awhile!!
Two days ago we concluded that, once again, Andrew has a UTI and we are treating it. Yesterday was a recovery day as his antibiotic started to kick in. I'm pleased to report his alertness today has been good. He answered questions with (somewhat) audible responses and he shook his head vigorously yes when asked if he was feeling better.
This past week we had a great visit from Andrew's friend Katie who he hadn't seen in a little while. He really perked up for that.
Many heartfelt thanks to the folks who have signed up (or are regulars) to sit with Andrew while we run errands, attend meetings, etc. The sign up at: mealtrain.com/trains/39qm78 seems to be working pretty well (Ok maybe a glitch here and there) but it is such a help. Thank you all.
A quick reminder of the fundraiser breakfast for Andrew at Oakdale Church on October 1 sponsored by the United Methodist Men. If anyone is interested, I will be sharing a little about our journey to the Men's Group at their September 27 dinner meeting (7:00-8:30pm). If you would like to come out and be a friendly face in the audience, please do [but please email me so I can give them the extra head-count: [email protected]).
Aug 13, 2016
From our August 6 CaringBridge entry: This past week presented two challenges that could have landed us in the hospital. Last Sunday morning Andrew knocked or pulled his feeding tube out of his...
Jun 20, 2016
Having been at Moss Rehab Hospital for three months in Philadelphia, we are glad to be back home now and getting back into a routine. Andrew has made some progress and we are very hopeful that a...
May 02, 2016
Andrew has been recovering well from his latest surgery and we just got word that we have been approved to move back to the Moss Rehab Unit here at the Einstein Campus in Philadelphia. We are...
Feb 23, 2016
We are home after 10 days in the hospital for UTI and bowel problems!!! Really glad to be out of the hospital. Hoping to stay clear of it for awhile. We have some new training and knowledge that...