We've had allot going on in our family life as many know.
We've been blessed with miracle with dads recovery with his surgery on May 30th.
Megan graduated from High School in June and turns 18 in 2 days, yikes!
Next school year we will have Molly a junior, Margo a freshman and Megan again a freshman but in college!
We do ask you to pray for our cousin Jeremy and Anna's little one Junie who's had to have more surgery in Danville and next week is possibly being transferred to Hershey for extensive therapy.
Now onto the Molly update:
Molly and I went up to Syracuse on Tuesday and had good visit and took off one med and more blood work locally next week and then maybe more med changes. God willing Molly and I won't be returning for visit until just before school starts! Other then threatening to get Molly a bubble wrap suit because she falls or trips on air I swear and gets nasty looking bruises, and I pray she doesn't hurt knees bad enough to get drained again.
Best part of trip, we also got to meet up with our friend Devan and his brother Brandon for Devan's orientation to be placed on Upstate Organ Donation Listing, he's currently on Danvilles waiting list. Devan is like Molly was, he's waiting for a kidney. If anyone wants to be tested, please let us know and we can get you the contact info. I'm so glad we were able to be there with them to just be support during this long process.
Please check that box on your drivers license, talk to your family so they know your wishes. God forbid if something happens and you need to make a decision for someone else, please remember all those waiting, like Devan!
Thank you for continued thoughts and prayers, truly know it's God supporting us thru it all. He allows the money to come or enough so we can juggle all, again God makes it happen, he gives us strength and healing even the crazy we call life.
May 25, 2017
I sit here and reflect that it's been a year and a half to the day we were being discharged from the hospital to come home to the unknown path our journey was taking. My cell phone rang with THE call that forever blessed our family.... "Lisa, it's Lavelle, how's Molly feeling? Has she been running a fever in the last 24-48 hours? And how soon can you get to Syracuse?" My reply "No, nurses have said she's been running normal? And we're on 11G to be discharged?" Lavelle says "You're not being discharged, we found Molly a kidney! We'll be there in under an hour!" Phone disconnects and I looked at Bill and then Molly and said (as we were all exhausted) "Did that just really happen? Did my phone really ring? Omg Molly you're getting a kidney!" Tears all around and God love Molly she fell asleep to just us in the room and awoke to no joke 15 people gathered around her bed. Wow what a crazy few days until she actually had the surgery and our doctors, nurses, other staff that were amazing and all of our friends and family that were waiting and praying for our Molly! Then (and still) praying for Molly and Billie Joe! We had a rough few days after surgery, but Molly is a fighter and stronger then so many give her credit for!
We have had lots of ups and downs and bumps but we've had more good or great days and are so beyond thankful for that! But even as I'm so thankful and celebrating my momma heart still just breaks for our donors family! Thank God they made the decision to donate that helped many, not just our family! We as we celebrate our milestones, still heartbreak for their painful milestones.
Our last visit they tweaked meds again and we had long day, but blessing we came home. Molly goes back after schools out for her next check up. Our whole family has had lots of ups and downs and ask for continued prayers for Margo with her continued headaches from PCS, from the accident we were in. I'm learning to deal with my wrist not having full strength like it did, but I'm thankful because could've been so much worse for us both! Thanks to Bill for always being there and keeps working like crazy to do for our family! He deserves an award for all he does for us all! Megan is a senior this year and it's all wrapping up too quickly! Yikes.....next year we'll have two freshman (one in high school and one in college) and a junior, wow! Molly is Loving her adventures at vo-tech and the food service / culinary path she's on.
Please make the decision to become an organ donor and talk openly and honestly to your family, about your wishes, because YOU might be that person saving another Molly, our friend Devan, or the many many others waiting for the gift of life.
Thank you and God bless you all for being here for us as we've travelled our journey, our path and we ask you continue to support, love, and keep us in thoughts and prayers as we keep going. I pray everyday for "Our team" (doctors, nurses, our Ronald McDonald Family, our friends and family at home and around the world, you all make up our team!) please lord let our team bless people everyday!
Please hug your family, tell them, show them you love them!! Love to all!!
Feb 05, 2017
Molly is doing good at home and she's had a quiet weekend. Throat still hurting so drinking is an effort, but she's doing good. Sleeping allot, but her body still fighting the virus.
Feb 02, 2017
We are home with lots of doctors orders and Masked Molly will be making reappearance thru the rest of flu season. Off of school for a bit and no crowds and limited comings and goings.
Feb 01, 2017
Molly had a very restless night with temps spiking high and then going back down.
Took all her strength this morning to eat breakfast, used some magic mouthwash and was able to drink...
Jan 31, 2017
Well we were told a month we could wait between visits but Oh No, Miss Molly decided she "needed" to get the flu and with her medical history it's not great.
So now we're seeing another floor,...
Jan 26, 2017
After a very long day Molly, Margo and I are home.
We drove up last night and got settled, ate dinner, and back up to room to try and veg and get to bed early....I was wide awake still at 1:30...
Jan 03, 2017
Molly and I were blessed with clear roads and pretty good travels rain and Thank the good Lord temps stayed above freezing!!
Got to Ronald McDonald and we had good dinner of leftover scalloped...
Dec 20, 2016
Molly and I were blessed with clear roads and pretty good travels few minor idiots but more good then bad. Best part, we snuck a visit and few snuggles with our newest family member!!
Nov 28, 2016
We've had a long day and I apologize for not updating sooner.
We've got both Molly and Margo seen today and it was hurry up and wait for Margo's part of appts.
We got over to the hospital...
Nov 27, 2016
Happy 1 yr Anniversary to Molly and Billie Joe! Today again we celebrate, but we also remember with thanks, the family that is mourning their loss. The greatest thanks to them for giving our...
Nov 08, 2016
Happy Election Day! I hope everyone takes the time and goes out and votes!
As always, monitor, monitor, monitor, tweak meds here and there. Wait for calls before we can head back towards...
Oct 27, 2016
Long wet ride up last night, awake to snow/slush on car and steady rain to head back over to get Molly's blood work done. Again today 2 tries before they get it.
We visited with others on their...
Oct 25, 2016
We had a nice drive in last night, not near as pretty as last time as most of the leaves have fallen with all the rain we've had.
Stayed last night as normal at Ronald McDonald house ( can't say...
Oct 11, 2016
Molly and Billie Joe are doing good! Numbers look good, we wait for call on one medicine if dose needs to change.
We come back in few weeks and then maybe be stretched out further apart again...
Sep 29, 2016
Molly and I are home after her bloodwork and clinic and levels are good and doctors are happy!! Few med changes again, but its all good. Now if we could only get the paperwork fixed where they...
Sep 21, 2016
We are home!! Molly we thought would be released first thing this morning to get back to school this afternoon at least, but it wasn't meant to be. We will know more next week, but praying...
Sep 20, 2016
Well Molly and I have had an eventful day with New nurses in the infusion center to get her 2nd dose of the one med today.
Sadly, Molly again reacted to the meds and is having a sleepover with...
Sep 06, 2016
We are waiting on call for one more level, that might mean medicine change, but everything looking good. Her levels are stable and where they want.
Want to share this as its said best by...
Sep 05, 2016
Molly and I arrived safely at Ronald McDonald (after DD stops) in Syracuse and are heating our pizza for dinner. (We eat late on purpose since she can't eat until after her appt.). We thought ...
Sep 03, 2016
Molly and I have been settling back home and getting back into family routines.
Best comment, when we pulled in driveway and hearing birds chirping and singing Molly says "I like hearing these...
Aug 31, 2016
Molly and I are home after a long night!! We are thankful I had got Clare singing with Molly on my phone, we snuggled and played Clare over and over!
We got out around lunch time after...
Aug 30, 2016
Molly and I have had a long day. Praying we both can sleep tonight (Mom was wide awake until after 3 am and wanted to nap today but stayed awake). So hopefully we both get good sleep...
Aug 29, 2016
Molly and I had a good day, had its moments but good far outweighed the bad for sure!
Molly had her one med around 10 this morning and slept thru most, nurse said I think she's going to fall...
Aug 28, 2016
Molly and I had a good and quiet day. Got a few things organized and trying to be ready for tomorrow.
Tomorrow she's back to the two meds and they have to put in new IV as hers finally didn't...
Aug 27, 2016
Molly and I have had a good day!
Her original kidney doctor is on this weekend and was nice to visit with him as he checked in on Molly! I was able to get a current picture with them, for the...
Aug 26, 2016
This might be long.....
Molly had a rough night last night and day today. The testing she had done yesterday caused discomfort in late evening hours and into today. She has had a few further...
Aug 25, 2016
Molly and Momma have had long days but Molly's slept thru allot of the days lol
Tomorrow two more tests/meds and then break for weekend
Nurses and other staffing are great here and are so...
Aug 23, 2016
Molly and I had a quiet and lazy day today. Just hanging out before bed, waiting for dad to post about the Harford Fair!!!
Remember to stop by the Marching Band Booth to get your funnel cake...
Aug 22, 2016
Molly resumed her meds today, one right after breakfast and one right after lunch and then slept allot of afternoon away.
If she doesn't get drinking I'm afraid I'll have to start singing, lol...
Aug 21, 2016
Molly and I have had a great weekend. No big meds just her normal routines meds with few adjustments.
On Saturday, Daddy, Megan, and Margo came up to visit and we had great time. (Even though...
Aug 20, 2016
Molly had pretty good day yesterday and has been a lazy slug today sleeping in. Her doctor asked how she can possible rest when she sleeps so strangly lol. Waiting for daddy and her sissies to...
Aug 18, 2016
Molly has had a good day! Started off a little dizzy but meds can do that, but after breakfast she was doing good.
We had a great visit with moms friend "Blue Dolphin Gail" (because thats...
Aug 17, 2016
Molly and I had a rough day here in Syracuse. Meds overnight and new med started today that will repeat every other day for a bit. The newest med today afterwards made her feel not so good, but...
Aug 16, 2016
Molly started her night last night with new meds overnight. She had a long afternoon with plenty of interruptions with nurses and other staff wanting too see her 4H scrapbook. She tweaked and put...
Aug 15, 2016
Mom and I are back at Upstate and I had more testing for Billie Joe with levels and med changes. While some are improving, some staying level, others are still Wonkie, so I'm going to have some...
Aug 09, 2016
WooHoo we are home!!!
Thank you for all thoughts and prayers! Now to get used to all med changes and settle back into routine!
We've got more visits upcoming and we know more testing to...
Aug 05, 2016
Molly had good day yesterday and then a great day today.
She worked on scrapbooking for 4H that's about her port surgery and transplant journey. (Kinda poetic to be finishing it in hospital)...
Aug 03, 2016
Molly had rough morning with headache but she's feeling much better tonight.
We are hoping to go to Bingo tonight, see if she wins like she did last time we were here. We want to see if Bingo...
Aug 02, 2016
Well doctors have just been in....Good News, Billie Joe seems to be doing well and is healthy!! Praise God!!
Molly's body is adjusting to medicine changes, but not going as expected, so they...
Aug 01, 2016
We've had our 8 mth anniversary with Molly and Billie Joe on the 27th of July. Time is passing so quickly!!
We had to come to Syracuse for an extra appt. due to some numbers being off and...
Jun 21, 2016
Sitting here after Molly and Billie Joe's 6 wk check up and very happy with her check up and we are good to go until August, WooHoo!! Might need one blood work check locally and again few changes...
May 27, 2016
6 months....6 months ago Molly was in surgery getting her new kidney Billie Joe! That was I think the longest 6 hours Bill and I ever had, but to Molly she said it felt like minutes,...
May 09, 2016
Beautiful sunny day in Syracuse!! After a long wait in both registration and lab we got to see the Dr. and she gave us news that unless others we know are sick or known bugs in school she can go...
Apr 11, 2016
Home from a trip to Syracuse and Billie Joe is behaving, and so is Molly!
We are waiting for few results to see if meds need to be adjusted, a couple of things talked about and making few...
Mar 27, 2016
It's hard to believe the journey and blessings we've received over that last 4 months. March 25th was the 4 mth anniversary of finding out Molly was getting "Billie Jo" her new kidney!! As we...
Feb 29, 2016
We've celebrated our 3 month anniversary for Molly and Billie Joe, so very thankful for the wonderful gift given to our family. Today had her visit with the Doctor....We're afraid numbers are...
Feb 12, 2016
WooHoo, sooooo unbelievably excited and I'm sure you all will think we're nuts.....we've been having to have her go to the bathroom ever 2 hours during waking hours and we get Molly up during night...
Feb 08, 2016
We had busy weekend! We celebrated "Christmas in February" withNana and PopPop and Caleb and had gf homemade gravy, gf biscuits and Margo helped make a yummy chocolate chip trifle!! Yummy BBQ...
Jan 27, 2016
It's hard to believe it's been 2 months ago today that Molly had her kidney transplant. We've had ups and downs as expected, but am so thankful more ups!! We want to thank everyone who's helped...
Jan 25, 2016
What a great way to celebrate the 2 month anniversary of getting the call about Molly's kidney being available.....getting the news Billy Joe is behaving and we are now moved to bi-weekly visits...
Jan 19, 2016
We're back at Ronald McDonald house and just got the call from Molly's Doctor that Billy Joe is doing great! Reviewing a few things and now limited outings are allowed with Masked Molly! She...
Jan 11, 2016
We are very happy to be leaving Syracuse and next week adjusting for the holiday, and lab being closed.
Today, Doctor says Billy Joe still is doing great!! Molly's numbers looking good and...
Jan 04, 2016
We are very happy to be leaving Syracuse and to continue only come back once a week! Doctor says Billy Joe is doing great!! Molly's numbers looking good and still adjusting intake amounts and we...
Dec 28, 2015
WooHoo Billy Joe is for sure coming out of his "dumb" phase. Molly's kidney function is doing great, other numbers looking good and we wait to be sure if meds need to change based on numbers...
Dec 25, 2015
First I want to wish everyone a blessed, Merry Christmas!! Happy Birthday Jesus!
As I sit here and look back to a month and a half ago we were, worrying and praying for Molly and how it would...
Dec 24, 2015
Merry Christmas Eve!! Billy Joe's doing good abc Molly's numbers still moving but Doctor told us to have a great but quiet holiday weekend at home and she'll see us next week :) so relieved we can...
Dec 21, 2015
WooHoo, Billy Joe is started to get a little smarter and heading out of his dumb phase!!! Molly's numbers for kidney function doing great and having to wait to see about one other level if meds...
Dec 17, 2015
Molly had a good visit and we wait for call if meds need to be changed again, but this is an ongoing process.
Checked out of Ronald McD and have our reservations set for next few visits. We...
Dec 14, 2015
Molly's appt went well. Docs happy and say Billy Joe still acting kind of dumb. Molly needs to drink even more to make him "wake up" fully and get smarter, Hahahaha but glad docs are happy!...
Dec 11, 2015
We saw some amazing Snowmen for a contest and got to vote for our top 3 choices (pictures to follow) We saw Claire, the music therapist even though she told Molly "Now I thought I told you last...
Dec 11, 2015
Molly got pretty good rest, mom not so much lol.
She's been getting nonstop fluids and right now her numbers heading in direction they want.
We are in holding pattern to see what or how long...
Dec 10, 2015
Molly and I came last night, slept in little later then we should have (oops). No wonder they tell you to get here when they do or you sit and wait like we did.
Went for labs and over for clinic...
Dec 07, 2015
Well we've done a first clinic appt. and Molly did great. They are changing meds which we've been told is normal and hoping only for week or so. Did an ultrasound and got to see her new kidney...
Dec 05, 2015
It's been a whirlwind 24 hours, but so glad to be home and be able to get a couple nights sleep in our own beds before the back and forth trips start for clinics for Molly.
We all slept well...
Dec 04, 2015
WooHoo, we are outta here!! Molly has been released tonight and we are on the way home!!! Praise God for all he's blessed our family with and for the amazing doctors, nurses, staff, from the...
Dec 04, 2015
Molly had good afternoon yesterday we found the fish tank, the chapel, in floor video game, library (got more DVDs and no daddy to try and work things) and guess what we had to call for tech...
Dec 03, 2015
Sorry for delay, I've started and got interrupted so many times.
Molly had a pretty good night but lights out was much earlier for Molly and even for Mom and those that know me, that's not a...
Dec 02, 2015
Molly had a restless night with her O2 sensor not keeping up with her movements and they moved her from ET finger and tried on her big toe. But she's a musician tapping even in her sleep so that...
Dec 01, 2015
Sorry about my first post it cut off part way thru.....
Continuing from the surprise visit from Pastor Sara who always brings smiles to Molly's face (even bigger then normal)
She had already...
Dec 01, 2015
I'm sorry for delay updating today but we had great night last night!!! Best we've had yet!! So-so morning especially when she saw more liquids for breakfast, but she got up in chair and tried...
Nov 30, 2015
We've had the best day since we've been here, hard to believe it's been a full week since her first surgery!
She had good day with walks, eating some of her trays, drinking lots, and visit with...
Nov 30, 2015
We've had a quiet restful night! Praise the Lord! Her pain was manageable and she did great. Her labs look good and things progressing nicely Still waiting for docs to come in but they'd told...
Nov 29, 2015
WooHoo!! We are back down on 11G and she's sleeping right now.
Plans are to slowly get up and move more each day and hopefully switch from liquid foods to "real" food!
Back with same...
Nov 29, 2015
Molly's had a rough night, but figuring it's her bowels (with her history of Hirschsprung's). The kidney looking good and her labs are doing great. Her kidney Doctor very happy with things. He's...
Nov 28, 2015
Molly is following doctors orders, is on liquids right now and that first drink of water was sooo good! She's switching between ginger ale and water.
She's got cleaned up and is now sitting in...
Nov 28, 2015
Molly had an amazing night with pain being managed and both sets of doctors have been in and are thrilled with how she's doing. Onward and upward, today Praise the Lord Molly gets to drink again...
Nov 27, 2015
Molly out of recovery and now in PICU and settled in. She'll be here possibly 2-3 days depending on how things go and then back down to other floor where she had been.
Prayers that new kidney...
Nov 27, 2015
Tears of joy are streaming we've had both her kidney doctor and the transplant surgeon come out and everything went well, new kidney is in and looks good. We won't be able to see her for few hours...
Nov 27, 2015
Well our long wait to be taken to surgery is over, called down, prepped and waited again due to an ER surgery so Molly, Bill and I sat in a very quiet and empty recovery room but we soon had filled...
Nov 26, 2015
We're on hold waiting, unknown time could be overnight, could be in morning.
I'm trusting in God's perfect timing for when it happens and that all will be as it's supposed to.
Nov 26, 2015
About 10 o'clock yesterday morning we received a call from Transplant Team asking if Molly was running any fevers and if we could get to Syracuse? My response was "We're at University Hospital,...
Nov 25, 2015
Mollys meds readjusted and things seeming to be working. She walked the floor once, opened some cards, and feel asleep as we didn't get much sleep last night. Going to try and lap floor again...
Nov 25, 2015
Molly's not having a good night, having some other things happening and need prayers for things to work way they're supposed to.
We've had ups and downs and am sooo thankful we've had more ups...
Nov 24, 2015
Right now, Praising God, Molly up, awake, alert, and on fb after eating only part of her lunch and going for walk on floor.
Flowers and a balloon delivered from Nana & PopPop and balloons...
Nov 24, 2015
Well, Miss Molly had a rough night! But they just delivered her breakfast and daddy's on way with DD
Nov 23, 2015
Surgery went well, recovery not to long and moved her to floor of course all happened at change of shift.
But settled in her room and prayers for pain management meds to start working and...
Nov 23, 2015
Just took her now so the two hour window starts now....
Nov 23, 2015
We are at the hospital and doing all the processes for check in and surgery at 11:30.
Thank you for all the prayers and support and will update as things are going.
She wants to ask Dr. for...
Nov 19, 2015
Today Molly and I go for her monthly bloodwork and then she's back at school. Only a few more days before her Port surgery and then we're on for newest adventure with the various things we'll have...
Nov 09, 2015
Molly and I will be making a road trip on Wednesday to get tours of 3 places to help answer some questions, and hopefully set her more at ease. Busy week (as normal) with school, band, dance and...
Nov 04, 2015
Molly's port surgery has been scheduled for Monday, November 23rd and we know she'll be in hospital 3 days and then we'll be going back and forth weekly and after 2nd or 3rd week (dates not set in...
Nov 04, 2015
Molly has been listed on transplant list and we are still asking for anyone that might want to be tested for living donor please contact us. Prayers for Molly (and rest of family) to stay...