Our hearts and prayers go out for all those impacted by Hurricane Harvey. We know many of our supporters are from the Houston area and nearby coastal plain. You, who have been so generous to us in our time of need, now face your own time of need. We will do what we can to support relief efforts and will also keep in touch with Joyce to inquire about the well-being of those from the affected area.
Jul 27, 2017
We just want to express today how thankful we are for everyone's support. Paul is excited about the possibility of having a power wheelchair. It opens doors for him and allows him to get out more without worrying about falling or becoming exhausted. The wheelchair company brought over a chair to the house for a demo and Paul got to test out all of the buttons and drive it around inside. He's really a great driver! We hope the chair order can be completed before too long so that he can begin using it at school. 3rd grade is just around the corner!
Jun 19, 2017
Paul recently returned from his follow up appointment at the Dallas clinic. After much discussion with the doctor and the physical therapist, we agreed to move forward on purchasing a power...
Mar 30, 2017
Spring is here and we are taking one day at a time with Paul. The steroids have really helped him maintain his abilities, for which we are thankful. He had a couple bouts with illness in the last...
Feb 23, 2017
Thank you for checking in! We recently returned from a clinic visit to Dallas. Their clinical trials and their connection to a Wellstone Muscular Dystrophy Cooperative Research Center made us...
Dec 13, 2016
Thank you all for your continued and generous support! We are still awaiting that phone call from Dallas telling us whether they will screen Paul to participate in the exon skipping trial. ...
Nov 04, 2016
We recently visited the clinic in Dallas. The pediatric neurologist there is the doctor involved with the exon-skipping trial. Paul has to be an established patient of hers in order to participate...
Sep 14, 2016
Excellent informational video about DMD: https://vimeo.com/133337162 Did you know Duchenne Awareness Day is on September 7th every year?
Jun 27, 2016
We are back from a visit to the certified Duchenne care center at the Children's Hospital Colorado. The doctors were pleased by how well Paul has responded to the steroid treatment. The steroids...
May 31, 2016
https://blog.helphopelive.o... This is a link to the HHL blog post about Paul. Also, Paul's on the HHL homepage header! Watch for his picture to cycle through.
May 11, 2016
Summer is almost here! This summer Paul will have another visit to the certified DMD care center at the Children's Hospital Colorado. He will continue his usual therapies (physical therapy,...
Mar 22, 2016
Thank you to everyone for your kind words and for your generosity. We are truly grateful for you all!