So sorry for not posting all the updates, we've been super busy! But heres the latest on my mom: She is diagnosed with steroid induced myopothy. Its a side affect of the steroids she has been taking to lower the Graft vs. Host disease, but unfortunately a side affect is losing all of your muscles. She has not been able to stand or walk alone for about three almost four months now. She was admitted to her transplant hospital in late December, and is now admitted into a physical rehabilitation hospital to help her gain back strength and muscle before its too late to fix it! She also has pneumonia, so they are doing daily breathing treatments to help with that. Shes also seeing her transplant doctor a few times every week to get hooked up to a machine that will help her out tremendously. It has not been easy. And according to her doctor this is going to be a very long road. Please continue to donate and Pray for my beautiful, strong mom. Shes the best person in the world and i cant imagine life without her!!
Jan 05, 2016
Count down to March! Right now I'm taking a new medication called Jakafi. Welcomed in the new year with a liver infraction. March needs to come soon!!
Dec 31, 2015
The transplant doctor is expecting to do the Bone Marrow Transplant in march, after flu season is over. The risks of doing it in flu season are too high! We are so blessed to have a transplant team...