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Hi guys! My name is Adrian. I am a 6 year old from Massachusetts and I have a rare form of Muscular Dystrophy called Spinal Muscular Atrophy Type 2.

I was born 5 weeks early but like the true fighter that I am was lucky enough to hit all of my milestones on time until it came to taking independent steps. That’s when things started to change. I ended up losing the strengths and abilities that I had developed and by the age of 18 months I was losing the ability to cruise furniture, to stand, to crawl, to roll over and even to sit up. After many doctors appointments throughout Western Mass I was diagnosed by the angels in the Neuromuscular Department at Boston Children’s Hospital. Since the March 2017 diagnosis I have been traveling to Boston (a 1.5 hour drive each way) regularly for therapies, treatments and appointments 1 – 5 times a week.

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Guestbook

October 17, 2021

Adrian, sorry I couldn’t be at your road race today. I hope you and your family had a terrific time!

Bill Laramee

October 17, 2021

We wish you and your family the best, Adrian, and we hope you have a wonderful Halloween too!! See you soon!

Alexandra Pinschmidt

October 12, 2021

Wishing you the best. President of The Hartford Whalers Booster Club Joanne Cortesa

Joanne Cortesa

October 2, 2021

Sending lots of love to such a sweet boy and one incredible family ! Xoxo

Laura and Sammy Hannoush