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Hi guys! My name is Adrian. I am a 8 year old from Massachusetts and I have a rare form of Muscular Dystrophy called Spinal Muscular Atrophy Type 2.

I was born 5 weeks early but like the true fighter that I am was lucky enough to hit all of my milestones on time until it came to taking independent steps. That’s when things started to change. I ended up losing the strengths and abilities that I had developed and by the age of 18 months I was losing the ability to cruise furniture, to stand, to crawl, to roll over and even to sit up. After many doctors appointments throughout Western Mass I was diagnosed by the angels in the Neuromuscular Department at Boston Children’s Hospital. Since the March 2017 diagnosis I have been traveling to Boston (a 1.5 hour drive each way) regularly for therapies, treatments and appointments 1 – 5 times a week.

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December 29, 2022

Happy holidays aidrian to you and your family we miss you and would all love to see you soon ❤️

Tegan Kimball

October 17, 2021

Adrian, sorry I couldn’t be at your road race today. I hope you and your family had a terrific time!

Bill Laramee

October 17, 2021

We wish you and your family the best, Adrian, and we hope you have a wonderful Halloween too!! See you soon!

Alexandra Pinschmidt