Julie Kobler

Hi friends, I need your help for relocation, travel and medically related costs for a double lung transplant.
I have LAM (Lymphangioleiomyomatosis) a rare lung disease. I was diagnosed in 2007 after a visit to the ER, the chest x-rays showed watery like cysts in both lungs, the radiologist said it looks like LAM disease and referred me to a pulmonary specialist. I got in the next day for a consult to confirm it was LAM. The pulmonologist referred me out to UCLA where they specialize in rare lung disease. That was the start of my journey.

In my case the progression of LAM has been slow and gradual over the past 14 years. I was able to work part time and enjoy lite activities for many years but each year it gradually worsened. In 2018 I got a new diagnose of severe asthma with exacerbation that further progressed my LAM disease. At that point everything became a challenge, severe SOB on exertion, major fatigue and more cysts accumulating, causing more restriction and obstruction with lung function. My pulmonologist put me out on permanent disability with end stage lung disease. I retired in 2019, as a Cardiac Sonographer, a career I loved and was blessed to work in.

October 8th 2021 I was excepted at UCSD in La Jolla one of the top 5 best Transplant hospitals in the nation. That same evening they listed me. Praise God! The biggest roles I needed to proceed was a full time caregiver which had to be a family member because of the intensity of recovery. and also a part time caregiver for relief. I’m blessed by my eldest brother Billy for saying yes and for my good friend Karen with a yes to help. I’m overwhelmed with gratitude by their commitment It’s by no means a little task. Billy lives in Colorado so he’ll be moving down temporarily.
Another requirement is that both my brother and I live in San Diego close to the hospital a minimum of 3 months after transplant. Thank goodness my friend Karen already lives kind of close to where we’ll be staying. For my brother and I we’ll be renting a place to stay in.
There’s a housing facility called the La Jolla house where patients and caregivers can rent located on UCSD campus which is much cheaper than other housing nearby. So that’s where we plan to stay.

We couldn’t manage any of this without your help and a loving God whom I call Jesus, may he bless each one of you.
I’m deeply grateful for your love and support.
Sincerely with love, Julie

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