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I did not expect to struggle so much putting these words together. My family and I have been, continue to be, beaten down by the ALS that is slowly taking the life away from my wife and true soul mate, Viviane.

I just want to use a few sentences to explain how this disease, ALS, irrevocably changed our lives.

Updates (3)

January 13, 2022

Family raising money to buy special van for mom with ALS

By Christy Kern

January 12, 2022

"This disease has quite literally imprisoned us’: ALS prompts family to seek community support

Photo Galleries (1)

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March 21, 2022

God bless you and your family, we always pray for you!

Vivi and Matt


January 25, 2022

Good afternoon, I was touched by the story I saw on the news this morning. I own a local business and we specialize in mobility. The name of my company is Install Don\'t Fall Fl. and we have a wide range of products to help with the day to day issues.

Please look at our website @www.installdontfallfl and look at what we provide. If we can be of any assistance please do not hesitate to reach out to us...


Jacob Wilkerson

January 15, 2022

I understand your struggle as we just lost our son to Duchenne Muscular Dystrophy in August. We have a 2017 Chrysler Pacifica touring rear entry van if interested. I can be sent a text at 8032615791. We are in Orlando Fl

Angelia Haynes