I did not expect to struggle so much putting these words together. My family and I have been, continue to be, beaten down by the ALS that is slowly taking the life away from my wife and true soul mate, Viviane.
I just want to use a few sentences to explain how this disease, ALS, irrevocably changed our lives.
I was on dialysis for 7 years while working and supporting Vivi and our two children. By 2018 I was in bad shape. Fortunately the universe smiled upon us and I was transplanted September 26, 2019, but not before being crushed by Vivi’s diagnosis.
We have been battling life threatening health conditions for nearly a decade. Lost so much already and today we fight against a disease that has claimed all of its victims.
Vivi was diagnosed with ALS in late 2018, just prior to my kidney transplant. We have two young children, ages 7 and 10. We fully understand our chances and we just want to spend as much fun time with our kids. Vivi wants to enjoy her life as much as she can, living in the moment and surrounding ourselves with happiness and positivity, and by the grace of god give us greater strength to stay alive in the eve of, what is hopefully, a watershed moment for ALS treatments in the world.
I am here appealing to people I have never met before because I am desperate to give my wife every chance at happiness. I am desperate to make new and great memories for our boys so that if we lose this battle with ALS my boys will have great last memories with their mom. I am hoping to raise money to purchase a wheelchair van so my family and I can get out and be the family we once were able to be.
Please share this story, donate if you can do so comfortably.
Thank you so much, and stay safe and healthy.
“There is neither happiness nor misery in the world; there is only the comparison of one state with another, nothing more. He who has felt the deepest grief is best able to experience supreme happiness. We must have felt what it is to die, Morrel, that we may appreciate the enjoyments of life.
” Live, then, and be happy, beloved children of my heart, and never forget, that until the day God will deign to reveal the future to man, all human wisdom is contained in these two words, ‘Wait and Hope.”
― Alexandre Dumas
Family and friends of Viviane MacDonald are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.
Viviane has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Updates (3)
January 13, 2022
Family raising money to buy special van for mom with ALS
By Christy Kern
January 12, 2022
"This disease has quite literally imprisoned us’: ALS prompts family to seek community support
January 12, 2022
Central Florida mom of two diagnosed with ALS gets help from national source
Photo Galleries (1)
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Guestbook
March 21, 2022
Vivi,
God bless you and your family, we always pray for you!
Vivi and Matt
Anonymous
January 25, 2022
Good afternoon, I was touched by the story I saw on the news this morning. I own a local business and we specialize in mobility. The name of my company is Install Don\'t Fall Fl. and we have a wide range of products to help with the day to day issues.
Please look at our website @www.installdontfallfl and look at what we provide. If we can be of any assistance please do not hesitate to reach out to us...
1-407-496-6066
Jacob Wilkerson
January 15, 2022
I understand your struggle as we just lost our son to Duchenne Muscular Dystrophy in August. We have a 2017 Chrysler Pacifica touring rear entry van if interested. I can be sent a text at 8032615791. We are in Orlando Fl
Angelia Haynes
January 15, 2022
Vivi, I hope you can make great memories with your family. Love, Juliana
Anonymous
January 15, 2022
Cherish every moment. We will be praying for your family!
Misty Campbell-Olbert
January 14, 2022
I can only imagine how difficult this must be for your family, especially since you were so active together. Hoping and praying you raise the necessary funds for your van so you can enjoy many family outings together.
Nancy Knop
January 14, 2022
You are in our daily prayers. Our Uncle suffered with It as well. May God watch over you and give you strength and peace during this difficult time.
Joseph Fucci
January 14, 2022
Hope this donation helps. Keep the faith.
Anonymous
January 13, 2022
Good luck.
Diana Wilson
January 13, 2022
I can't tell you how to touch I am by your struggle to provide a better life for your family considering the circumstances. I pray you to continue to be strong for her and your two sons. I wish I could do more and pray the message sent by Fox35 reaches the hearts of all that watch their show. I see you buying that special vehicle this weekend. Can't wait to hear that you have placed it on order.
God bless from Our family to yours Hector & B
Hector Hernandez
January 13, 2022
Keep strong, life still a blessing, be strong and corageous...God listening to your prayers....
Fabio Echeverry
January 13, 2022
Donating this amount in memory of my mother Beth Maxwell who passed away from ALS in 2013. Enjoy all the moments.
Lacy Brown
January 13, 2022
Please support this family to help them enjoy these last precious years together.
Gennie Liller
January 13, 2022
Donating in memory of Barbara Winne who passed away my ALS last April in Brevard County.
I ask anyone reading this to donate anything you can to help this family have joy dealing with this horrible disease.
Brian Donohue
January 13, 2022
God bless you and your family! Sending prayers that love and support will surround you each day. <3
Jennifer Kottkamp
January 13, 2022
Wishing your family all the best. Stay strong
Sheriza Baksh
January 13, 2022
God Bless your family
Anonymous
January 13, 2022
You are in our daily prayers. Our Uncle suffered with It as well. May God watch over you and give you strength and peace during this difficult time.
Joseph Fucci
January 13, 2022
God bless you , stay strong!
Jessica Roberts
January 13, 2022
Praying for your family during this difficult time. Don’t give up faith. <3
Anonymous
January 13, 2022
Love and prayers to all the family!
Theresa Post
January 13, 2022
My heart goes out to your family. May you truly feel God's peace and may He bless you all very richly. I hope that you will be able to get a van very, very soon,.
Anonymous
January 13, 2022
Hello my friend, I just seen your wife\'s Story shared on Fox news. My heart breaks for you and your family. I pray that the Lord will strengthen you and give you the boldness to carry on when that day comes . I would like to reach out personally if I may via email or possibly in person. I have been where you are and know personally the journey your family is going through. I lost my wife about 3years ago to a very bad cancer battle. She was 39, we have 2 kids and also shared 14 years..
Chris McComas
January 13, 2022
God Bless you all. I hope you get what you need for your family.
Karyn Lewis
January 12, 2022
my husband had a wheelchair van that was donated to him....it was a blessing......and my daughter had also received a kidney transplant in 2017......god bless you always
joan timms
January 12, 2022
GOD BLESS YOU VIVIANE, I PRAY THAT YOU WILL RAISE ALL THE MONEY YOU NEED AND WISH YOU A COMPLETE RECOVERY, DON'T GIVE UP HOPE, YOU ARE SURROUNDED BY IT. KAREN HOLZER
karen holzer
January 12, 2022
God bless your family. Be strong!!
Anonymous
January 12, 2022
Praying for you all! ❤️
Anonymous
January 12, 2022
I am disabled and have had family members with ALS. Saddens me we don’t have the healthcare system we need so stuff like this doesn’t happen, hope you get what you need.
Evan Cummings
January 12, 2022
Prayers
Suzanne Larson
January 12, 2022
God Bless you and your beautiful family.
Nancy Finnessy
January 12, 2022
Praying for you and your family.
Natasha Schofield
January 12, 2022
Wishing your family gets to enjoy many loving moments together and share lots of laughter for as long as possible.
Maritza Mercado-Boozer
January 11, 2022
may your moments be enjoyable and happy in your togetherness.
mary kelsey
January 11, 2022
God Bless
Victoria Jadwinski
January 11, 2022
My prayers go out to you and your family. Keep up the good fight. God bless!
MARYANN SANTIAGO
January 11, 2022
Hello I seen your story on WFTV.
My son is Peter Kramer was recently diagnosed with metastatic pancreatic cancer. He was told he has 6 months to a year.
I’m devastated but everyone has reached out to help him financially. So I could feel your pain and wanted to help.
I hope and pray you get enough money to buy that van.
Your family should have it.
Love Prayers and hope
Deborah Kramer
January 11, 2022
God bless you and your family. Please accept this donation in memory of my my who we last to ALS in 2005. We will be praying for all of you in this tough time.
JON Hays
January 11, 2022
Thoughts and prayers are with your family.
Tammy T
January 11, 2022
I have a wheelchair lift that I'd like to donate as well - please contact me for further details: jasmine.reierson@me.com
Jasmine Reierson
January 11, 2022
I pray to God your family will be bless with that van
Gladys Green
January 11, 2022
My wish is for you to get that van you so want. Your family is in my prayers. Wishing you happiness and joy. Stay strong.
Sharon Pesante
January 11, 2022
Anonymous
January 11, 2022
Can’t give much, but hope it helps you to meet your goal to get the van you need for your family. God Bless
Susan Klouser
January 11, 2022
God bless you and your family. Remember he will never leave you
Joanne Royal
January 11, 2022
Prayers to you and your beautiful family
Anonymous
January 11, 2022
Praying for this Family
Karlene Grimes
January 11, 2022
God Bless you ❤️
Bonni Sawyer
January 11, 2022
God Bless you.....
Janet & Ron Carter
January 11, 2022
GOD BLESSED THE Family.
Carlos Licea
January 11, 2022
We will keep your family in our prayers
Catherine & Reuel Ely
January 11, 2022
Viviane,
Eu sou brasileira. Simpatizo com sua condicao, pois mamae tb foi afetada com ELA. Desejo tudo de melhor para vc e sua linda familia. Deus lhe abencoe.
Regina
Regina Hayden
January 11, 2022
May GOD bless you family
LARRY LEININGER
January 11, 2022
God Bless you
Gerald Curran
January 11, 2022
God bless you and your beautiful family.
Anonymous
January 11, 2022
Praying for your family.
Eric Ernest
January 11, 2022
God Bless all of you.
Anonymous
January 11, 2022
My prayers are with you and your family.
Kimberly Saint-Preux
January 11, 2022
Thank you for sharing your story and may God bless your family.
Trace Carlson
January 11, 2022
We are Flordia strong! God Bless this family.
Anna Moscato
January 11, 2022
God blessed you and your family
Anonymous
January 11, 2022
My prayers are with you. Trust in Jesus
Michael Kochenash
January 11, 2022
God is still in the miracle, prayer answering business.
Lee & Cornita Riley
November 17, 2021
Thinking of you, Vivi. <3
Luciana Svilpa
Mail a Check
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Viviane B MacDonald
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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