Ben has Dent’s Disease, a rare genetic kidney disorder characterized by increased levels of calcium and protein in the urine, kidney calcifications (Nephrocalcinosis), recurrent episodes of kidney stones (Nephrolithiasis) and chronic kidney disease.
Ben has suffered throughout his life with continual infections and kidney stones.
Ben was 17 when we were first told that his condition was not improving and a kidney transplant may be necessary. His kidney function continued to decline despite all measures. At the age of 25, he was informed he couldn’t put off the procedure any longer and was referred to Methodist Hospital in Houston.
Ben continues to serve his community as he waits for a donor. Ben is a warrior who continues to have a strong desire to live life to the fullest.
Transplants are life-saving, but also extremely expensive. Even with insurance, Ben will face many out-of-pocket costs, including travel to and from the transplant center, co-pays, deductibles, and the costly anti-rejection medications he will have to take for the rest of his life. All of this presents a challenge he cannot meet without your help.
Ben has chosen to fundraise with Help Hope Live in part because it assures fiscal accountability of funds raised and is tax deductible to the full extent allowed by law for those that donate. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
We would covet your prayers.
Some specific prayers we are asking for currently are:
Pray for Ben as he goes through this process. (Physically, mentally and emotionally)
Pray that Ben is able to receive a donor kidney.
Pray for pain relief for Ben as he waits as well as his health as a whole.
Pray for the health of the potential kidney donor.
Pray that our family is able to give him the support he needs as he navigates this process.
