Family and friends of Tommy Shattuck are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation and care due to Chediak Higashi Syndrome. Our goal is to help ease the financial burden we may face, while helping our boy fight his battle with CHS.
Tommy, at only 8 months old, was diagnosed with a rare genetic disease called Chediak Higashi Syndrome and was put on a donor registry “Be the Match” and we are waiting for a match for him. Once we find a match we will have to go to the Boston Children’s Hospital and Dana Farber Cancer Institute (Jimmy Fund Clinic) to undergo chemotherapy to prepare him for this stem cell transplant.
Updates (2)
June 27, 2023
Goodmorning everyone!!
I have some good news!!
Kayden’s test results came in and he does not have Chediak Higashi Syndrome AND he is not a carrier!!! This makes Kayden the perfect donor match for Tommy!! Thank you all so much for your prayers and your donations and support!!❤️❤️❤️ Your prayers are working!!
June 20, 2023
Most recent update!
Kayden (Tommy’s 2 year old older brother) has been confirmed a 100% match to be his donor. We are awaiting further testing to confirm he is the official donor.
Photo Galleries (1)
Guestbook
November 13, 2023
Donation made in behalf of the wonderful Mikayla + Jay! Sending all my love to you and your family ❤️
Sydney Kerbyson
September 9, 2023
For Tommy ❤️
Karen Jager
August 13, 2023
Praying for Tommy and Kayden everyday. Love you all !
Karen Jager
