Rosemary is our 6 year old daughter. She is perfect in every way but limited due to her medical conditions. Rosie is diagnosed with severe hypoxic ischemic encephalopathy(HIE), spastic quadriplegic cerebral palsy, seizures, hypertonicity of multiple joints and is gtube dependent. She cannot hold herself upright, has difficulty controlling her limbs and even holding her head up is difficult at times. What she can do is laugh and smile! She is an expert at smiling!
Rosie LOVES road trips and we want to take her everywhere. Right now we have her in a standard car seat and we store her wheelchair in the trunk, this is heavy and awkward to do. As a stay at home mom I am responsible for Rosie’s daily needs. As she continues to grow I find it near impossible transport her on my own. I rely on medical transportation services (weekly to physical therapy and speech) and her Dad to take time off of work for all out of town doctors appointments (this is where the majority of his vacation time goes).
Updates (5)
April 28, 2024
We have heard some new parks are opening in our area that will be handicap accessible for children in wheelchairs!
January 28, 2024
Photo Galleries (2)
Guestbook
January 10, 2024
The Little Things Play Cafe sends you our support. We can’t wait to see the bounty of adventures and freedom the new van will bring you soon.
Britt Webb
December 24, 2023
Merry Christmas Rosie … Love, Gumper the Rabbit
Craig and Cherie Okonski
December 21, 2023
Rosemary Adams
GREAT LAKES CATASTROPHIC ILLNESS FUND
Sue Hafer
