Myles Oslo Ramirez

Holland, PA

Mid-Atlantic Catastrophic Illness Fund

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Help Hope Live

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In honor of Myles Oslo Ramirez

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2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087

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"SMiles for Myles"- Medical Van Fund

Myles is the kind of little boy who changes a room the moment he’s in it. His smile is contagious, his laugh is unforgettable, and his joy – despite everything he faces – is nothing short of inspiring.

But Myles’ journey hasn’t been easy.

He was born with a rare genetic condition called Acampomelic Campomelic Dysplasia, which has required extensive medical care since the very beginning of his life. In fact, Myles spent the first seven months of his life at Children’s Hospital of Philadelphia, fighting battles most of us can’t even imagine. And he’s still fighting… every single day.

Myles depends on specialized medical equipment, frequent doctor visits, and ongoing care to thrive. Something as simple as leaving the house requires careful planning, physical effort, and the right setup to keep him safe. Right now, transportation is one of our biggest challenges.

A standard vehicle just doesn’t meet Myles’ needs. Getting him in and out safely, along with all of his equipment, is difficult and sometimes impossible without risking his comfort and well-being. What should be a simple trip -to an appointment, to therapy, or even just outside for fresh air – becomes overwhelming.

That’s why we are raising funds for a fully accessible medical transportation van.

This van would be life-changing for Myles and our entire family. It would allow him to travel safely, comfortably, and with dignity. It would give us the ability to attend all of his necessary medical appointments without added stress and open the door to experiences every child deserves.. family outings, fresh air, and simply being part of the world around him.

Most importantly, it would give Myles more freedom.

The cost of a medical van ranges from $50,000 to $90,000… an amount that is simply out of reach for our family while managing ongoing medical expenses.

We are now proudly partnered with Help Hope Live, an incredible nonprofit organization that supports families like ours. All donations are tax-deductible and go directly toward Myles’ medical transportation needs.

If you feel called to support Myles, whether through a donation, sharing his story, or simply keeping him in your thoughts and prayers, it truly means the world to us.

Every bit of support brings Myles one step closer to a safer, fuller, and more independent life.

Thank you for being part of his journey.

August 5, 2026

821 days.That’s how long I’ve waited to hold Myles without a ventilator attached to him.I know to a lot of people this probably doesn’t seem like a big deal. Parents hold their kids every day without thinking twice about it. For us, there has always been tubing, cords, and a ventilator that had to come with every cuddle.Today, I picked him up and it was just… Myles.He’s not decannulated. We still have a long road ahead. But after 821 days, I got to hold my son without carrying a ventilator too.It’s such a weird feeling because I’m so used to reaching for the tubing and making sure nothing gets pulled. Today there was nothing to adjust.These are the moments that remind us how far he’s come. Two years ago we were fighting just to keep him alive. Now we’re celebrating something that most people never even have to think about.I’m so proud of you, Mr. Myles.

July 30, 2026

Watching Myles get stronger has been one of the greatest gifts. 💙Just a few months ago, we could only dream about where he is today. He’s getting more mobile every day, learning to pull himself up to stand, and has made huge progress with his breathing. He’s now on 24/7 CPAP and doing 4-hour HME sprints—something that felt so far away just three months ago.With all of this progress comes a new reality: we’re getting closer and closer to bringing him home full-time. That also means having safe, reliable transportation for him is no longer something we can put off.We don’t expect to raise the full $50,000 for a fully accessible van. Instead, we’re looking at trading one of our vehicles for a regular minivan that can be modified for Myles’s medical needs. Even raising $10,000–$20,000 would make an incredible difference and bring us so much closer to making that happen.I know these posts aren’t for everyone, and that’s okay. But to those who take the time to like, comment, share, or donate—you are helping more than you know. Every bit of support brings Myles one step closer to the freedom and safety he deserves.Thank you for believing in our little fighter. ❤️