February 18, 2018
It's February 2018. Feeding tube site is still leaking. My transplant surgeon said because 9f how it's connected to the stomach, the surgery will be more invasive. Not looking forward to it, but tired of bile leaking all over me. It can't be bandaged because the bandage gets soaked and eats at my skin. So it's another trip on March 11 to DC for everything. 3 days of scopes, labs and surgery. I will remain there until they release me. Needing help with lodging and fuel. We raised around 2000.00 at transplant in 2016, and so much appreciated. It helped with our trips up there, food lodging and necessary meds. We would be so grateful for any amount even if it's a couple dollars. As far as how I feel post transplant, has been pretty good, to me anyway but still have gastric problems, low iron and now on pre natal vitamins. The antirejection meds toll on your kidneys and I stay dehydrated, so 8 more pills to add to my menu for that. Also my thinking and memory is just hilarious. My legs have lost much muscle so I still have a hard time getting up and down. Other than these few setbacks, along with many more, I am thankful to God for keeping me strong, and keeping my faith, otherwise I probably wouldn't be here. Have a blessed day everyone.
January 5, 2018
Doing ok so far. Stay tired alot. Iron is very low. I pray so hard every time I get labs drawn. Then my meds change. Because of the dental problems that I have is do to the fact that my body didn't absorb all the elements and nutrition to keep my teeth healthy so I've got alot of dental work too ahead of me.
January 5, 2018
Having constant problems with high potassium. Next labs was dehydration which the meds I take cause that. Creatine, rbc very low, so its always something, bit I made it through, all with your donations, prayers and support. Still raiseng funds to help with travel back and forth to DC for yearly procedures and tests. Anything will help. Please message me if you have any questions.
July 15, 2017
Another trip to dc in august. Lots of changes in medicines. Doing ok. Some lump has come from nowhere and is popping out on right side of abdomen. Haven't seen Dr yet about it. We are still taking donations due to this is a life time commitment that i absolutely have to do. But God kept me here for a reason. Cant be around crowds, people who may be sick. Washing hands 200 times a day. Cant do this and that. Have no access to veins to draw blood. Every week its so painful to let nurses try to get labs on me. Anti rejection meds make me shake, so its hard to wear make up and do tedious things. People treat me different. Its a big long story, but i try to keep a positive attitude. There are those i havent seen in 30 years that has helped me raise some money for meds, bills and travel. But other than that nobody else has asked to help me. Thats life i guess. Not gonna fuss. Love to all of yoy that had helped. Helphopelive is a great organization. They will give otjers ideas and information on any fundraisers for me. They do not deduct money they have sent us for receipts we have to show on this page. They only show you jow much total we have received, not the deduction . Read how they eork because you never know if you might need them for someone you love. God bless all of you for any amount and any prayers.
June 19, 2017
Back to DC in August! Check grafts for rejection
June 19, 2017
labs are showing dehydration due to the anti rejection meds. If it doesn't get under control i'll be back on an IV, which is not good. so Im doing my best. life is pretty good, seeing I am still here by the Grace of God, and many prayers. Travel and meds are lifetime, so any donations will be continued in order for me to travel to DC to see my surgeon when needed. Thank you so much. and God bless.
April 15, 2017
Went to DC last month for a colonoscopy. yes all the way there. The transplant surgeons wanted to do the procedure to samples/biopsies from the graft where the new intestine was sewn in....looking for rejection. I did have a bit of rejection right after the initial surgery but they fed me meds to fix that. This week I have been very hydrated. drinking water with electrolytes, and injecting water into my g/tube for extra hydration. And to top it off the weather was so bad last week, I ended up with an awful bug. I can get sicker a lot easier and have to constantly clean my hands and keep wipes, etc with me. but I'm still here and will have meds to pay and travels to DC forever. Any amount would help us. I received disability before my transplant due to having short bowel syndrome. I had 12 inches of bowel left, and couldn't really do much. But this transplant gave me a second chance in life and God was right there with me the whole way. God bless all that have donated.
March 17, 2017
So far I haven't had too many problems. But the lifetime medications have awful side effects. Shaking. Hot and cold. Sleepless nights. Slot of foods are not to be eaten.
We still have to travel from Augusta to Georgetown, DC for scopes, tests, etc. It's very far away and very expensive. I somehow got a rotavirus (stomach, GI BUG) this past week. It scared me. I was so sick and couldn't even walk. Unfortunately that is also symptoms of rejection. But then my husband got it. It's a life where each day you never know how your gonna feel. Some days I just want to lay around all day, and some I am so energetic. But I am thankful my life now isn't lived in the bathroom. I still have those moments. The medicines are lifetime and can be expensive. I constantly sanitize and clean, it's overwhelming but that can't give me a for sure of anything happening. I wear a mask when I'm around a lot of people and I can't breathe in that mask. Don't know how doctors do it. I'm still fundraising to help with medical bills, post op travel, hospital visits, and special foods. I want to thank everyone who has donated and prayed for me. Please keep it going. God bless you all.
March 5, 2017
Hey guys. looking for anyone who would be interested on a fundraiser whether small or big for me, to help with medicines, traveling, and medical bills not covered by insurance. Doing ok so far. going back to DC this month to get another scope to make sure all if ok with the new bowel.
February 19, 2017
I got my call on August 18, 2016. Was that scary or what. And the donor was an exact match. After the surgery, I couldn't believe I was still her and my surgeons said everything went great, however here starts the IV"S and other meds until right before Christmas. I cried and cried, I missed my family and friends so much and I knew I was trading in one illness for another, but at least I could keep on some calories and stay in much better health. The medications I have will be for the rest of my life and very expensive. The Medical bills have started coming in. I have to wear a mask whenever I'm around alot of people and just have to be real careful so I don't go into rejection. My husband would come to Georgetown, DC as many times as he could, but working 2 jobs has kept him very busy and tired. I really thought I wasn't going to make it home. I had a couple of setbacks with an infection, and the heart problems I already had. I want to thank everybody for their donations. They have helped tremendously. However we have got to keep the funds coming in. Help Hope Live are great people, and secure. You can also message me on messenger at Facebook. Its February 2017, and I'm doing good, but still are being fed extra feeding through a j-tube. They are giving me a break from it right now, to see if I can keep the weight on. So needed prayers, I can soon have the tube removed. Headed to Georgetown again in March for a pre--op. Yes I have to drive there a few times a year, Our apartment we rented was the cheapest one we could find, a one bedroom, and very expensive. I got to stay there a few weeks, thats it. My sisters, husband, and mother-in-law would stay there because I always had to have a caretaker to be with me. Well, Now I can do a better job keeping all of you updated now that I've come around to the old me. Love you all. And please, any amount will help. Thanks for all the prayers!
September 16, 2016
It's September 16. Still recovering. Hopefully will feel better soon. Having bladder problems. Meds. Are turning me into s monster sometimes but that will decrease. We are so thankful for the support, prayers and donations.
September 16, 2016
It's the 26th of September. I'm at our temporary apartment, recovering from my transplant. It's a blessing to know there are so many out there who have donated to help me and my family. It will be lots of traveling from Georgetown to Augusta for a long long time. Having problems with my labs showing some is wrong in my kidneys and bladder. Going through much therapy too. It's overwhelming. The meds are making me try to find my real self. They're rough but that will lessen overtime. Again, I need the prayer's everyday. God bless you all.
August 11, 2016
July 27. Another trip to Georgetown , DC for a 3 month pre transplant follow up. antibodies II are still high, which should be alot lower. will need to find exact plasma donor with same antibodies. Liver is still in stage 2 chirrosis, which is caused by the IV parential nutrion for my nutrients. HelpHOPELive works with transplant patients to help fundraiser for their uninsured medical expenses related to the transplant. Please find it in your hearts today to give any amount $4 even is better than nothing. I appreciate all of the support !!!!
July 24, 2016
Alot of my Westside High School alumni have donated and was greatly appreciated. If there are more of you out there who would like to make a contribution in my honor it would be a blessing. My health is always going downhill, so I really pray that my call will come soon. Also, if anyone knows of restaurants or small fundraisers available or would be interested in helping, that too would be greatly appreciated. Maybe your church, or an organization you may be a part of?
July 21, 2016
Monday, July 11th I had to get another yearly liver biopsy. I am still waiting for the results. Hopefully my transplant will remain with just needing the small intestinal transplant and not a liver also. I will be traveling again for a pre-op appointment to DC at the end of July for some other yearly tests to determine nothing has worsened while waiting for my transplant call. We have still not reached our goal. This will be a lifelong financial hardship on us before, and after the transplant. Please share my site, and consider making a tax-deductible contribution to HelpHOPELive in my honor. Any amount will help. My donation progress isn't looking too good, so I'm asking desperately to help me get another chance at life.
June 23, 2016
as of June 22, I have had to receive another central IV line, endured many dental procedures, and prayed I get all of this taken care of before my donor call. Please share my post and reach out to others. we will be blessed with any amount and so very thankful.
May 8, 2015
I have made a decision that after 9 years of losing all of my small bowel to get a transplant. My bowel got strangulated in 2006, and after numerous hospitalizations, and infections, and illness from malnutrion, I am ready to get my life back. I want to leave the house, I want to watch my grandaughter play baseball, I want to visit my family, but until I get a transplant, I will never be able to have this life back. My family hasn't given up on me, and we need your support to help me get through the cost of traveling to get my transplant, and have a caretaker with me. I have to leave my home in Georgia, but to me it's worth it for I know I have God on my side. He has kept me here this long and through many trials, He will do it again. Bless all of you, and bless all of my surgeons who have seen me through these last few years and supported me and their medical staff. My body is getting weaker, and I need a NEW life. Thank you
