Bariyah Gilmer

My name is Bariyah Gilmer. Most know me as Bree. I was born with Larsen’s Syndrome. Before the exasperation of my disability, I was leading an independent life. At birth my parents told me I received multiple surgeries on my clubbed feet and dislocated knees. Once I was able to walk, I was unstoppable. I was able to live my life along side my younger sister who does not have a disability. Whatever she did I was able to do as well. But when I began puberty, something began to change. I started having weakness in my hands. Then, leg weakness. Soon after I was unable to stand by myself. I was taken to the ER and was told I needed surgery right away or I would be paralyzed from the neck down. The bones in my spine were crushing my spinal cord. It was scary but I just wanted to get this over and return to my normal life. I had a cervical, (neck), fusion. I am unable to turn my head side to side. My recovery was long. I was glad to start therapies. I finished High School at home. I was able to attend FIU on campus by using a scooter to get around. I would like to regain my independence by purchasing a handicapped accessible vehicle. I will be able to get myself to doctors’ appointments and social activities.

A surgery was done to remove and replace the bones. However, the damage to my nerves was irreversible. I have learned to live with my new normal for years now and I  have tried not to let my physical limitations keep me from accomplishing my dreams. 

I believe one of the first things people notice about me is my smile. You will almost always catch me smiling or being silly. I really love reading and learning new things and skills. I enjoy learning about biology. I love everything Hello Kitty. My favorite cars are Cadillacs. I also believe that I am an amazing friend and a great listener.

With nerve damage, everyday things and activities can take much longer to do or complete. Having a motorized scooter does help out around the house because I am not tired from using a walker to get around to complete tasks. Even though having and using a motorized scooter is very convenient and helpful around the housing and for getting around places (stores, doctors offices,and businesses etc.) it can be difficult getting to places because I have a motorized scooter. 

I am fundraising for an handicap accessible van. Being able to purchase a handicap accessible van will allow me to regain my independence. 

Please donate to Help Hope Live in Bariyah’s honor today, and ask your friends and family

to give, too! Thank you for your generous support!

Help Bariyah regain her independence with an accessible van!