Ben Reindl

We are raising money to help pay for the home modifications that Ben will need in the future. Ben was diagnosed with GM1 December 22,2023. GM1 is a incurable disease that slowly destroys nerve cells in his brain and spinal cord. Its always fatal and thee is no treatment. Essentially he will go from losing his speech and walking to have seizures and not being able to use the bathroom on his own. He was born healthy but around the age of 5 we started seeing signs that something was not right . He was extremely clumsy and had started having speech issues. Things have slowly declined, he lost alot of his fine and gross motor skills. Family and friends of Ben Reindl are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with a Catastrophic Illness. Ben has chosen to fundraise with Help Hope Live in part because donations are tax deductible for contributors and will only be used to cover medical and related expenses. Unfortunately time is not on our side as every day he is slowly losing more thank you for reading