Jackson & Robert Matzke

Jackson is a caring and silly 12-year-old boy. During the spring semester of his fifth-grade year, he started experiencing significant struggles in his school work, and cognitive function continued to decline during his summer break that year. On September 19th, 2025, an MRI test found extensive brain damage, and led to suspicion of X-ALD, also known as cerebral adrenoleukodystrophy. On November 17th, Jackson received confirmation of X-ALD via genetic testing. Although treatment may be possible for Jackson, there are irreversible and ever-developing effects that will continue to need support in his lifetime. 

Before the diagnosis, Jackson enjoyed playing drums, complex board games, and cooking. While Jackson cannot currently participate in the same activities he once did, he continues to enjoy rocking out to Alice Cooper and Weird Al Yankovic, eating sushi, and cuddling with family and furry friends. He still loves exploring fantastical adventures in his favorite graphic novels and video games. Jackson maintains ‘Best Big Brother Ever’ status with his younger brother, Robert, who both love watching movies together. 

Jackson currently struggles with developmentally appropriate executive functioning, memory, speech, and physical coordination. He struggles with fine motor skills, such as buttons, zippers, using spoons, and writing, which can be difficult for school and daily life. Recently, he has moved to an adaptive special education classroom to support cognitive function, including difficulties processing new concepts and retaining information. 

Robert was diagnosed with adrenal insufficiency in January and will require regular monitoring for X-ALD due to genetic risks. His diagnosis was confirmed after exposure to Strep A in December which landed him in the hospital for several days. With proper medication and regular MRIs, medical professionals in both Minnesota and Missouri can ensure that he receives optimal care. Thanks to qualified specialists, family can ensure he leads as normal a life as any other six year old. He will require MRIs every 6 months along with visits and specialist care out of state annually. They will be able to catch symptoms early with thorough care to prevent him from becoming symptomatic of adrenoleukodystrophy and care for his adrenal insufficiency needs.

All donations would apply to medical expenses and travel costs involved in their care. Please donate to Help Hope Live in their honor today, and ask your friends and family to give, too! Thank you for your generous support!