Lucas Ellis

Lessons with Lucas

Meet Lucas Ellis, a remarkable five-year-old boy from Memphis, TN, whose indomitable spirit has inspired all who know him. Lucas’s journey began on July 6, 2019 when he was born with a rare spinal cord injury that severely impacts his physical mobility. He spent his first 30 days in the NICU recovering from respiratory distress induced by his condition, and was later mis-diagnosed with Spastic Quadriplegia Cerebral Palsy. For nearly three years, Lucas received treatments based on this diagnosis, all while his devoted parents sought answers through various avenues of medical investigation.

In June of 2022, Lucas and his parents embarked on a life-changing journey to Cincinnati Children’s Hospital for a second opinion and a new MRI. This critical examination revealed scarring at the C2 level of his vertebrae, definitively identifying the cause of Lucas’s health issues: a rare spinal cord injury. With this newfound knowledge, Lucas’s family began their search for a specialized treatment center, leading them to the University of Louisville’s Kosair Charities Center for Pediatric NeuroRecovery at the Frazier Rehab Institute (Frazier) in Louisville, KY.

Frazier specializes in pediatric spinal cord injuries, making it the perfect fit for Lucas’s ongoing care. The institute welcomed Lucas and invited him to participate in a 60-day physical therapy research study. From November 2022 to April 2023, Lucas dedicated himself to this study. Through locomotor training on a treadmill, as well as targeted occupational therapy for his upper extremities, Lucas made significant strides in his abilities. At the conclusion of the study, Lucas continued the intensive physical and occupational therapy regime in Frazier’s clinical therapy program.

These therapies have not only improved Lucas’s core strength, trunk control, grip strength, and arm movement, but they have also helped create new neurological pathways, connecting his brain to his body. In less than a year, Lucas has defied expectations and demonstrated remarkable progress. However, the limited coverage of his family’s health plan leaves them with substantial out-of-pocket expenses.

Studies show that early intervention during a child’s first 5-6 years is crucial for maximizing the benefits of these therapies. Lucas’s parents and physicians have witnessed firsthand the tremendous improvements Lucas has made through the Frazier program. To ensure Lucas will continue to receive the intensive PT and OT programs he needs in Louisville and beyond, the family seeks your love and generous support.

Despite his injury, Lucas’s personality shines brightly. His unyielding positive attitude, thirst for knowledge, and infectious sense of humor make him a joy to be around. Lucas displays love and protectiveness toward his younger sister, Fowler, and eagerly awaits the day when he can join her at school and run alongside her. Above all, Lucas proudly declares himself a “Worthy Child of God,” embodying faith, resilience, and hope.

By supporting Lucas’s cause, you are helping him take steps toward an independent life. Every donation contributes to his ongoing medical expenses, ensuring he receives the necessary care and therapy to reach his full potential. The family has chosen to work with Help Hope Live, a nonprofit organization that provides fiscal accountability for funds raised and offers tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. Your generosity will make a tangible difference in Lucas’s life, allowing him to overcome obstacles and achieve his dreams.

To make a tax-deductible donation to this fundraising campaign, click on the Give button.

For more information, please contact Help Hope Live at 800.642.8399.

Thank you for your support!