Moseley Collins

Moseley is an incredibly unique little 5 year old. She loves motown music and anything sparkly and we like to call her Moe. Moe has a special way about her even though she can’t speak she has so much to say. Our family is absolutely in love with everything about her. Moe lives at home with her daddy and I and her little sister, Tempest (2) and her brother, Asher (9 months). We are a full home, but a happy one. We are struggling to pay for the things that can give Moe a better quality of life.

Moe was diagnosed with FoxG1 almost two years ago. FoxG1 is a very rare condition that only about 350 people in the world have. It is a condition that causes impaired development. Moe can’t talk, walk, or sit up. She has some breathing issues and seizure like activity, such as abnormal or involuntary movements. Moseley also can’t eat by mouth. She has a G-Tube that puts nutrition and water straight into her body through a port in her abdomen. Moe doesn’t sleep most nights and, since she is in constant motion, she is often sore and in pain. The most frustrating thing is that she can’t tell us what is wrong and we often don’t know how to help her. Our sweet girl has all of those hardships but she is so much more than her diagnosis. She is loving and bright with a bit of an attitude. The money we raise will be used to improve her quality of life.

The most immediate things we need are our carpets replaced and a new place for Moe to sleep. You can imagine, with three kids and a cat, the carpet in our house is pretty gross. The bacteria and allergens in the carpet worsen Moe’s already weak immune system. The carpet also makes it more difficult for us to move the equipment she needs like her wheelchair. The carpets have caused Moe’s breathing issues to increase and, in some places, her mobility equipment have pulled it up. Hard floors are easier to keep clean and cut down on bacteria. She also needs a sleeping chair. She can’t sleep in a bed anymore because laying flat causes her to have a hard time breathing. We can’t use bed with lifts because she can’t hold herself up. A safe place for her to sleep would not only help her, but give her Daddy and I some peace of mind.

We not only want to raise money to benefit Moseley, but also raise awareness for FoxG1 Syndrome. It is important to us to give a voice to the people who live with FoxG1 and their families. Moseley has a long and hard road ahead of her and we want to do all we can to make it easier. Thank you so much for taking the time to read this and give to our sweet girl.