Sestino Ciummo, III

Looking to continue providing a special boy with an accessible vehicle so he may live life to the fullest!

On September 30, 2008, our son was born with his disability, Quadriplegic Spastic Cerebral Palsy. This was caused by his underlying genetic disorder, IP36 Deletion Syndrome. This affects all four of his limbs, as well as speech, and he is 100% dependent upon us. He is now 13 years old, 85 pounds and 4’2″ tall. We have always been avid outdoor lovers, and have shown him many wonderful places in the mountains, and elsewhere, but it is now getting extremely difficult to continue to do so without a wheelchair accessible van. We physically lift him from his wheelchair to a large car seat then lift his chair into the back of our van.

Despite all of his issues in his life, and the many surgeries he has had over the years, he remains one of the most positive people in our lives. He spends most of his days laughing and singing, and just enjoying the life he was given.

Donations will be used towards the purchase of a converted wheelchair accessible minivan.

By making a donation, you will be helping a special child continue to get to enjoy the life as he is used to, by spending his spare time in the great outdoors with his family and his dog.

Family and friends of Sestino Ciummo, III are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.

Sestino has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.

For more information, please contact Help Hope Live at 800.642.8399.

Thank you for your support!