Scarlett Long

Family and friends of Scarlett Long are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with a catastrophic illness. Scarlett has chosen to fundraise with Help Hope Live in part because donations are tax deductible for contributors and will only be used to cover medical and related expenses.

Scarlett Story

Scarlett is fighting for her life.

Our brave daughter, Scarlett, faces serious medical challenges that impact every aspect of her daily life. She lives with:

Rare chromosomal deletion syndrome

Severe seizures

Cerebral palsy

Serious airway complications

Because of these conditions, Scarlett requires constant care, specialized therapies, and medical equipment to ensure her safety and health. Even short trips or routine activities can be dangerous without proper support.

We’re raising funds to help Scarlett get the critical medical care she desperately needs, including:

Specialized therapies (physical, occupational, speech, and vision)

Medical equipment tailored to her needs

Home modifications to keep her safe

Transportation solutions for safe medical appointments

This is not a luxury — it’s a lifeline. Every donation, no matter how small, brings Scarlett closer to the care she urgently needs.

Even if you can’t donate, sharing Scarlett’s story makes a huge difference. Spreading the word connects us to the people who can help.

From the bottom of our hearts, thank you for standing with Scarlett in her fight. Your support brings hope, safety, and a chance at life to a little girl who deserves every opportunity to thrive.