Resources

Provides advocacy and resources for the Duchenne muscular dystrophy (DMD) and larger rare disease communities. Offers personalized navigational assistance regarding treatment access and insurance issues.

Provides support services, recreational programs, financial assistance, and scholarships for children impacted by pediatric cancer, catastrophic illnesses, natural disasters, or other life-altering conditions.

Supports families impacted by pediatric cancer. Offers grants for treatment-related needs (e.g., co-pays, general living costs, medical travel) or funeral support in the event of a child’s tragic passing. Some grants are exclusively for families residing or receiving treatment in Florida. Actively funds scientific research and participates in policy and advocacy initiatives.

Facilitates a private Facebook support group for liver transplant patients and caregivers.

Serves as an international source of information regarding childhood liver disease and associated medical research.

Provides support, educational resources, and personalized navigational tools for cancer patients, caregivers, and survivors. Offers oncology-related discounted or no-cost fertility preservation options and resources. Facilitates fitness programs at nationwide YMCAs for the cancer community. Involved in advocacy and public policy initiatives.

Provides educational information, multimedia tools, wellness resources, and advocacy opportunities for the breast cancer community. Facilitates a trained volunteer helpline and online support groups. Offers one-time general living expense grants for eligible applicants with early-stage or metastatic breast cancer.

Offers educational information, peer mentoring, and an online discussion forum for prospective and current organ or bone marrow living donors.

Offers educational resources and information for kidney transplant candidates and prospective living donors.

Advocates for Lyme and tick-borne disease awareness and scientific research. Offers educational information, resources, and financial aid to help offset pediatric medication and treatment costs. Designed app-based wellness tools to log, track, and guide the removal of ticks, as well as to document and share long-haul disease symptoms.

Supports the Central Texas paralysis community, offering recreational opportunities, adapted sports, support group listings, and resources. Awards physical and occupational therapy scholarships at partnership locations. Supports paralysis research projects.

Provides financial assistance to families of children with neuromuscular or degenerative diseases. Funding can help with needs such as assistive technologies, adaptive equipment, mobility aids, medical travel, and therapies. Michigan residents can apply for an annual wheelchair-accessible van giveaway.

Offers a volunteer sign-up calendar for patient and caregiver support (e.g., meal deliveries, rides to appointments). Features include sections for photos, updates, and supporter notes.

Works to improve the quality of life for brain injury survivors and caregivers. Facilitates on-demand and virtual educational resources, yoga and meditation programs, and a variety of community-specific online discussion groups. Facilitates in-person community retreats and online caregiver retreats.

Provides educational information and resources for the lung transplant community. Connects pre- and post-transplant patients and caregivers with trained volunteers for peer mentoring.

Provides educational information and resources for individuals living with lupus and their caregivers. Offers in-person and virtual support groups, an online community, access to health education specialists, and wellness programs. Local chapters facilitate events, programs, and support opportunities. Involved in advocacy and scientific research initiatives.

Offers educational information, guidance, and resources for the LVAD community. Facilitates a peer mentoring program to connect patients and caregivers with experienced members for support and guidance.

Offers financial assistance for individuals to fund testing and treatment costs for Lyme disease and associated tick-borne illnesses. Supports scientific research surrounding tick-borne diseases.

Provides financial grants for children and young adults (to age 25) with Lyme disease to offset treatment-related expenses including lab testing, physician costs, prescriptions, and medical travel. Offers support and multi-media resources for the Lyme disease community.

Grants charitable wishes for critically ill children (ages 2½-18) based on their imagination and dreams. Qualifying children must be formally diagnosed with a life-threatening progressive, degenerative, or malignant medical condition.

Facilitates an online discussion forum for patients living with bone marrow failure diseases such as aplastic anemia (AA), myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), pure red cell aplasia (PRCA), and sideroblastic anemia.

Grants wishes for children, ages 3-17, who have been diagnosed with a pediatric life-threatening or terminal illness. Sample wishes include vacations, celebrity meet and greets, special events, room makeovers, medical needs, and technology items. Eligibility requires residency or treatment in a Foundation-registered state.

Promotes Mission of Mercy multi-day charitable clinics offering free dental care to Maryland residents. Supports the Give Kids a Smile initiative providing underserved children with oral health education, screening, and treatment services.

Offers integrative support and quality-of-life resources for families facing pediatric cancer and rare diseases. Facilitates in-person (California and Georgia) and virtual (nationwide) programming in the areas of culinary medicine, whole-body wellness, mental and emotional health, peer support, caregiver retreats, and bereavement. A mobile app offers access to live events, an online community, e-learning opportunities, and wellness tools.

Provides mortgage or rental assistance grants for eligible families of critically ill or injured children receiving treatment at an affiliated nationwide network hospital.

Serves as a meal donation sign-up tool. For a fee, users can schedule additional volunteer roles (e.g., childcare, pet care, transportation, housework, errands).

Manages a search engine of patient assistance programs through the pharmaceutical industry. Promotes patient resources including medication savings cards, free or reduced-cost health clinics, and insurance information.

Organizes large-scale clinics providing free medical, dental, and vision services to underserved and uninsured populations in Northeast Ohio. In between clinics, individuals can receive navigational health insurance information and no- or reduced-cost medical resources.

Provides advocacy, education, and support opportunities for adult heart patients and their families. Offers in-person and virtual support groups, online communities, and a hospital/in-home visitation program. Local chapters facilitate various opportunities and programs.

Under the umbrella organization, Mended Hearts, Mended Little Hearts provides advocacy, education, and support for pediatric heart patients and their families. Offers in-person and virtual support groups, online communities, and a hospital/in-home visitation program. Local chapters facilitate various opportunities including a Bravery Bag distribution program for hospitalized children and families.

Provides patients with medical travel assistance (e.g., volunteer pilot flights, gas cards, bus or train fare, commercial airline tickets). An affiliated program, Angel Wings for Veterans, facilitates transport for wounded, ill, or injured veterans and service members. This program also provides travel for service dog acquisition, medical care, and therapeutic programs.

Grants eligible families of children in cancer treatment with financial assistance for non-medical costs (e.g., rent, mortgage, utilities, medical transportation, childcare). Social workers from select partner hospitals in Delaware, North Carolina, or Pennsylvania submit applications. Offers college scholarships to students who reside or have received treatment in select New Jersey or Pennsylvania counties.

Supports Mission of Mercy charitable two-day clinic events providing free dental services for Michigan children and adults. Provides resources for low- and no-cost state dental programs on the main Michigan Dental Association home page.

Provides free dental care, education, and referrals at an annual two-day clinic to those who are uninsured or lack access to care. Services are available on a first-come, first-served basis.

Offers resources and peer mentoring for brain injury survivors and their loved ones. Hosts patient conferences to educate, empower, and connect the brain injury community. Provides funding up to $1,000 for injury-related expenses for Delaware, New Jersey, and Pennsylvania survivors who establish a Help Hope Live fundraising campaign (e.g., medical costs, rehabilitative needs, therapies, mental health services, durable medical equipment, assistive technologies, adaptive equipment).

Provides listings of area reduced-cost dental clinics and oral health educational resources. Supports charitable programs including Give Kids a Smile, a free pediatric dental care initiative, and Mission of Mercy, an annual two-day free dental clinic.

Provides no-cost healthcare, dental care, and prescriptions to uninsured and underinsured individuals at clinic locations in Arizona, Maryland, Pennsylvania, and Texas. In addition to primary care services, specialty care offerings may also be available in select clinics.

Provides free dental, vision, and hearing care services at a two-day annual clinic for underserved adults and children in western Pennsylvania. Services are provided on a first-come, first-served basis.

Supports Mississippi Mission of Mercy (MS MOM), a large two-day clinic providing free oral health services to adults on a first-come, first-served basis. Lists options for Mississippi reduced and low-cost dental resources.

Lists free or reduced-cost dental care options throughout the state. Supports the Missouri Mission of Mercy (MOMOM), a two-day dental clinic providing free services to youth and adult attendees. Offers oral health educational materials and resources.

Facilitates nationwide retail sales, rentals, financing, and maintenance for accessible vans and modified vehicles. Retails mobility products, specialized equipment, and home modification solutions. Provides targeted resources and paperwork help for military clients. Offers a Help Hope Live partner discount of free 3-year roadside assistance.

Hosts an annual two-day dental clinic providing oral health services to adult and pediatric Pennsylvanians free of charge. Treatment by volunteer dentists and support personnel is provided on a first-come, first-served basis.

Provides emotional support and assistance for New Jersey caregiving mothers of special needs children and adults. Connects moms through peer mentoring via phone, chat, or email. Facilitates monthly virtual support groups.

Facilitates in-hospital, virtual, and local caregiver support for families impacted by childhood cancer. Offers online communities, self-care retreats, support groups at select partner hospitals, recreational events, and resources.

Provides educational information, multimedia resources, and in-person and virtual summits for multiple myeloma patients and caregivers. Offers navigational services and peer mentoring for guidance and encouragement. Funds cancer research initiatives to help develop pharmaceutical and treatment advances and search for a cure.

Offers support for the multiple sclerosis (MS) community through educational information, access to Helpline specialists, wellness resources and tools, and an online peer forum. Distributes cooling aids, safety, and accessibility equipment to qualifying individuals.

Provides educational information, recreational events, wellness opportunities, and support groups for multiple sclerosis (MS) patients and caregivers. Financial assistance helps offset emergency needs (e.g., rent, utilities), specialist and dental costs, wellness programs, assistive technologies, home care, therapies, respite care, and medical travel. Gifts cooling items, computers, quality-of-life supplies, and special wishes for eligible applicants.

Provides health education information and resources for the international multiple sclerosis (MS) community. Supports advocacy efforts and scientific research.

Provides educational resources, multi-media learning opportunities, virtual community groups, and camps for families impacted by muscular dystrophies and other neuromuscular diseases. Manages a consortium of facilities offering multidisciplinary care. Offers targeted young adult resources. Supports scientific research, advocacy, and policy initiatives.

Supports Indiana families impacted by muscular dystrophy and other neuromuscular diseases. Offers financial aid for adaptive, accessible, and safety equipment and needs (e.g., wheelchairs, ramps, home modifications, bathroom equipment, van lifts, beds). Provides an annual accessible van giveaway, partial van assistance, and academic scholarships.

Grants specialized equipment or services for families with pediatric cognitive, developmental, or physical special needs, as well as chronic childhood illnesses. Examples include assistive devices, medical equipment, therapies, sensory items, or physical activity classes.

Provides support, information, resources, and advocacy for all impacted by mental health conditions. Offers individual and family support groups, educational courses, online discussion groups, and HelpLine specialists via phone, text, or chat. Delivers targeted support for military members, veterans, and their families.

Provides educational information, multimedia learning opportunities, and resources for bone marrow transplant, stem cell transplant, CAR T-cell therapy, and graft-versus-host disease communities. Offers a peer support program for patients, survivors, caregivers, and donors.

Shares kidney disease awareness, prevention, treatment, and transplant information. Offers patient and caregiver navigational support, wellness resources, online communities, and peer mentoring. Engages in advocacy efforts and supports scientific research initiatives.

Grants financial assistance to eligible living organ donors to offset related costs (e.g., lost wages, medical travel, medical lodging, meals, dependent care). Approved expenses cannot be reimbursed by the transplant recipient, insurance, or state programs.

Serves as a nonprofit trade organization of adaptive mobility and wheelchair-accessible vehicle industry experts. Offers consumer resources and educational information.

Provides health information, navigational guidance, resources, educational programs, and wellness tools for the multiple sclerosis (MS) community. Offers dedicated financial, insurance, and employment-related resources. Facilitates peer mentoring and support groups. Supports clinical research initiatives and advocacy endeavors.

Provides support helpline navigational assistance, educational information, resources, and dedicated events for the rare disease community. Grants financial assistance with prescriptions, diagnostic testing, insurance premiums, co-payments, medical travel, and caregiver respite. Champions rare disease advocacy, public policy, and clinical research initiatives.

Serves as the online library of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). Offers resources, articles, reports, guides, research project information, and publications for the disability community.

Provides multi-media educational information, treatment center listings, and resources for scleroderma patients and caregivers. Offers an online discussion board, support groups, and local chapters to facilitate community connections. Promotes disease awareness, fosters advocacy efforts, and supports scientific research.