Abi Dietz was on her way to school in September 2012 when an auto accident left her with a severe traumatic brain injury. After the accident, Abi was unable to move or communicate. After extensive inpatient rehabilitation, in June 2013, Abi was able to move into her mother’s home. Her family began fundraising with HelpHOPELive for uninsured expenses to help improve Abi’s quality of life and maximize her mobility and independence. Abi’s mother, Georgina, gives us an idea of how life changes after a traumatic injury.
Describe a day in Abi’s life.
Abi is 100% dependent on the assistance of others for all activities of daily living. Each morning when Abi wakes up, I or another caregiver do passive range-of-motion exercises with her. We do her personal care and get her into her wheelchair using a hoyer lift. We then read to her, watch YouTube music videos or do other movement exercises, such as throwing a beach ball and asking her to bat or kick it back to us. This responsive movement is actually new, and even though it seems slight, we are glad that she is responding more than she previously had been.
We have Abi stand in the standing frame three times per week. We take her to scheduled doctor’s appointments, the mall, a local art museum and to the park when the weather is nice. We have a music therapist come in weekly and spend an hour working with her. She listens to familiar songs she used to like, and the therapist tries to get her to play a digital guitar on an iPad or move her hand and arm to play a simple instrument.
Have you noticed any improvements since the injury?
Abi is now able to move her left side at times, but her communication is inconsistent. At times, she is more alert and moves more to look around at her environment. She also shows more movement when giving someone a fist bump, trying to hold something and letting it go again, or reacting to someone throwing a ball towards her.
What are some of the biggest challenges of life with a traumatic brain injury?
The accident has changed our family dynamics in many ways and it has been difficult. Finances are a struggle as well as feelings of isolation. The struggle between accepting what is and still having hope is also a challenge.
What are you fundraising with HelpHOPELive for?
We have been able to purchase an accessible van thanks to fundraising and financial help from a family member, but we still have outstanding expenses. Abi was a musician and music therapy has reached her in places that other therapies haven’t. This type of therapy is not covered by insurance and we use the money raised through HelpHOPELive to pay for it. We also fundraise for in-home massage therapy and physical therapy. Abi has painful spasticity issues and these therapies help stretch and relax her so that she is more comfortable.
What does hope mean to you?
Hope means believing that things can change. It takes a lot of patience to wait for change to happen and as I said before, it is hard to find the balance between hope and acceptance.
What can the average person do to recognize Brain Injury Awareness Month in Abi’s honor?
You can donate to HelpHOPELive in honor of Abi to help her secure life-enhancing therapeutic treatment that could help her regain mobility and communication skills. You can also send a card to her or to anyone who has a traumatic brain injury. We receive beautiful cards with nature photography from one couple at least once per month. It is so nice to know we are not forgotten.
Written by Emily Progin