Emily Progin, Content Manager
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Release: Immediate
JUNE 9 BIKE NIGHT WILL HELP RAISE FUNDS FOR 4-YEAR-OLD’S “ROBOT LEGS”
Have Fun & Give Back at Harley-Davidson of Dothan
DOTHAN, Ala.—On Friday, June 9 from 6 p.m. to 9 p.m., enjoy live music, food, vendors, a 50/50 drawing, and fun for a cause during the monthly free Bike Night at Harley-Davidson of Dothan. Funds raised during this Bike Night will benefit the nonprofit Help Hope Live in honor of Zackariah Robinson, a four-year-old living with disabilities. The four-year-old’s family is fundraising for life-changing equipment: “robotic legs” that will improve Zack’s health and give his body a chance to learn to walk independently.
Bike Night Fundraiser Details
When: Friday, June 9 from 6-9 p.m.
Where: Harley-Davidson of Dothan (2418 Ross Clark Circle, Dothan, AL 36301)
What: Bike Night with live music from Ben Flournoy, a tire toss contest, vendors, food, and fun. All bikes are welcome!
Cost: Free to attend!
Cause: Funds raised during Bike Night through donation jars and a 50/50 drawing will benefit the nonprofit Help Hope Live in honor of Zackariah Robinson. Zack’s family is fundraising for a Trexo robotic legs device to improve his health and mobility (not covered by insurance).
50/50 drawing: Enter by stopping by Harley-Davidson of Dothan between now and June 9, or enter onsite during Bike Night.
Zack’s Story
Zack and his twin brother, Dale, were born premature at just 26 weeks. Both live with cerebral palsy and associated challenges with mobility and development. Zack can’t stand or sit for more than a minute or two unassisted—but there is hope for a more mobile future through a unique piece of mobility technology called a Trexo.
While brain damage at birth has made Zack unable to form a connection between his brain and his legs to move independently, “with years of repetition, he can reconnect those pathways,” explained Patricia. “The Trexo would allow for this to happen. He would be able to walk with me, his brother, and his father, and see the world in a different way.”
“I know that Zack wants this—I see the happiness that pours from him when he is upright,” explained Patricia. “The desire is there: the muscle strength and the know-how are not. The Trexo would give him that.”
Progress so far has been significant, Patricia said: “I really cannot describe the changes this has already made in Zack’s abilities. His head control, core strength, ability to initiate steps, his crawling has improved, sitting has improved—it is AMAZING to watch the benefits this piece of equipment gives him. I can only imagine what it would do to be able to use one every single day, at home with the support of his family and friends to cheer him on.”
Trexo devices have the greatest possible chance of influencing mobility when they are used consistently. Patricia wants to maximize Zack’s chances of greater mobility in the future by purchasing a Trexo for home use.
The problem: insurance won’t help with the cost despite the proven health and mobility benefits for kids like Zack. That’s why she turned to the trusted nonprofit Help Hope Live to start a fundraising campaign at: https://helphopelive.org/campaign/21095/
See Zack’s exceptional progress by following Patricia’s TikTok channel for her “micro miracle” boys at: @mom2micromiracles.
Unlike a GoFundMe campaign, donations to Help Hope Live in honor of Zackariah are tax deductible to the extent allowed by law, and all funds raised will be managed by the nonprofit to cover verified medical and related expenses. Help Hope Live verifies medical and financial need for every patient.
Help Hope Live is a national nonprofit that specializes in engaging communities in secure, tax-deductible fundraising campaigns for people who need a transplant or are affected by a catastrophic injury or illness. Since 1983, campaigns organized by Help Hope Live have raised over $172 million to pay patient expenses. ###
Written by Emily Progin