Help Haleigh Find Hope
As you may know, my beautiful 12-year-old daughter, Haleigh, has suffered for the last four years with severe and debilitating chronic pain. Finally, this summer, her medical team was able to put a name to her pain. She has what is called amplified musculoskeletal pain syndrome (AMPS). Due to a nerve circuit misfire in her legs, there are many days were Haleigh is completely rendered unable to move or walk because of the excruciating pain in her legs. This is a child who didn’t even cry from a break in her arm with a total separation, so when she cries and sobs, it’s the real deal and it’s bad. I am now in a desperate battle with insurance to get her treatment.
April 9, 2016
We spent Monday and Tuesday of this past week at the Children’s Hospital of Philadelphia getting her re-evaluated and having a checkup. As of now she has been labeled as moderately disabled on a good day. They are hoping to have her in the hospital by July.
Thank you for your continued support!
March 9, 2016
Well folks… we go back to Children’s Hospital of Philly at the beginning of April for another visit and see what our options are at this point. Please share this site with friends….maybe now that tax time is coming around, this can catch fire and people will want to donate a little bit! Every little bit helps… and every bit goes towards cost for her treatment!
Photo Galleries (2)
February 18, 2016
Leigh and Haleigh, Hang in there...eventually you will get to C.H.O.P. Our son spent a month in C.H.O.P. many years ago when he was 14, and the personnel and the care he got was exceptional! It is such a great place, with caring nurses and doctors. I know it seems like the pain won't end, but you will get the treatment you need and live a long and wonderful life painfree! We will keep you and your family in our prayers.
Lynn and Jim Burkhardt
January 8, 2016
Leigh, My heart goes out to Haleigh and her family. I understand being a single mother can be challenging, especially when your children are dealing with any type of illness. I believe Haleigh will receive the treatment she needs with faith, prayer, and a wonderful support group. There is hope and it starts here. I challenge not only local residents of Stafford and neighboring counties in Virginia but everyone across this great nation by issuing a call to action; not only could your donation for Haleigh give a young girl hope for a better future, it could change her life. Be a game changer, make a donation. I am honored to support, stand and fight with Haleigh's Heroes.
December 2, 2015
I am a Respiratory Therapist and for a long time I have had to deal with Chronic Pain. As an adult it is difficult and most times I have to just push through or ignore. I am also a single mother of an 11 year old girl that I would do anything for especially if she was sick. I am praying for total healing and restoration. Also for your mother I don't know you but I can only imagine, keep the faith. God can and does make miracles happen. Aloha nui loa!
Mindi-RT in Northern VA
December 2, 2015
Hang in there Haleigh! Keep believing the treatment you need will heal you and give you endless pain free days and before you know it you'll be at C.H.O.P.'s making new friends and learning how to control the pain