August 28, 2016

Greetings! For those of you who may not know the story of Anne’s journey through illness and hope, here is a timeline:

In the spring of 2012, Anne became ill with what her doctor thought was pneumonia. However, Anne continued to have respiratory issues, and her doctor recommended that she see a pulmonary specialist.

After seeing doctors in her local area, Anne decided to go to Johns Hopkins, where she was diagnosed with interstitial lung disease (ILD). She tried several types and rounds of treatment to stop the progression of the illness, to no avail, and she was placed on the lung transplant list at Hopkins in April of 2015.

At her doctors’ recommendation, she was also evaluated and placed on the transplant list at Inova Fairfax Hospital, where she had her lifesaving surgery on May 29 of this year.

After her surgery, Anne had several setbacks, and she was in intensive care at Inova until June 25. She was then moved to a “regular” room, and then to the Inova Mt. Vernon hospital, where she began to receive intensive physical rehabilitation.

On August 3, she was discharged from the rehabilitation hospital, at which point she moved to a hotel that is ten minutes away from the hospital, where she will remain until her transplant team feels that it is safe for her to return home. After that, she will have to make two trips to Inova Fairfax per week for the foreseeable future and she will continue her rehabilitation at a local facility.

Anne will have to take anti-rejection drugs for the rest of her life. Her out-of-pocket cost for these medications will be approximately $10,000 per year.

Today, Anne still uses a wheelchair, as well as a walker for ambulation. She continues to work very hard, and she recently took 45 steps while only holding her husband, Allen’s, hand. This is a milestone for her and we are so proud of the progress that she has made so far! She still has a long way to go, however.

Please consider donating to help Anne with her tremendous out-of-pocket expenses as she continues to do the hard work of recovery and strength-building!

Trish

August 4, 2016

Great news! After 60+ days in the hospital, most of which was spent in intensive care, Anne has been discharged! She and Allen have to be near the hospital, so they will be staying in temporary housing at a hotel for the next several months while Anne continues to get physical therapy and ongoing monitoring by her transplant team.

Her protracted hospital stay, in addition to the added expense of having to reside in a hotel near the hospital, mean that she and her family will incur a great deal of extra out-of-pocket expenses. This is where you come in: Please consider donating to Anne’s HelpHopeLive fund to offset these costly out-of-pocket expenses!

Check back regularly for updates on Anne’s progress in the coming days, as well as other opportunities to assist! Thanks in advance for your generosity and support!

Trish