A person’s life is often told through stories and pictures. In spite of being diagnosed with MS in 2001, my life prior to May 2013, when I was diagnosed with PML (a rare brain infection), is reflected in the stories of my family trips to Costa Rica, fishing with friends in Alaska and Oregon, camping for a week in Yellowstone for a bachelor party, and the simple home time spent with my other half, to name a few. Prior to May 2013, I helped to manage a team at Ventana Medical Systems(Roche) named BMAC that made antibodies and control tissue for cancer diagnosis. Unfortunately, the combination of MS and PML has done considerable damage to my nerves and my brain. I took for granted, like most people, the little things in life, like walking, speaking clearly or even getting in and out of bed; I don’t anymore, I can’t. I am now confined to a wheelchair, have unclear speech, double-vision, and many other limitations that has resulted in my inability to care for myself. I would like to live a more independent life again, and walk again.
It is difficult to ask for help, and it is something that does not come easily for me. However, there are some things that would help me to attain some relief from my high healthcare costs, caregiver costs (8-10 thousand a year) and insurance deductibles and premiums (about 7 thousand a year). Unfortunately, insurance does not cover caregivers and daily medical needs.
March 7, 2016
Last week, I got to try a demo glider.