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My sister, Tatiana Haas-Castro, has secondary progressive Multiple Sclerosis (MS). Unfortunately, the course of Tatiana’s MS is aggressive and her physical abilities have been greatly effected. Tatiana faces increasing challenges with maintaining her independence. Sadly, there are no FDA approved treatments for secondary progressive MS in the US; however, there is treatment available elsewhere called Hematopoietic Stem Cell Transplant (HSCT). This transplant will use her own stem cells, which are reintroduced into her body to halt further progression and/ or greatly reduce Tatiana’s symptoms of MS. Tatiana is on the waiting list for at Clinica Ruiz, a reputable clinic in Puebla, Mexico. Dr. Ruiz is an alumnus of Mayo Clinic and has been treating MS patients for many years. Tatiana’s neurologist has also researched the procedure and Clinica Ruiz and is in agreement with Tatiana’s decision. We are hopeful that this procedure might help reverse much of what MS has taken away from Tatiana.
Tatiana’s friends and family know that she is an optimist and that her personal motto is “Life is Good.” A registered nurse and a mother (mamacita), Tatiana is warm-hearted and caring. She is often caught helping others and remains positive in spite of the challenges she faces. Tatiana and her family are committed to HSCT treatment, with the goal of halting further disease progression. Tatiana has a goal of walking one mile with her daughter on the Greenway and would love to walk on the beach after her treatment.
The cost of HSCT at Clinica Ruiz is $54,500 and does not include travel, or any other post treatment therapies. Tatiana estimates that her total costs will be $60,000 for the procedure and related expenses. Because the procedure is being done outside the US, her insurance will not cover any of the cost.
To help with these expenses, a fundraising campaign was established in honor of Tatiana with Help Hope Live. Help Hope Live was chosen because it is a 501(c)(3) organization and all donations are tax deductible to the full extent allowed by law. Funds are held in the South-Atlantic Stem Cell Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. This ensures accountability.
To make a donation, click the Donate Now button.
We thank you on behalf of all of Tatiana’s family and friends for your generosity, prayers, and positive vibes. “Life is Good”
Gratefully,
Guillermo and Traci Haas-Thompson (Tatiana’s brother and sister-in-law)
8/29/16
My daughter's first day of 8th grade...yes, a little emotional
I sit here and I'm amazed at everyone's generosity, support, believing in me and most of all the love and compassion that is shown. Many family and friends, but also people I have never met!!! There are no words that could describe my appreciation!!
The time is getting closer...yep, u guessed it. I'm somewhat nervous and scared, but fortunately I'm not letting me stop. Only moving forward!!
Plane tickets have been purchased...it's real!!!!
Got to still book one night in a hotel
Please continue to share my page...very much appreciated.
Life is Good...Peace Out!!
Happy Saturday to everyone!!
I can't believe the $$ raised already!! It truly is amazing!!
4 months from today I will be on my way to begin the process of getting a new immune system!!! It';s crazy, I know!!!
Thanks to everyone for donating and sharing my page!
Life is Good...Peace Out!!!
Hi everyone!!!!
TGIF!!!!!!
I wanted to make clear that when I say "stem cell" transplant, that they are my OWN stem cells.
Crazy, But they extract my stem cells while killing off my immune system
. They will "wash" them so that they will have no memory of MS. Also won't have memory of any of my vaccines...yep. u got it! I'll have to get all my childhood vaccines again! Who's gonna hold my hand?!
Good times, Good times!!
Life Is Good...Peace Out!
This is sooooo amazing!!! Donations keep coming. Especially the last 2 wks, When the launching of a Facebook site called "TeamTatianahope4MS, by a long-time friend, Has raised +$8,000!!! There is approx. +900 members!! Would love for you to join and share!!
There will be a few fundraising events coming soon!!
A Music Jam, Motivational speaker, Big Yard sell, Hopefully a spirit night and who knows what else...
Also, there will hopefully be T-shirts and a raffle.
I'm getting excited, nervous and yeah, a little scared...
but,
Life Is Good...Peace Out!!
It makes my heart smile when I see names of people who have donated that I haven't seen in years an d people I don't know. I read all the positives vibes, support and prayers that are sent my way. Many of you expressed that someone you love, be a friend, spouse, parent, sibling and yourself fights this,"MonSter' (this is what MS'ers call it).
My hope, along with halting MS, is also make people aware of HSCT and highly successful rate in stopping this disease.
For the first time in 17 years of dealing with MS and what is has stolen from, I have HOPE!!
But ya know me. I'll find the positive side to this.1st. It has REALLY made me how much my family and friends love me.2nd. It has made me stronger to overcome obstacles placed in my life(and yes, more stubborn). 3. attempt things that I didn't think I could (still can't dive. total belly flop. It looked good in my mind). 4. continues to strength my faith IN HUMANITY!!
Most importantly, to me, it continues to bring closer to GOD!
Life Is Good, Peace Out!!
Well, I had been promising a picture of my first item that I have bought for my trip to Mexico on December 5. But was unable to download it to the site. So I downloaded it to my Facebook page that a friend has set up for me. You can go there and join. Another good way of keeping up with what's happening with my journey to HALT the progression of my MS.
TeamTatiana4MS
LIFE IS GOOD! PEACE OUT!!!
Hi!!!
Soooo glad that a friend asked me if my passport was updated, I thought for sure it was, but I went to my security box to check.
Opps!! expired in 2008. I immediately went to renew it. Got my new passport last week...WHEW!!!
It is amazing what changes happen in 17 yrs...ugh!!
My last passport pic was 3/98. I month after I was diagnosed!!
CRAZY!!!
LIFE IS GOOD...PEACE OUT!
It's me again!!!
I wanted to update ya'll on this fundraising site. Many of you have donated, but don't see my donations increase. What I have found out, is that if it by credit card, it will show the end of the business of the next day. This is a 501C3 organization, which means it is tax deductible. Very different from the well-known, GO FUND ME page which is not deductible.
This organization has set up an account and can only be used for my procedure and anything related to it. Full accountably for the $$
Thank you EVERYONE donating, sharing my story and most of all your support!!
LIFE IS GOOD-PEACE OUT!!!
Hi everyone!! It has been a while since I have done any updates. I had promised a pic of my first item that I bought for my procedure, but due to my technical IQ (extremely low) The pic will have to wait!
I now have in place my carers that will be with me. Susan Little, very good friend and a NURSE!!! She'll fly down with my 12/3-12/18 and then my aunt who lives 2 hrs away will finish out the visit.
Then already have 2 friends that will be able to be with me when I get home.
felling extremely blessed
I'm tellin' ya...LIFE IS GOOD!!!
They, w/o hesitation agreed to be there for and with me!!
I just bought my first item that i'll be needing for my trip back to NC...pic will follow when I receive it
no. it is not the Chewbacca mask...or maybe it is..
I am no longer on the waiting list for the procedure. I have been given the date of....
December 5!!!
Christmas in Mexico!
It is crazy because I have been talking about this procedure for like a year and a half and it's actually coming to fruition! With the everybody's support, love and prayers this is going to happen!!!
Do you think they'll let me sip some wine while the procedures going on? It never hurts to ask does it:-)
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We are all praying for you and sending virtual hugs!
Samantha Canal
Tat. I love you and I am praying that you will raise the money you need for your stem cell treatment. Sorry I will miss event and hope it is a huge success. You are an inspiration to many....good luck and I will stay in touch during this time. Praying daily for you and your journey.
Cathy Craig
So happy for you Tatiana! I have some stuff for your yard sale too! FYI Doris is my real grown up name
Bebee Bason Lee
Good to be on your team! Praying for this mission and for you now and in the future... Keep HOPE alive and you will win this battle... Pulling for you all the way!
Wanda Watkins
We are gonna do this Tatiana !!!
Sharon Wyatt
All paws crossed here at the Tree House. Sending only positive energy your way. Hang in there!!!!
Vikki Morrow
Hey Tatiana. You are and will continue to be in my prayers. You have always given to others and now it's time to allow your friends and family to give back to you. Your sweet spirit shines bright girl. Love'ya!!
Suzanne Stephenson
Hi Tatiana! We don't know each other, but we have a mutual friend in Felicia Owen. I read about your site via a post on FB.
I am an "MS'er" as well, diagnosed in 2002. I have you in my prayers and applaud you for fighting to keep this at bay and try to continue living your life at the best level possible! Every day we face is different and each of us suffer differently. I pray this treatment will become possible and that it will help you; I also pray that one day we won't have to search outside our own country for a treatment that could be life changing!!
Blessings to you and yours!!!❤
Cindy Collins Sanchez
Tatiana,
You have a beautiful smile and outlook. I know you will defeat this!
Laura Clayton
To a long life of health...
Mona and Teresa
May your beautiful smile grow and grow with the journey to your cure!!
Felecia Owen
I am praying and will continue to pray that this procedure will be successful !!!!! Can't wait for the party after all this is behind you !!!
Carol Williams
"Do not go where the path may lead, go instead where there is no path and leave a trail" - Ralph Waldo Emerson
Tatiana, your courage and positive outlook on life inspire me. You are in my thoughts and prayers.
Leta
With you all the way my friend
Donna Murrells Inlet
So Audra just said to me, when is Tatiana having her procedure. I said, I don't know but I want to donate to her page what do you think, and she says, yes! Now I see you have a date. Keep smiling sunshine!
Karen
We hope you have a very successful procedure!
Terrie & Mickie
Love you Tat!
Elaine and Paula
Couldn't think of a better cause than a terrific lady like you! We love you!
Donna and Wendy
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Tatiana Haas-Castro
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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