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Unfortunately, over the last several years the course of my MS has been moving faster and is causing more damage with each exacerbation. Fatigue has increased, heat tolerance is nonexistence, irregular gait causes frequent falls (many with injuries including fractured pelvis TWICE!) and many, many more chronic conditions. After decades of coping with the effects of MS, I began exploring other options for treating these symptoms more aggressively. After doing extensive research and having one-on-one discussions with other MS patients, the best treatment option for me is a stem cell transplant. I have consulted with my physicians, who have all encouraged me to proceed with this course of treatment. I am hopeful that a stem cell transplant, where doctors will extract and then reintroduce my own stem cells into my body, may reverse much of what MS has taken away.
Sadly, the treatment is not covered by insurance. I will have to travel to the treatment facility in California and will need to stay in the area for the procedure. In total, with the cost of the transplant and travel I will need to pay about $20,000 out of pocket. This is an expense I cannot afford on my own.
To help with these expenses, a fundraising campaign in my honor has been established with Help Hope Live. To make a tax-deductible donation, click Donate Now.
Thank you for your prayers, support and generosity. Please share this information so together we can help others as well. Keep an eye on my campaign page at www.helphopelive.org. I plan to post updates on the progress.
Sincerely,
Janet Horton and her paw family members AKA the dachshunds
December 2022****************
I wanted to provide an update and at the same time wish everyone a sincere Merry Christmas and Happy New year.
Multiple Sclerosis has not stopped progression. Sadly, it is moving forward with its own set of plans, but so am I.
I will be seeing a specialist of specialist very soon. Who knew? I think I am qualified after three decades to be a "specialist of specialist." Imagine that One, "specialist of specialist" seeing another "specialist of specialist."
I am still working for my same employers and have been in person and in the office throughout the pandemic years.
During this timeframe, evolving with MS, working through a pandemic (essential worker on both jobs), and the rise in
violent crimes (record breaking numbers) this has brought unchanneled waters to endure. Fortunately, about a year ago my major employer accommodated 10 hours weekly could be worked remotely.
With that said, now I have the best office and best work associates a person could ask for, i.e., a leather sofa, three weenier dogs and no traffic on those days. Yahoo!
I personally think my passion and empathy for victims with my desire to see crime decrease has been a driving force. Not to mention, my fur member family, Della, Banjo and Greta Lu provide daily encouragement to keep pushing.
OMG, I had a grandbaby, and she will be three this month.To me, that is the most wonderful little person in the world.
When I see that baby's eyes filled with hope, her joy, her smiles, her hugs, I melt.
Moving on to the medical part of the update:
MS has been a fight. MS will continue to be a fight. MS sucks.
After all this time, lets add more by throwing COVID in the picture. I was able to dodge that "C" word for until 12/22. This too is a battle, but the good thing is COVID has a higher probability leaving the body than MS.
I will always be an advocate for Stem Cell and would always recommend the procedure when other treatments have failed. I believe I was able to experience benefits from the procedure even if the benefits did not last lifetime.
Thank you again to all of you, including Help Hope Live for your participation, financial contributions, and prayers for my MS Journey.
May this holiday season and all the ones ahead be filled with joy and love.
Sincerely,
I wanted to post an update since it has been one year post Stem Cell Transplant (SCT).
It was another super busy year. In retrospect, knowing what I know now I would still make the same choice with SCT. If insurance would approve I would go through another SCT. For the record, I would recommend SCT for anyone with a debilitating illness. It is not all "pie in the sky" and at times I feel cursed, but simultaneously I feel privileged to have the ability to continue to move forward. After 30 years with MS I am still able to fight, push, thrive and achieve goals. Maybe not at the pace I would like, but I can and will get there.
I must admit MS is doing better after SCT, especially after post treatments (#60 HBOT treatments todate). Unfortunately, in January I was hit pretty darn hard in the rear by a F150 (I know he was texting). I am addressing the back issue from the accident. The body of my vehicle was repaired perfectly, but my back suffered a herniated disc. After this length of time it looks like the outpatient route will need to be stepped up to a more progressive response. From my experiences I have a new respect for people with MS and now a new respect for people with disc issues.
My hat goes off to you.
Thank you for your support with MS, SCT and for me.
I stand 100% behind the medical field to push SCT forward as a standardized treatment.
Please take care of one another and have a wonderful upcoming holiday season…
FYI:
I am at #22 out of #40 with HBOT treatments.
I am currently in post treatments and a waiting time phase.
I am waiting for the stem cells to learn what their target areas are.
I know what areas those are but for some reason we need to be on the same page.
Hopefully the same page is soon-to-be and within reach.................
I appreciate all of your continuous support……..
I wanted to check in and give a progress report.
In all honesty it was a lot tougher than planned, imagined or expected.
Without going into all the details just know the toughest part was when they went through the nostrils and hearing things like cracking bones was a bit on the painful side. I guess the nostrils happen to be a shortcut to the brain. YULK!
Also, the removal of platelets, plasma and stem cells was no picnic either.
It has been three weeks and I am just now healing from the removal process.
The removal of the mentioned goodies AKA "liquid gold" was sent to their lab and then prepared for reentry.
The target areas for reentry were brain, legs, pelvis, spine, bladder and one full IV throughout the body.
Barriers were opened to allow the stem cells to get into the target areas and then the barriers were closed.
The "liquid gold" was then trapped.....................No turning back now..............
There are several different prescribed post treatments to facilitate a successful outcome, i.e., 40 hyperbaric oxygen treatments for 1-½ hours and to-date three have been completed. Another reason to work on the campaign a little harder when stronger.
The "liquid gold" will take a minimum of three to six months in order to start the MS repair process.
It is my job to foster the environment and give them a reason to thrive.
I will keep you posted and ask for your continued prayers and well wishes.
Without you I would not have made it this far.
PS: Happy Halloween
Thanks to EVERYONE who has donated and/or posted a message of support! The campaign has progressed much better than I ever dreamed it could!
I especially want to thank my mom and her longtime friends including associates through North Texas Basset Hound Rescue. Woof, woof and one big howl to all of them………..
There is one family my mom has known for a longtime from South Carolina/Georgia that made a very generous contribution from their hearts. Generous is an understatement. How do you ever pay something like that back? Both Mom and I appreciate their support and are happy to have them as a major part of this quest to repair MS damage!
Because the $20,000 covers the treatment, HHL bumped up the goal to help with the ancillary expenses of traveling and staying in CA, medications, and any additional medical needs. Now it is time to put MS in its place………….
Thanks to ALL!
Janet
CONGRATULATIONS #26 RICHARD THOMAS #26, #26, #26, #26
Winner of Help Hope Live Raffle #1
I hope you take the cash option since California has a surcharge for delivery.
Thank you to all who participated. Every dollar purchases millions of stem cells.
Time to get Raffle #2 in the works……………….
UPDATE: HALLELUJAH!
Thank you to mom’s friends, connections, and associates.
A very special thank you to one BELLSOUTH FAMILY. WOW!
UPDATE: goal amount was increased
The goal amount was increased due to fees and total costs (i.e., transportation expenses, hotel, food, arrangements at the home front while away and other accommodations associated with travel and the procedure).
RAFFLE NUMBER 1! RAFFLE NUMBER1! RAFFLE NUMBER1!
OH MY GOSH!
Thank you so very much for the opportunity to give somebody a SWEET SAMSUNG ULTRA-HIGH DEFINITION 4K TV or $400.00 in CASH (winner's choice).
Not too sure if it is worth all the MS symptoms for the past decades, but it will be worth the treatment, for sure.....for sure........for sure.....
You will go down in history as helping science, research, opening doors for others with chronic illness and myself...........
ONLY 40 MORE MINIMUM TICKETS TO SELL AND/OR 8/26/16.
Help Hope Live must sell at least 100 tickets and thanks to all of you we will get there...............
Good Luck! Good Luck and Good Luck!
RAFFLE, RAFFLE, RAFFLE, RAFFLE,
One person is going to WIN a sweet ULTRA-HIGH DEFINITION 4K TV
Only $20.00 gives you a chance that you can be that winner.
Consider purchasing a ticket and if you do not need a TV, but happen to win it surely you know someone that would love to have it as a gift. Better yet, be a hero to an organization and donate it to charity.
Charities are always having fundraising events (Operation Kindness, North Texas Basset Hound Rescue, Dachshund Adoption Rescue and Education, SPCA, hint.. hint...just to name a few). Only $20.00 for your chance to WIN! See Raffle…Good luck! Good Luck and Good Luck!
If I just said thank you for helping me then that is not revealing the true appreciation I have to all the supporters. I am so anxious to get better and allow modern science to apply their hard work in research. It appears having a connection in the stem cell arena would be a big plus in this situation. I will have to remember that when all is said and done.
I have heard and read about so many great stories of recovery and repair. I am looking forward to the day when I am added on that list. I hope my future success will inspire others that are in a similar situation and they see how this journey was able to physically move me in a forward direction.
I am sending many, many thank you’s …. from way down deep……. even past my toes. Janet
Please see Fundraising Activities RAFFLE below................
It is for a super nice SAMSUNG 40" Ultra High Definition 4K TV..
Thank you and good luck....
First of all I wanted to thank each and every one of you from the bottom of my heart.
Thank you for your support with my future ability to make arrangements to fight fairly with this MS and be equipped with the needed ammunition to continue.
“Nothing in the world is worth having or worth doing unless it means effort, pain, difficulty… I have never in my life envied a human being who led an easy life. I have envied a great many people who led difficult lives and led them well.”
― Theodore Roosevelt
My mom's friends are very generous.....................
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So wonderful to hear of good news for such a fabulous person! It does my heart good.
Ann Duffy
Hi Janet,
Gary and I have been thinking of you are are so hopeful that this treatment will prove successful for you.
Sally Stephens
8/16/16
Janet I have seen people do heroic deeds on occasions but you have are a hero on a daily basis by way of your strength, kindness and intestinal fortitude which serves as an inspiration to all that know you—and in particular to me. You have earned and deserve every chance there is to get better.
Respectfully
PM
Paul Mansky
Good luck, Jess and I will be praying for you!
Matt Brozio
Janet, I hope you quickly reach your goal so you can move ahead with your treatment. No one deserves this more than you. Love you, girl!
Tina Tarrant
Janet, Mittie and I worked together for many years and have kept in touch for 22 years since we both retired. I wish you much success with the stem cell procedure. Research has come a long way in this country. Hope this donation helps.
Faye Markey
Just shared your page on Facebook; I am your mom's friend-have known her several years via NTBHR. I wish you and your family the best.
Nancy Hightower
Janet, I used to work with your Mother. I am so sorry to learn that you are having no relief from all the treatments tried! I hope this donation helps you raise the funds needed for the stem cell transplant!!
Diane Schott
I've shared this on FaceBook and hope it helps, Janet. I've known your mother about 28 years (has it been that long?) and will be glad to help.
Charlie Rowland
Praying that you'll receive the full amount needed for the stem cell transplant and the transplant will be successful for you in Jesus Name. Love You!!!
Aunt EdWina
Love you Janet ! Sending prayers your way.
Dawn Kemmerlin
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Janet Horton
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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