MobilityWorks
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Abigail Leonard is 12 years-old and was born with a medical condition known as FOXG1 Syndrome. A genetic panel performed at Boston Children’s Hospital confirmed something called a “14q12 deletion”, which includes FOXG1. As a result, Abigail cannot sit or walk independently, is nonverbal, has reflux and uncontrolled epilepsy. She is nonverbal, in a wheelchair, and legally blind.
When Abigail was born, she appeared to be a perfectly healthy full-term baby girl. By the time she was nine months old, she did not sit independently and her eyes crossed more than normal. We were told she was a healthy, typical child who might be a little delayed because of eye issues and we were referred to a pediatric eye doctor. An MRI of Abigail’s eyes and brain were ordered it was at that time we were informed of a myriad of issues in Abigail’s brain. Early Intervention through private physical and speech therapy, occupational therapists, along with a few specialists was started. By Abigail’s two and a half birthday she had her first grand mal seizure, which unfortunately have continued and she requires strong medications.
Despite these obstacles, Abigail is a ray of sunshine and an inspiration to those who meet her. She’s an extremely happy child and loves meeting new people and going new places. She will be starting 4th Grade in September and loves school. We wouldn’t change her for the world. Abigail is in a wheelchair full time and desperately needs a new van, which will enable her to be transported out of the house. The van will be a lifeline for getting Abigail to school, church, social outings and activities, and much needed medical appointments, therapies and rehabilitation. A spacious and functional van with a ramp and modifications made specifically for Abigail can cost upwards of $60,000! Abigail desperately needs this vehicle, as her health and livelihood depend on it. Her parents and support family work around-the clock to support her. With the cost of rehabilitation, living expenses, home modifications, medical appointments, nursing care and medications, there is little money left to afford a van. Abigail and her family need your financial support to help this deserving young girl get the much deserved care she needs!
To help offset such expenses, a fundraising campaign in Abigail’s honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible to the full extent allowed by law, are held by Help Hope Live in the Northeast Catastrophic Illness Fund, and are administered by Help Hope Live for illness-related expenses only. To make a donation to this fundraising campaign, please click on the yellow DONATE NOW button.
Thank you ahead of time for your thoughts, prayers and generous support. Any donation amount, no matter how big or small, is one step closer to a brighter future and better life for Abigail.
Gratefully,
Abigail’s loving family, friend and Community
As part of our year end push, Abigail was featured in a local news story today:
Abigail’s Campaign was recently featured in the News! Please click on the link below to view Abigail’s news story: saugus.wickedlocal.com
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With love, Brent and Laura Nicklas
Brent Nicklas
Happy Birthday Jennifer! I just sent a donation for your birthday :)
Stefanie Helms
Best wishes! Good luck with everything :)
Cheney kids
Abigail - we hope all your wishes come true in 2017!
Kasey Card
Sending lots of love from your fox friend Victoria :)
Soledad
Good luck with the fundraising Abigail! Love from one of your fox sisters xox
Arabella
Good luck on the fundraising! Sending my best to everyone.
Henry
Lots of love Sweet Pea!!!!
Nana
Dear Abigail, Merry and I both admire your spirit and your ability to find joy in small ways. We are grateful for your loving family and wish relived closer to all of you. We love you.
Grandma and Merry
Hi Abigail. I look forward to seeing you soon and I know you will love your new van. Love - Mer
Meredith Lewis
Abigail you are an incredible girl and I'm so happy you and your Fox twin Lucy can be friends and Fox Sisters for life!! ❤️
The Hamburger Family
Abigail, we love you ,and miss you! We hope you receive lots of donations to get you on your way to a new van! Good luck, Sweetie! Love The Roberts
Kim Roberts
We love you, Abigail! Let's get you a van so you can road trip down to Alabama to hang out with us!
Anna, Brooke, and Aria
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Abigail Leonard
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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