As many of you know, Christopher, has a rare genetic disorder PMM2CDG. This disorder affects nearly every part of his life. He has vision abnormalities, hearing loss, cerebellar atrophy, heart, liver and kidney abnormalities, central hypothyroidism, low muscle tone, a blood disorder and he’s fed via GJ tube. Nothing comes easy for him and in order for him to continue to amaze us with reaching milestones intensive therapy is a must!
Christopher is an amazing, determined little boy who deserves the chance to sit, crawl, and someday walk. Not only does intensive therapy help him with his physical development but it also is needed for speech and oral intake. There is nothing he doesn’t work extra hard to achieve!
February 20, 2018
In about a month Christopher will be heading back to NAPA for his 4th intensive. We are so excited to be doing 4 weeks this year instead of 3.
Over the past year Christopher has been tummy scooting all over the place and he’s also getting so good at pushing himself up to sitting. He can get to a sitting position from his back, side, and tummy. His balance is still off and he will fall without protecting himself but we know soon he’ll be balancing like a pro. He is such a determined little boy! Thank you for your support!!
January 17, 2017
We are getting very close to our departure date of February 18 for Christopher’s intensive therapy. We are so excited to see what he will be able to accomplish in the 3 weeks we are away! Thank you for continuing to donate and share his campaign page!