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Up until a few years ago Matt Storch led a very active life with his wife Lisa and their two sons, Michael and Eric. But then he began to develop health issues that were traced to reduced liver function. Finally, he got the diagnosis no one wants to hear – cancer. Matt has had the cancer treated several times, and each time it appeared it was gone. But then it would return. So far, Matt has been fortunate in that the cancer has remained confined to his liver. But his doctors have told him that it is now only a matter of time until it metastasizes and spreads. His best chance for survival is a liver transplant. Matt’s condition is worsening and Lisa is now his full-time primary caregiver.
Transplants are lifesaving but financially draining. Even with insurance, Matt is facing very high expenses including relocation for at least three months to Seattle to be near the University of Washington Transplant Center, post-transplant medications of up to $1,200 a month, co-pays, lab fees, travel expenses, and more.
We have chosen to fundraise with Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility to the full extent allowed by law for donors. Donors can be sure that funds donated will be used only to pay or reimburse medically-related expenses. To make a donation to this fundraising campaign, click on the Donate Now button.
For more information, please contact Help Hope Live at 800.642.8399.
Your support is critical to the success of Matt’s struggle and to making the prospects for his future much brighter. His primary goal is to be healthy for Michael’s graduation from Boise State University and Eric’s graduation from Rocky Mountain High School. On behalf of Matt and his family, we thank you for your prayers, support and generosity.
Post-Transplant Update #2: It was 2 weeks ago today that I received my new liver. I’m continuing to heal well and quickly. All my bandages are off and 90% of the bruising is gone. A lot of the swelling has also gone away. Yesterday they took out half my surgical staples, removing every other one. I’m not sure why they did it that way, but I’m glad to have them out. I can twist and bend more comfortably now. I’m hoping they will take out the rest on my next visit on Friday.
I still have pain in the area of the incision. The surgeon told me this is the biggest incision they make in the procedures they do. And then they break out the rib retractors. So, I guess I shouldn’t be surprised that I still hurt. But other than that I’m feeling great. I literally feel 15 years younger. You really can’t appreciate how important your liver is until you’ve lived without it working right and then get it back. My whole body is changing. Everything from how my mind works to my digestion to the way I look has changed. Even my skin looks and feels different. It’s amazing.
Life is getting somewhat back to normal. I’m out and about, and I try to walk at least a mile every day. We’re doing normal stuff like grocery shopping and such, and at night we mostly just hang around the apartment and watch movies. Some friends from Idaho are passing thru town today on their way to Canada so we’re looking forward to seeing them.
We are getting homesick, and really miss our kids, our dog, and just being in our own house. They originally told us to expect to be here for 3 months, but they also said that sometimes they release people early so we’re hoping and praying for that. I know for a fact that we will have to stay until at least the end of September, but any time after that is a possibility. Besides missing home, the longer we stay here the more expensive it gets. So as far as we’re concerned the sooner they cut me loose the better.
Thank you again for all the prayers, kind thoughts, words of encouragement, get well cards, etc. I’ve said it before but I’ll say it again. I can’t even imagine how much tougher this would have been without you all standing beside me through this. God bless you all.
Post-Transplant Update: Well, I’m feeling pretty good now so I thought I would give a personal update. Lisa has been doing a spectacular job of trying to keep everyone informed, and that is the least of the thousands of things she has done for me in just the last few days. She is a saint and an angel all rolled up in one.
As I think you all know, I went into surgery at about 6:30 pm on 8/24 and came out at about 2:30 am on 8/25 with a replacement liver. I had been told that it would probably be at least 24 hours before they could wake me up and remove the breathing tube, but by about 9:00 am my body was responding so well that they woke me up and pulled the tube. Not a pleasant experience, but we’ll leave it at that. I was surprised to discover that I actually felt fairly good (all things considered). The doctors kept performing tests and all indications were (and are) that I’m recovering very swiftly. By the evening of that first day I was up on my feet and with the help of a walker (and a morphine drip) I walked 5 laps around the 7th floor ICU unit. By the next day I was able to take a shower, walk 10 more laps, go up and down 4 flights of stairs, and get in and out of bed on my own. All the nurses and doctors kept telling me that my recovery was nearly unbelievable and that I looked great. (Eye color, skin tone, etc.)
Now it would be really easy and it’s really tempting to take credit here, or throw around catchy phrases like “Bronx Tough”, or talk about good genes, or the benefits of my lifestyle choices in food and exercise. But in my heart I know none of that is true. My “miraculous” recovery, the fact this liver is working so well so soon, my survival until the surgery (the surgeon told me my old liver was a smoking ruin) and my survival after the surgery are due to things far beyond my hands.
First and foremost, it is a GIFT of Grace from the Lord. I didn’t earn it, I don’t deserve it, and it is beyond my feeble capabilities. It is simply a gift of grace given to me by a loving God. I’m not trying to evangelize here, and I fully understand that many of those I call my loved ones may not share my opinion. I also understand the many intellectual arguments that my position touches on. But I don’t want to debate them, I just want to share how I feel.
The other factor that I believe has been essential to me in this journey is all the prayers, good wishes and positive thoughts that have been sent my way. I am OVERWHELMED by how many people have participated. I think I can say without any hesitation that the number of people engaged in “traditional” prayer for me is at least 500. And if someone came to me and told that they had discovered there were 2500 people praying for me I wouldn’t be the least bit surprised. Add to that all the other people lifting me up in their own ways (which, with apologies to my atheist friends, I also consider prayers) and it has become a force that helps to sustain, strengthen, and energize me.
I thank each of you, and truly appreciate every FB post, text, email, and call I get. I don’t even want to contemplate what this would have been like without you all.
And I truly could not have survived this without my wife, best friend, defender, and source of joy, Lisa. She has taken every word of our marriage vows and lived them out without reserve or hesitation. She has stood by me for better and for worse, for richer and for poorer, in good times and bad, in sickness and in health. So, I am going to hang on to her for dear life until death do us part – and then for all of eternity.
Anyway, back to the day to day stuff. They discharged me from the hospital yesterday, 6 days after surgery, and Lisa and I will be staying in Seattle in a furnished apartment for 2-3 months as the transplant team monitors my progress and fine tunes my anti-rejection drug needs.
Now, it hasn’t been all sunlight and unicorns. Honestly, the last 2 days have been very rough. There were some issues with some of the drugs, including the pain management drugs (it’s always a trial and error process as every body is unique.) and there have been some very painful, frustrating, and faith-challenging moments. I went from feeling like a rock star to feeling like a truck stop speed bump in a matter of hours. But things seem to be back on track now, and I’m comfortable and looking forward to the future.
We’ve got mountains to climb, Lisa and I, but I’m sure the view from the top will be magnificent, awe-inspiring and unforgettable. We look forward to sharing our travels with you.
Thanks again, EVERYONE!
On Wednesday at 8:30 am we got THE CALL from the University of Washington Medical Center. They had a liver for us. We dropped everything, grabbed out suitcases, and 4 hours later we were being admitted at the hospital. It was noon Washington time and they told us surgery was tentatively scheduled for 2:00 pm.
At around 2:00 they said that surgery would not take place until at least 6:00 pm, so I could have something to eat. (I hadn't eaten since dinner the night before.)
At around 6:00 they told us there had been a delay in procuring the donor organ and surgery was tentatively scheduled for 2:00 am.
We finally managed to fall asleep and next thing we knew it was 6:00 am and we were still waiting. Now surgery was scheduled for noon. During all this I was laying in bed, hooked to an IV and getting my blood drawn every few hours.
At 2:00 pm they finally said it was a go and took me down to pre-op. We went thru the pre-op procedures and then waited. And waited...
Well, we made it as far as pre-op and then we got the news: there was a problem with the donor liver. So, now the liver is headed for the trash and we're headed home. It's been an emotionally draining, painful, and expensive 2 days. But I have faith that everything happens for a reason and a better liver will come along before too long. Thanks to everyone from the bottom of my heart for all the prayers, words of encouragement, and acts of kindness. Thanks for sticking with us through all this.
I want to express our thanks and gratitude to those that have donated to our fundraiser to help with the costs of my upcoming liver transplant. But this time there is a difference. Up until recently I thought that there was no way for me to see who had donated. However, I spoke with HelpHOPElive recently and found out that there is a way to see the names of our donors. I ABSOLUTELY cannot see the amounts donated, that would violate federal 401c3 regulations.
So, without mentioning any names, I'd like to give a few special shout outs. First, I want to thank the 6 people that chose to donate anonymously. I don't know who you are, if we have actually met, or if you will ever see this. But I am deeply grateful to you.
Next, I want to thank my old roommate (you know who you are) that shared my campaign on his page and told his friends that I was someone worthy of their assistance. His friends took him at his word, and 7 people who have never met me donated - and based on the way the fund raising total jumped they were significant donations. Thanks to each and every one of you for putting your faith, and your money, into helping this total stranger. It was truly moving to see this kind of generosity of the spirit in action.
Thank you to all our brothers and sisters at Eagle Christian Church for your support and especially for your prayers. They have been essential to keeping us up and going during all this.
A very special thank you to my "family" at 20th/21st Century Insurance. It is humbling to hear all the kind words of support and caring from all of you, and honestly kind of surprising to know how well-liked I was, and how many people remember and still care about me. Please know that the feelings go both ways!
Many, many, thanks to the members of our family. And when I say family that includes some that are not related by either blood or marriage but are still, truly, family. (I think you know who you are.) We are eternally grateful for not just the financial support but the constant words of encouragement, the prayers and good wishes, and the conversations when we just want to talk.
And, to be perfectly honest, I am amazed at the support from old childhood friends and buddies from my high school years. I always said I had the best friends in the world growing up, and it turns out I was right!
And lastly, I want to give a shout out to my old buddies from Travelers Insurance. It means more to me than you will ever know that you remember and care enough about your old comrade-in-arms to want to help me thru this. I'll never forget you guys, you were, and are, true friends.
I'm sure that there is someone that has helped us that doesn't fall into one of these groups, but please don't think you were left out deliberately. Thank you to everyone!
Well, it looks like life is about to get interesting. There is a complex scoring system used to determine who is at the top of the list for transplant organs, but as of July 15th I will be in the "ready to go" group. After that date it is just a question of when they find a suitable donor organ. I am a semi-rare blood type, so that is the first hurdle. Then it has to be an appropriate size - I can't take a liver from a 6'5" 350 lb. linebacker. And finally it depends on who is sickest that meets the criteria for the available organ, and that can change from day to day.
But from the 15th on we will be living with packed suitcases in the closet, waiting for "THE CALL". It could be the next day, or it could be in a year. But realistically my doctors say it will probably be within 3-6 months.
I want to thank all of you that have donated to our fundraiser. I am truly honored and humbled by your caring about me and your willingness to assist us. With this recent visit to Seattle a few days ago the medical bills have already started to pile up at an alarming rate.
If you have considered donating and just haven't gotten around to it, now would be a great time.
Sending prayers and love for continued healing!!
Jen and the Bobs :-)
Prayers for healing, strength, comfort, love and support. May God always be with you and bless you. Love and hugs from our family.
Eva Mariano Lopez.
Stay strong my friend we are praying for you.
Dennis & Pam Peterson
Praying for you brother! May you rest in the shadow of the Almighty!
John M.
Thanks for keeping Gerry in line on f/b. lol I enjoy your posts. Best wishes to you and your family.
Liz DeRuchie
Good luck Matt!!! We are rooting for you.
Stephanie Hager RN
Keep faith man... This will work out and get behind you soon! You have my support and lots of good energy and encouragement coming your way.
Tyler
Know that you and your family are in our prayers. My family has walked this road and want to share what help we can with you.
LKKochevar
My dear sweet nephew, not only will we pray for you daily but you can depend on us for monthly support to see you and Lisa thru this. "I know the plans I have for you" says the Lord....
Julie and Frank Leaden
Matt, I am praying for you every day. May God grant you peace and give you hope as your friends support you through this trial. The fire isn't pleasant, but you will have a great success story to tell, that will encourage others. Maybe it's your life's mission! Sending you love and best wishes.
Martha Stanfield
You know that you have so many friends and family behind. You have our prayers and support.
Dave Walter
We are praying for you and sending support. May God's peace and strength fill you every day.
Jack and Kelly Beverage
Sending prayers and support from your 20th Century Family.
Tim and Tina Jackson
You're a strong stubborn guy. Beat it dude!
Jo Anne Flynn
The Webbs send love and prayers for strength and peace. You and your family are in our heart. Be strong, like we know you are! And hug those boys for us. ;) Love you all! --angela and family
angela, shawn, garrett, max and ollie
Sending good thoughts and lots of light to you and the family Matt!
Dave and Jennifer Elder
Matt,
I hope that I am now just one of many who have come together to help you beat this thing and help you get back to living a normal life without the worry of your disease. Stay strong, fight on , knowing there are so many that have your back, ol' buddy!
Lenny Spiegel
The Goldstone family sends prayers and hugs from afar. You have a beautiful family and support system and we pray for your liver transplant each and every day!
Mary and Gary Goldstone and family
Contribution done my pancake eating buddy
Tim
Our very best wishes for a successful outcome to our newly discovered cousin
Ronnie & Vic Beecher
You can beat this my friend!!!
Ken Porcaro
Matt the good lord will insure the goal is met ! WE LOVE YOU ! and the McGoldricks will gladly contribute !
Pete McGoldrick
Good luck!
Hannah Storch
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Matt Storch
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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