Family and friends of Michelle Bosquette are raising money to pay for uninsured medical expenses associated with transplantation.
Michelle has chosen to fundraise with HelpHOPELive in part because HelpHOPELive assures fiscal accountability of funds raised and tax deductibility for donors. Donors can be sure that funds donated will be used only to pay or reimburse medically-related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.
February 24, 2018
Have to move closer to my dialysis facility for when I begin treatments (unless I get a kidney first!).
I hate moving. Packing, unpacking, cleaning and then the expense!
I’ve already spent $150 in packing materials and I’m not even done yet. This after purging bags of clothes and boxes of family items which have been passed onto other members for safe keeping. Thanks Jon and Kendra!
Medication expenses have been high this month while I wait for my application for patient assistance to go through the pharmaceutical company’s program. They wouldn’t need a program if their prices weren’t outrageous! $75 for 5 (five) days of one medication. It’s only 20 tiny little pills but, I’m already $150 deep this week in refills waiting for approval.
So many reasons why Help Hope Live is important to me and my battle with CKD. I wish I knew of them my prior two transplants. I wouldn’t have experienced such financial devastation like the last two times.
I hope everyone is well. I’m at the tail end of a yucky cold. head and chest congestion. Well, I’m off to bed. More packing tomorrow! G’night!
January 3, 2018
in 1980, I was 9 years old and I got a cold. It was Autumn and school was in full swing. By Spring of 1981 I wasn’t getting any better and in fact showing signs of disease (puffiness, body aches, pains and vomiting after some meals). My pediatrician didn’t know how to treat me anymore because antibiotics weren’t working. They admitted me to my local medical center on April 1st, 1981. There was a severe blizzard that day, it was record breaking. Ironically, I was born in the same hospital in 1971 during a snowstorm.
Eventually, after a physician overheard the puzzled physicians working on my case they did a BUN blood test. This was after skepticism from my physicians because I was only 10 years old.
Bingo! there is was, all the signs of CKD (Chronic Kidney Failure) showing up in my bloodwork. I had gout at 10!
On November 6th,1984, my mom donated one of her kidneys to me after I spent a year on dialysis. There is so much more that happened between diagnosis to being transplanted but, I’m trying to keep this “short”. Hard to do when you’ve been dealing with CKD for 36yrs.
High School was really rough. I had missed a lot of school from 6th to 8th grades. I didn’t make those bonds in Jr. HS like everyone else. I was alone and lonely in a lot of ways but, I was an excellent student. My passion for learning, music & dancing is what got me through some of the worst times of my life in those 4 years. I hated HS socially but, loved the academics.
I learned in the mid 90’s that transplants don’t last forever. I was diagnosed with chronic failure of my graft and began emergency dialysis in December 1996. I spent another year on dialysis while both of my brothers were checked for donation because they were now old enough. My youngest brother stepped up and was a match so in August 1997, I received my 2nd kidney transplant that would last me 20 years!
So much has happened since then. Life has been a struggle financially and I’ve never really dug out from it since I took on my own care at 18 years old. I’ve almost always held a full-time job to pay my own way but, more importantly to cover myself with medical insurance. It’s not easy and I’ve watched as the insurance industry, among others in the medical field, have reduced benefits and increased costs while denying coverage for potentially life-saving and, eventually, cost saving drugs and therapies.
I’m celebrating my birthday in January. I’ll have lived 40 years longer than the doctors originally told my parents back in 1981. They thought I had a much more severe and incurable, untreatable disease before they found the kidney failure.
February 22, 2018
Thinking of you, Michelle. Hang in there! xoxo