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Eric Fornof is a 48-year-old man who is very ill. For over 45 years, he has struggled with Type 1 Diabetes Mellitus, which led to his blindness and is causing imminent kidney failure. His best chance of survival is a kidney transplant.
Eric grew up in Cheney, WA and graduated from Cheney High School. He went on to Spokane Community College where he studied Electronics Engineering and Computer Science. Eric met his wife Jenette during those years he spent working as a customer service rep for various companies. When he and Jenette had their baby girl in 2002, his eyesight was already diminishing. By 2003, he had lost his sight completely.
Eric was only able to return to working as a customer service rep with the help of the Department of Vocational Rehabilitation (DVR) and the placement at EnvisonXpress, a company whose policy is to employ and support the blind and severely handicapped. Factoring in transit time, Eric’s average work day is 12 hours long. Maintaining this schedule, while battling chronic fatigue, leaves little ability for Eric to spend time with family and friends.
Eric’s wife and daughter have been his rock in facing his many health challenges. He is also grateful for his online community of friends who lighten the mood and help him forge on the path ahead. With his many supporters who are committed to seeing him though the transplant, Eric eagerly looks forward to returning to a stable health situation where he can take walks and have the ability to venture out with his family and friends. However, he still needs your help.
Transplants are life-saving, but financially draining. Even with insurance, Eric is facing very high expenses including post-transplant medications of up to $1,200 a month, co-pays, lab fees and more. This presents a challenge that Eric and his family cannot meet alone.
To help offset the overwhelming financial burden of Eric’s need of $10,000 to stay on the transplant list, a fundraising campaign in his honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax deductible to the full extent allowed by law, are held by Help Hope Live in the Northwest Kidney Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. Please consider a contribution.
For credit card contributions, please click the yellow Donate Now button.
Keep an eye on Eric’s campaign page at www.helphopelive.org because we will be planning some fundraising events soon and posting updates regularly.
Eric is one of the kindest people you’d ever hope to meet and he needs our help. Together, we can make a difference. On behalf of Eric and his family, thank you for your prayers, support and generosity.
Still maintaining. Trying to spend as much time wit my daughter before she heads off to college. Hard to find time these days for doing much of anything. Always things needing to be done but my time is so limited with dialysis 3 nights a week on top of a full 40 hour work week. Always seems like I am running at the tail end of ragged working on keeping things together.
I am still dialysising and currently in hiatus with the transplant. The current review wants a few more tests and better Diabetes control before being allown on the list again. Work and Dialysis are taking their toll. Not much time for anything else let alone sleep. Still helping my daughter with application stuff for college and all. I don't really accomplish much these days.
Thanksgiving and Christmas was great! Nice to spend time with the family. my daughter is off to college next year as she is a senor this year so I am trying to spend as much time with her as possible before she goes off to college.
Well, so last year went out with the transplant program hitting me with a battery of tests. rough end of year week for me. I had about 7 scans/tests of various types, an allergic reaction to the CT contrast as well as the medicine for inducing a heart stress test messed with m system. finally recovered for the most part here two weeks later.
Still not alot to talk about as I work do dialysis and then sleep. no t a whole lot of time for family most days unfortunately.
well Thanksgiving was good. Spread out a little to work around my dialysis but very well time spent with family. My daughter turned 18 during the same week so that was fun too. 5 days off from work to spend with the family with only the dialysis to interfere was priceless. It is getting harder to have enough energy to help my daughter with her college entrance needs. It is taking alot to maintain focus for the details. Hopefully I can get the transplant soon to alevialte some of this fatigue.
Two months on dialysis now. Kinda getting used to it but it definitely is taking its toll. Between maintaining a 40 hour work week and the dialysis 3 nights a week it leaves so little time for anything but sleep. our new kitten is 5 months old now and providing us some entertainment along the way. It's the little things now that make som much difference.
I started dialysis a week ago now. everything has changed for me. Now the world revolves around the dialysis. even work is taking aback seat to the dialysis. Now I have little to no time to relax. sure I could sleep some during dialysis buful. it is not restul Now I have little time to spend with the family
A big Thank You to my Foxtrot family and everyone else who has helped to spread the word and donate to my cause. My daughter Ella has stepped up and spread the word with her frieds and accounts as well so the word is getting out. Hipefully we can keep the momentum going on spreading the word and sharing the link.
So Dialysis starts July 22. I expect it to be a hard change as the time for Dialysis will take me from friends an family. The initial treatment is 3 days in the hospital and with the Coronavirus policies in place I will not have anyone at the hospital with me for it. It is a bit scary not knowing quite what I am walking into. You can tell me all about the procedure but that does not explain what I will feel or how it may affect me. I never seem to do things the easy way and always seem to get those unique situations, so this will be another adventure. My daughter will have her own adventure taking care of our latest member of the family, Athena. Athena is a 3 month old tortoiseshell kitten (see photo) with plenty of attitude and energy. She will keep Ella quite busy while I figure things out.
I start Dialysis in the next couple weeks as soon as they can figure out scheduling. Hopefully they have nocturnal times available so I can maintain work and my second insurance for the transplant.
Back on the Active transplant list. Just doing what I can to continue maintaining amongst the Covid-19 mess.
So. With the Covid-19 epidemic All transplants are on hold and all pending transplants are now changed to inactive until further notice. Hopefully this gets resolved soon for obvious reasons. But Hope is definitely necessary right now.
Still hanging in without dialysis. Could start any day now, just trying to avoid it knowing it will be harder on my system even though it should make me feel better overall.
Well not much room now for delaying dialysis. Just a matter of if I get sick or when I want to start. Hard to come to terms with the changes in life that will have to happen with the start of dialysis. Currently still working and I am unsure as to how much I will be able to continue to work after starting dialysis. Questions arise. Such as how much time is the dialysis going to take from the day. Will I need to rest after the dialysis or will I be able to get up and go to work. How much time away from family is this going to cause. I have to maintain work so I have the second insurance for the transplant. How do I juggle the balance of work to dialysis and still maintain a home life? I will just have to wait and see.
While I am still waiting o the transplant and I have not started dialysis yet. It is getting harder to maintain functionality. Fatigue is bad and the edema is difficult to control. Another month before I see the doctor again. Hopefully I can continue to maintain.
Officially on the Transplant List. Started my monthly testing for continued health checks. Keeping active as best I can, though getting harder all the time.
Well , THe fistula is working well. I will likely be on dialysis soon. Gastroparesis has also set in, making it harder to juggle the kidney diet. Energy is at a new low. Any physical activity even trying to carry a small box wipes out my stamina for awhile. Still maintaining the best I can.
De-clotting of the fistula failed. Had a new fistula surgery the day before Thanksgiving. Still recovering from that ordeal. Hopefully I won't need the new fistula before it becomes viable.
Arm is recovering okay after the de-clotting of the fistula. I will find out tomorrow if the fistula is working as intended. Still not needed yet for dialysis but wanting to keep it functioning just in case.
I've Made the Transplant List! Now having issues with the fistula clogging and having to deal with the surgery of breaking up the clots via surgery.
Getting close. The last appointment might have been my last before the transplant group presents my case before the committee as to getting on the transplant list. Some days are harder then others but at least I am still avoiding Dialysis so far.
Holding stable at this time. Have an upcoming appointment with the Transplant Team at the end of the month. Hopefully things can progress now.
Hey all,
Just waiting for the word from the transplant program coordinator. Hoping for a fast turn around se we can get things moving.
Still maintaining. Dermatology appointment tomorrow as a last test before evaluation. Working on time with my daughter as much as I can with the fatigue.
Heart Cath done, just waiting to hear of the next step I need for the transplant approval.
Still working on preliminary testing. Waiting on a cardiovascular testing at the moment, then I will need a few other things. Slow going, but trying to make progress.
Still working with the transplant group going through their tests. It is getting harder to do much of anything with the chronic fatigue. Starting to opt out more on my daughters activities as I just don't have the energy to attend.
Preliminary tests are ongoing. Still have further tests to take. Hard to spend quality time with family when the system is so compromised. Looking forward to the time of when I can proceed with the transplant.
Well, preliminary evaluation for transplant this next week. We will see how things go. Running real close to needing dialysis now so hopefully it goes well.
Well the fistula is functioning though there is a narrowing of the vein it leads to so that's a complication. Paperwork is proceeding for the transplant, though slow it is progressing. Took time to see may daughter in her drama/musical which was fantastic. The expenditure wiped me out though, hard to maintain the balance with extra activities. Hopefully the process for the transplant continues smoothly. I do have a living donor lined up awaiting testing/matching.
The new fistula seems to be working this time. I have restarted the transplant paperwork now that I have a second insurance to help along with these donations. Thank you to everyone whjo has donated or shared my page to help me in this situation.
The fistula surgery has failed to take. It hasclotted before being viable for use with dialysis. Now I have to set up another surgery for an upper arm fustula and hope it takes. Meanwhile the secondary insurance is active so I can try to get the transplant moving forward.
AV Fistula Placement Surgery went well. Now trying to recover overall strength. Not really using my arm for the next two weeks until the followup appointment is my next challenge.
While I am on the acceptance list for transplant, I am still waiting for new insurance to start January 1 for the program to progress. In the mean time I am preparing for the event of dialysis and having an AV Fistula surgery tomorrow. My mom and dad are comming into town for additional support. I will update as to how the procedure went.
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Came across your page and wanted to help. I will also be keeping you in my prayers.
Anonymous
Wishing you and your family the best!
Meilin Scott
❤️
Jennifer Rivers-Flasko
Let's get this over $10,000!
Anonymous
Support from Spokane ❤️
Vanessa Miranda
Sending love and prayers your way!
Anonymous
Praying for your family!
Anonymous
Never lose hope!
David Stukalov
I will be keeping you and your family in my prayers Eric. God has got you~
Anonymous
Anonymous
We are praying for you and your family.
Anonymous
I hope this helps, much love to your family.
God bless.
Gigi Gonzales
Do it. He’d do it for you
Philip Graves
My thoughts are with your family.
Anonymous
Jade: Im so sorry to hear this and I am hoping all the best for you and your family. I wish I could do more. You are in our hearts. Hopefully, we can connect online again soon.
Pike2661
Peter Lee
Wishing you good health and the best of luck
Tucker Graves
Hope things get better for you Eric. - Wulfhound
Samson Chan
Stay strong, Jade! We are here for you! Love, The Damons
Irene Gomez
Hoping for the best, Jade.
Bucky
Prayers for all the best, Jade!
Mord
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Eric Alexander Fornof
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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