Eric Needs Our Help!
Eric Fornof is a 46-year-old man who is very ill. For over 40 years, he has struggled with Type 1 Diabetes Mellitus, which led to his blindness and is causing imminent kidney failure. His best chance of survival is a kidney transplant.
Eric grew up in Cheney, WA and graduated from Cheney High School. He went on to Spokane Community College where he studied Electronics Engineering and Computer Science. Eric met his wife Jenette during those years he spent working as a customer service rep for various companies. When he and Jenette had their baby girl in 2002, his eyesight was already diminishing. By 2003, he had lost his sight completely.
Eric was only able to return to working as a customer service rep with the help of the Department of Vocational Rehabilitation (DVR) and the placement at EnvisonXpress, a company whose policy is to employ and support the blind and severely handicapped. Factoring in transit time, Eric’s average work day is 12 hours long. Maintaining this schedule, while battling chronic fatigue, leaves little ability for Eric to spend time with family and friends.
Eric’s wife and daughter have been his rock in facing his many health challenges. He is also grateful for his online community of friends who lighten the mood and help him forge on the path ahead. With his many supporters who are committed to seeing him though the transplant, Eric eagerly looks forward to returning to a stable health situation where he can take walks and have the ability to venture out with his family and friends. However, he still needs your help.
Transplants are life-saving, but financially draining. Even with insurance, Eric is facing very high expenses including post-transplant medications of up to $1,200 a month, co-pays, lab fees and more. This presents a challenge that Eric and his family cannot meet alone.
To help offset the overwhelming financial burden of Eric’s uninsured expenses, a fundraising campaign in his honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax deductible to the full extent allowed by law, are held by Help Hope Live in the Northwest Kidney Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. Please consider a contribution.
For credit card contributions, please click the yellow Donate Now button.
Keep an eye on Eric’s campaign page at www.helphopelive.org because we will be planning some fundraising events soon and posting updates regularly.
Eric is one of the kindest people you’d ever hope to meet and he needs our help. Together, we can make a difference. On behalf of Eric and his family, thank you for your prayers, support and generosity.
March 20, 2020
So. With the Covid-19 epidemic All transplants are on hold and all pending transplants are now changed to inactive until further notice. Hopefully this gets resolved soon for obvious reasons. But Hope is definitely necessary right now.
February 28, 2020
Still hanging in without dialysis. Could start any day now, just trying to avoid it knowing it will be harder on my system even though it should make me feel better overall.
November 15, 2019
Well not much room now for delaying dialysis. Just a matter of if I get sick or when I want to start. Hard to come to terms with the changes in life that will have to happen with the start of dialysis. Currently still working and I am unsure as to how much I will be able to continue to work after starting dialysis. Questions arise. Such as how much time is the dialysis going to take from the day. Will I need to rest after the dialysis or will I be able to get up and go to work. How much time away from family is this going to cause. I have to maintain work so I have the second insurance for the transplant. How do I juggle the balance of work to dialysis and still maintain a home life? I will just have to wait and see.
October 2, 2019
While I am still waiting o the transplant and I have not started dialysis yet. It is getting harder to maintain functionality. Fatigue is bad and the edema is difficult to control. Another month before I see the doctor again. Hopefully I can continue to maintain.
March 18, 2019
Officially on the Transplant List. Started my monthly testing for continued health checks. Keeping active as best I can, though getting harder all the time.
January 15, 2019
Well , THe fistula is working well. I will likely be on dialysis soon. Gastroparesis has also set in, making it harder to juggle the kidney diet. Energy is at a new low. Any physical activity even trying to carry a small box wipes out my stamina for awhile. Still maintaining the best I can.
November 27, 2018
De-clotting of the fistula failed. Had a new fistula surgery the day before Thanksgiving. Still recovering from that ordeal. Hopefully I won’t need the new fistula before it becomes viable.
October 29, 2018
Arm is recovering okay after the de-clotting of the fistula. I will find out tomorrow if the fistula is working as intended. Still not needed yet for dialysis but wanting to keep it functioning just in case.
October 16, 2018
I’ve Made the Transplant List! Now having issues with the fistula clogging and having to deal with the surgery of breaking up the clots via surgery.
October 9, 2018
Getting close. The last appointment might have been my last before the transplant group presents my case before the committee as to getting on the transplant list. Some days are harder then others but at least I am still avoiding Dialysis so far.
September 17, 2018
Holding stable at this time. Have an upcoming appointment with the Transplant Team at the end of the month. Hopefully things can progress now.
July 18, 2018
Just waiting for the word from the transplant program coordinator. Hoping for a fast turn around se we can get things moving.
May 22, 2018
Still maintaining. Dermatology appointment tomorrow as a last test before evaluation. Working on time with my daughter as much as I can with the fatigue.
February 22, 2018
Heart Cath done, just waiting to hear of the next step I need for the transplant approval.
January 3, 2018
Still working on preliminary testing. Waiting on a cardiovascular testing at the moment, then I will need a few other things. Slow going, but trying to make progress.
November 13, 2017
Still working with the transplant group going through their tests. It is getting harder to do much of anything with the chronic fatigue. Starting to opt out more on my daughters activities as I just don’t have the energy to attend.
September 20, 2017
Preliminary tests are ongoing. Still have further tests to take. Hard to spend quality time with family when the system is so compromised. Looking forward to the time of when I can proceed with the transplant.
July 19, 2017
Well, preliminary evaluation for transplant this next week. We will see how things go. Running real close to needing dialysis now so hopefully it goes well.
June 1, 2017
Well the fistula is functioning though there is a narrowing of the vein it leads to so that’s a complication. Paperwork is proceeding for the transplant, though slow it is progressing. Took time to see may daughter in her drama/musical which was fantastic. The expenditure wiped me out though, hard to maintain the balance with extra activities. Hopefully the process for the transplant continues smoothly. I do have a living donor lined up awaiting testing/matching.
March 13, 2017
The new fistula seems to be working this time. I have restarted the transplant paperwork now that I have a second insurance to help along with these donations. Thank you to everyone whjo has donated or shared my page to help me in this situation.
January 11, 2017
The fistula surgery has failed to take. It hasclotted before being viable for use with dialysis. Now I have to set up another surgery for an upper arm fustula and hope it takes. Meanwhile the secondary insurance is active so I can try to get the transplant moving forward.
December 19, 2016
AV Fistula Placement Surgery went well. Now trying to recover overall strength. Not really using my arm for the next two weeks until the followup appointment is my next challenge.
December 13, 2016
While I am on the acceptance list for transplant, I am still waiting for new insurance to start January 1 for the program to progress. In the mean time I am preparing for the event of dialysis and having an AV Fistula surgery tomorrow. My mom and dad are comming into town for additional support. I will update as to how the procedure went.
Photo Galleries (1)
December 15, 2016
Hoping for the best, Jade.
December 14, 2016
Prayers for all the best, Jade!
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Help Hope Live
Note in memo:
In honor of Eric Alexander Fornof
Help Hope Live
2 Radnor Corporate Center
100 Matsonford Road
Radnor, PA 19087