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The Miracle of Marisol

Marisol Ramirez was born with jejunal atresia, a condition where the small intestine is completely blocked. On the day Marisol was born she was immediately transferred to Children’s Hospital where surgery was performed to remove that blocked portion of her intestine. Unfortunately, this led to a different condition called short gut syndrome which prevented her from leaving the hospital until she was four months old. Once home, she could only eat small portions of food and was dependent on TPN, or IV fluids, for calories and vitamins. After an unsuccessful attempt to lengthen her intestine, her GI Doctor placed Marisol on the transplant wait list, explaining to us that this would be the only option for Marisol to grow up healthy.

Updates (30)

June 27, 2018

Back in Pittsburgh. Marisol had not been feeling well and her team ordered a chest xray. The xray confirmed she has pneumonia she also has an infection in her broviac (the line that she gets connected to with fluids nightly). The team wanted her in Pittsburgh ASAP and with a 5 hour drive we arrived to the hospital at 3 am. We are exhausted but thank God arrived safely. Please keep Marisol in your prayers. God bless #donatelife #miraclemarisol

July 13, 2017

Marisol has been doing great! She had an awsome weekend at Ocean City with her cousins.
Her kidneys have been acting up a little so her transplant team wanted her to be seen by their Nephrologist to see if they recommend anything. She will also be seen by her transplant team. Marisol’s appointment is at 8:00 on Thursday and with a 5 hour drive to Pittsburgh we came Wednesday afternoon. Thanks to a wonderful organization called AngelFlight and an awsome pilot @Anthony Loguidice we made it to Pittsburgh in under 2 hours.

Marisol and I went out to dinner and are now enjoying Paint Night at the Ronald McDonald house. God willing we will be heading home after clinic. Please keep her in your prayers and I will update tomorrow. God bless.

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July 17, 2018

Dear Marisol We pray for you every night. May God continue to strengthen you until a miracle of life gives you a new opportunity for a life with little hospital visits. We love you! Los Tamacas-Fuentes

Camila Tamacas