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The Miracle of Marisol

Marisol Ramirez was born with jejunal atresia, a condition where the small intestine is completely blocked. On the day Marisol was born she was immediately transferred to Children’s Hospital where surgery was performed to remove that blocked portion of her intestine. Unfortunately, this led to a different condition called short gut syndrome which prevented her from leaving the hospital until she was four months old. Once home, she could only eat small portions of food and was dependent on TPN, or IV fluids, for calories and vitamins. After an unsuccessful attempt to lengthen her intestine, her GI Doctor placed Marisol on the transplant wait list, explaining to us that this would be the only option for Marisol to grow up healthy.

Updates (29)

July 13, 2017

Marisol has been doing great! She had an awsome weekend at Ocean City with her cousins.
Her kidneys have been acting up a little so her transplant team wanted her to be seen by their Nephrologist to see if they recommend anything. She will also be seen by her transplant team. Marisol’s appointment is at 8:00 on Thursday and with a 5 hour drive to Pittsburgh we came Wednesday afternoon. Thanks to a wonderful organization called AngelFlight and an awsome pilot @Anthony Loguidice we made it to Pittsburgh in under 2 hours.

Marisol and I went out to dinner and are now enjoying Paint Night at the Ronald McDonald house. God willing we will be heading home after clinic. Please keep her in your prayers and I will update tomorrow. God bless.

July 11, 2017

Today marks 1 year and 8 months of Marisol being listed. We are really learning patience.

Marisol has been doing great thank God, she did have a tough decision to face. Kuzko had been having a lot of anxiety and crying a lot we had to stop practicing public access. We took him to a local trainer and we made a decision to re home Kuzko and start service dog training all over .
Kuzko’s anxiety couldn’t be controlled which made it difficult to take him to the hospital with his anxiety high and adding Marisol’s anxiety would make it worst and he could react in a negative manner if a doctor or nurse were to come into her room and cause her to have more anxiety.

We did not find it fair to put Kuzko in that position. It was the toughest decision for her and us but we knew the purpose of Kuzko was to assist her medically when she’s most vulnerable in the hospital. After a lot of talking and crying and praying. We completely agreed and supported her decision. We find comfort knowing who Kuzko is with and can maintain in contact with them. Kuzko has a new playing partner and is loving his new home. It is very difficult starting training all over with a different dog and always thinking of Kuzko.

We would like to present Marisol’s service dog in training. Fozzie, he is a 10 week old Goldendoodle. Marisol has had Fozzie for a week now and he’s a lot of work. Fozzie comes with a strict schedule and Marisol has been doing great on sticking with it. We had quite a few nights of Fozzie crying all night but Marisol is getting to know him and what he wants and he’s been doing great the past few nights. This is a bittersweet experience for Marisol but we all know how strong she is and know she will get through this. Kuz can never be replaced and will always have a huge part in our hearts.

We would like to thank American K9 for donating Fozzie to Marisol. Service dog training is very expensive and is not covered by insurance. We know God put this opportunity in our lives and we leave it all in his hands. Have a great weekend. God bless. #miraclemarisol

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