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For the past 24 years, Jenel has experienced a steady decline in her ability to live life to the fullest. Jenel is a 49-year-old, single mom of two boys who has multiple sclerosis (MS). I have known Jenel for 11 years. When I first met her I had no idea that she had MS. She was able to walk normally although she went up and down stairs slowly. She was so full of life and had such a positive attitude about everything that I was shocked when she shared her health concerns with me. Over the past 11 years I have witnessed a steady deterioration of her motor skills. She is no longer able to walk unassisted and when she has to move over long distances she uses a motorized scooter. Her energy level which was very high is now easily fatigued. Makes it difficult to keep up with her two very active sons!
MS is an incurable disease in which the insulating covers of the nerve cells in the brain and spinal cord are damaged. This damage has disrupted the ability of parts of the nervous system to communicate and has led to a slow progression in the loss of mobility, balance and has contributed to extreme fatigue for Jenel. The good news is that today there is a treatment that just might stop the progression and even has the potential to reverse the damage! But, Jenel needs our help! The cost of the stem cell transplant is overwhelming and not covered by insurance. Just to be clear, she will be using her own stem cells!
Jenel has spent her entire life in Auburn, Washington. She raised her family there and has enjoyed many years supporting her sons in their pursuit of sports. She is really looking forward to being more actively involved in their activities rather than sitting on the side lines, quite often being separated from others as she is unable to navigate the stairs to join others in the stands. Jenel has always been a very independent person and looks forward to the possibility of not having to rely on others for her basic needs. The declining quality of life described by her physician is horrifying. The thought of being a burden to her family and life-long dependency on medications that only help slow the definite progression of the disease is difficult for me to live with. I must do something to help her and I am inviting you to do the same. The treatment will be life changing but most definitely a financial burden for this single mom. The expenses include the actual stem cell transplant, airfare and all follow up procedures. She needs to raise $20,000 in the next 90 days.
To help with the financial burden of Jenel’s uninsured expenses, a fundraising campaign in her honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax deductible to the full extent allowed by law, are held by Help Hope Live in the Northwest Stem Cell Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. Please consider a contribution.
For credit card contributions, please click the yellow Donate Now button.
Thank you for your prayers, support and generosity. Keep an eye on Jenel’s campaign page at www.helphopelive.org because we will be planning some fundraising events soon and posting updates regularly.
With much gratitude,
Patty Flanagan-Linderman
(Jenel’s close friend and avid supporter) [email protected]
Hello all!
Thanks to all of your generosity, I was able to have the Stem cell procedure performed on October 11. A week out from the procedure I am already starting to see some small changes in my condition. I have not had the fatigue problems I was having to take medication for and have been able to discontinue the prescription for that. I also had nightly cramps in my legs and feet, which I haven't had since the treatment. To some, they may seem like small changes, but they are big to me.
They say it will take 3-6 months for the new stem cells to get in there and show their work.
Please keep me in your thoughts and prayers for continued improvement.
Because things moved so quickly, the additional funds needed to provide follow up care have not been raised yet. The follow up care still needed for the next year is about $3000.
Any help that you can give is appreciated.
I thank God from the bottom of my heart that through the generosity of so many people, I now have Hope.
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Hi again, I just called them and they will take care of it. Just really wish we were all closer. I have missed so much by not having much contact with "The Blakely's".
Beth Fullerton
Jenel I just went in and donated for you - I think I may have messed up because I did not leave the message on the memo line. I am going to try to contact them and make a correction. Praying that you can get this done.
Beth Fullerton
Jenel you are such an inspiration to everyone who knows you! I wish you the best of luck my friend!
Debbie Sappenfield
I think you are one of Gods chosen angels to lead the way showing people it can be done God Bless You we send our love and prays to you and your family
Lee and Candy
You should be very proud of yourself for this undertaking. Some day, with the help of people like you, many others will be helped with stem cell transplants. You are pioneer. My family and I wish you well and hope you go on to fulfill all your dreams. Good luck Jenel.
Bob Widener
I don't know you, but I came across your story and I really feel for you. I hope you can get that stem cell transplant, I think it would make such a difference. Keep on fighting and smiling! :)
Sharon Mattox
Kick butt girlfriend! And hang on because your life is about to change in oh so many ways!!!!!
Patty Flanagan-Linderman
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Jenel Kludsikofsky
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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