Help Make a Difference in Sierra’s Life
As you may know, Sierra Smith was born with CDG-1K (Congenital Disorder of Glycosylation). As a result, Sierra suffers from epilepsy, is unable to talk or walk, and requires 24/7 care. Now that she is 11-years-old, it has become more difficult to travel in the family car. On occasion, Sierra has missed out on some of the trips do to the physical strain of loading/unloading Sierra and her wheelchair (the wheelchair alone weighs about 80 pounds). Right now, even going to the store or a doctors’ appointment is a huge undertaking. Sierra and her family are looking to purchase a modified van with a lift so Sierra can more easily travel.
October 13, 2017
Sorry I have not updated lately, but as you all know, life gets busy. Sierra has had a rough time lately. For the past month and a half, she has had a few UTIs, a kidney infection, and double ear infections.AS a result, she has had 2 hospital stays last month at Children’s Hospital in Columbus. In addition, she is not urinating very much on her own. So, we are now having to catheterize her every day. With cathing, that can also increase her chances of getting another UTI. Along with these medical issues, she has had periods of extreme tiredness, sometimes sleeping almost the entire day. Today, she was moaning a bit so I am praying we are not getting another UTI. If you could, please keep her in your thoughts in prayers.
As for the fundraising, we are still raising money for her wheelchair van. All donations are tax deductible and anything is appreciated.
May 13, 2017
Sierra has been sick the last two weeks with ear infections and a UTI. On top of that, she had an allergic reaction to one of the antibiotics she was on. Today, however, she seems to be feeling much better and has returned back to school.
I also wanted to update everyone that we are still planning on using some of the funds for a handicapped van, but we are also hoping to take her to California sometime within the next year to the NAPA therapy center where she would do a 3 week intensive therapy session. This place is highly recommended by many families with kids that have CDG and really makes a big difference in these kids’ lives. We will keep you updated. Thank you for your love and support.
June 13, 2017
I'm praying for you sweetie!