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At 2.5 years old, Cindy loved Sesame Street (especially Ernie’s “Rubber Duckie” song!), her stuffed toys, and her new baby brother. She had a greatly enlarged liver, but no other issues or symptoms. She was thriving. Jump ahead 25 years—Cindy grew up, graduated high school, got married, became a mother, got divorced, got an education, was working in IT, and building a wide circle of friends in the community.
Suddenly, the life she was building was turned on its end. She was diagnosed with Cryptogenic Liver Cirrhosis in 2011 (Cryptogenic, meaning “we have no idea why.”) In 2015, she was found to have HCC (Hepatocellular Carcinoma), a type of liver cancer. Her life today is challenging, to say the least! She is unable to work due to the complications of her liver disease, including pain, exhaustion, swelling and other issues foreign to a typical 32-year-old. Her sole hope of returning to better health and a more normal thirty-something life, is a liver transplant.
A transplant will save her life, but it is also extremely expensive. Even with insurance, there are still many out-of-pocket costs Cindy is expected to cover, including co-pays, deductibles, lab fees, travel to and from the transplant center, and the anti-rejection medications she will have to take for the rest of her life.
To help with the financial burden of Cindy’s uninsured expenses, a fundraising campaign in her honor has been established with Help Hope Live. To make a tax-deductible donation, click Donate Now.
Your support is vital to the overall success of Cindy’s recovery! “Every little bit helps” is no cliché! On behalf of Cindy, her family, and Duckie’s wide circle of friends, we thank you in advance for your consideration and generosity!
With humble gratitude,
Kathy Riggle – a.k.a. Mama Duck
[email protected]
Happy Spring and Happy Birthday to Duckie!
It's been a LONG winter of managing complications and trying to get back on the list. Because of the heart/lung complication, she was made inactive. The docs have been trying since September to find the right balance of fluid to allow the transplant to proceed.
Her next (maybe last, we HOPE and PRAY) is TOMORROW!
If the heart cath is good, she will be relisted, and at the head of the class! Stay tuned for developments!!!
All - The new medication (Tyvaso) would appear to be working. We won't know for sure until the next heart cath. That is coming soon --- March 16th!
Please pray, send good wishes and positive vibes --- and watch for for news!!
We're still accepting tax deductible donations to cover medical expenses,some help with living expenses for the month we'll be in Oakland. Thank you all!
Cindy is home - being discharged on September 9th. She's maintaining her "dry weight." That means she's eating very little salt and limiting fluids to keep off the extra fluid that is so hard on her heart. We'll take the good days as they come!
Personally, I've retired, so I really plan to throw myself into the fund-raising foray, planning local events! Let me know if you're available to help in any way.
Kathy
If there is a speed bump, pothole or crater to be found, Cindy/Duckie will find it!!! I'm assuming you've found your way here because you know us. I'm honestly going to try to use this page as the central information source for updates.
Last Tuesday, Cindy passed out, after walking up a flight of stairs. We both suspected dehydration. (She never passed out before, but has had problems with fluid balance.)
Off to the Emergency Room. Admitted to UPMC where she was tested and retested, culminating with a heart catheterization. She is in right-sided heart failure.
Now we're in a chicken-or-the-egg scenario. Is the right-heart problem a new and separate problem? OR is this a problem related to the liver disease. Stay tuned!
Bear with us while we get this kicked off! Stay tuned for coming events!
Duckie is "on the list" for transplant with an unknown time line.
She is finally healing after her May 31st tumor surgery.
Cindy,
Keep fighting. If you need anything at all please feel free to reach out.
Best Regards,
[email protected]
Kevin Hamilton
I love you Cindy, more than you will ever know. Know that I am praying for you (& Momma Duckie too ;) All of the time. You have got this, my heart!
Rachel Frazier
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Cindy Knight
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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