Allison was diagnosed with a very rare chronic autoimmune disease affecting her peripheral nerves called multifocal motor neuropathy (MMN). In a nutshell, Allison’s immune system is attacking her own motor nerves in her hands/arms. It develops in a chronically progressive or stepwise manner and over time leads to wasting or atrophy of the muscles controlled by the nerves. She cannot currently use her left hand or arm and her right hand is also affected. She is always completely exhausted and needs to sleep many hours every day to avoid head/body aches or feeling like she has the flu. Over time, this disease can progress to her feet/legs. She receives a 6-hour IV treatment every week to slow the progression of this disease. The IV treatment is quite expensive and they meet their high health insurance deductible and out-of-pocket maximum within the first couple months of every year. She has also tried different medical treatment options, but unfortunately none of them have helped.
Allison has been looking into alternative healing methods such as herbal supplements, essential oils, organic/non-GMO diet, hyperbaric oxygen therapy, and stem cell therapy in an effort to function without aching, to increase her stamina, and to get restful sleep. Unfortunately none of the alternative treatments are covered by insurance and are quite expensive! Every year they make many financial accommodations for this illness.
January 17, 2017
It is amazing when you ask family, friends and the community to step outside themselves and support someone. Allison begins 2017 hitting our fundraising goal. Thank you to every person that came to this page, donated time or money, or prayed.
January 18, 2017
Happy New Year!
Holy cow, I cannot believe we hit our goal! Thank you to ALL who have contributed – we appreciate it more than you’ll ever know!!
I no longer have the nurse that I’ve had for the past two years coming to my house on a weekly basis to administer my treatment. I have had a couple new nurses come and we are trying to find the right fit.
Later this month (January), my insurance company needs to approve the continuation of these “much- needed” weekly treatments. I could use prayers that the authorization goes through smoothly!!
Love & peace,
December 29, 2018
Salon Bliss & Spa in Rochester Hills raised $900 through client and employee donations including a wonderful bake sale we put on in your honor! We wish you and your family a very Merry Christmas and hope this donation amount helps get you closer to your goal!
January 20, 2017
Happy New Year! I pray that you have a much better year this year and get all the treatment you need. Much love,
January 20, 2017
Contact me when you are ready to heal.
Dr. Charlie Hartwig, Program Director, Cancer Clinic for the Poor in health
January 21, 2017
Hoping you have a wonderful holiday season with your family!