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Some of you may know me as Lillian Layton, others as Annie Reyes. Most of you know that I was born with a hereditary disease called polycystic kidney disease or PKD. Fifteen years ago I was told I would need a kidney transplant to survive. I was blessed by my sister’s selfless donation of her kidney and I am so very grateful for the years that gift has given me. Unfortunately, transplants don’t last forever.
Polycystic disease can invade any organ. In addition to my kidney now failing, I have been diagnosed with polycystic liver disease (PLD) as well. The doctors at the University of Miami have told me I need a double transplant, both a kidney and liver. Since August 2015, I’ve been undergoing dialysis treatments three times a week, several hours at a time. This is sustaining me for now.
I currently live in Fort Myers so making that 244 mile trip every three months to Miami is costly. Sometimes the tests I undergo are so rigorous and time consuming that I have to stay the night at a hotel. To drive would be too exhausting and dangerous. Once transplanted, both me and my caregiver are required to live close to the hospital anywhere from one to three months depending on my recovery time. I am single and disabled woman living on a strict budget, so this creates a financial challenge I cannot face alone. I am asking for the help of my loved ones: my family, my dear friends and beloved church brethren.
To help with the financial burden of my uninsured expenses, a fundraising campaign in my honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible to the full extent allowed by law, are held by Help Hope Live in the Southeast Kidney/Liver Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. Please consider a contribution.
For credit card contributions, please click the yellow Donate Now button.
God has truly blessed me to have each of you as part of my life. Please know that your contribution will make a difference and your support and prayers are deeply appreciated.
With sincere gratitude,
Lillian Layton (aka Annie Reyes)
239-249-4015
lillianlayton19@gmail.com
Had Cystoscopy 10/13/16, waiting to hear back from UM my small bladder is adequate for a second kidney transplant.
So on Tuesday I traveled to Miami for an appointment with UM Urologist. Now they want me to have a cystoscopy to ensure my bladder is adequate for transplant surgeries.
In June 2013 I had a bilateral nephrectomy, 1 foot of sigmoid colon had fistulated into bladder; therefore, I had a bladder reconstruction.
I'm dreading this procedure, not too painful, just very invasive.
UPDATE:
Last 3 days I had a pain on my left arm where my dialysis access is. Because I was in Naples and my Vascular surgeon is there I decided to call the Dr hoping they could get me in for an Ultrasound to determine if I had a blood clot blocking the access. They got me in and yesterday and they did the procedure to open my dialysis access, indeed it had been narrowing.
They tell me this is a common occurrence for ppl on dialysis. The procedure is called a Fistula Gram where they will go in with a 14 gage needle to unclog access.
I'm starting to understand how ppl on dialysis become disheartened. As of yet, I've been optimistic. Lord give me strength and endurance to ride this journey.
Davita Dialysis Staff encouraging patients to celebrate the kick off of Football Season! They're so much fun!!
Played Violin and Viola duet with my eldest son Barry Valentino Layton, at my nephew's wedding.
Playing Violin duet with piano st Seagate Baptist.
Cousin Annie, I was so sorry to hear about your diagnosis. Sending lots of caring thoughts your way as you begin treatment. God bless you.
Jorge Tomas Cruz Reyes
I'm so sorry about all you have to go through. You are a good person who has had some terribly bad luck. I hope that changes so you can enjoy some days of good health.
Joe Sherman
Annie I am praying and asking God for a miracle healing I know God can heal you for he is our healer , Since you were a very young girl when I met you I saw your love for Christ so keep on trusting him for he is a God of miracles , Love you.
Sonia M. Morales
Hi Annie , It is me Jenniene we did a few treatments together . I am home doing dialysis and also listed at Miami. Maybe we should get together . We also have a organ transplant support group that I know I shared with you.You would be great it's a great group , I'm so sorry your having difficulties and also need a liver. I had no idea. I know You and I have a ton in common and I would love to help you any way I can . Call me 896-8566 , I know we can support each other in this time .
Sincerely
Jenniene
Jenniene Moran
Love you my sister!!! Know that God is in total control and your healing is on the way!!
Darlene Mendez
Once I read this I needed to donate. I lost my brother Charlie your cousin to Cancer of the liver on June 22, 2015.There is hope for you God will grant you more years. Love sylvia
Sylvia Cruz
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Lillian Layton
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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