Terry Rondel Carpenter

Duncan, OK

South-Central Transplant Fund

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In honor of Terry Rondel Carpenter

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Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087

Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.

In Memoriam
Terry Rondel Carpenter

It is with great sadness we report that Terry Rondel Carpenter passed away on January 3, 2024.

Family and friends have worked closely with Help Hope Live to fundraise for uninsured medical expenses associated with transplantation. They began their partnership with Help Hope Live because the nonprofit provides both tax-deductibility to the full extent allowed by law and fiscal accountability to contributors.

Terry’s family has been humbled by the outpouring of love from their community. Please know that no additional donations in memory of Terry are needed. But your support has made a measurable difference in their lives.

In loving care and remembrance, thank you for your kindness and generosity.

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You Can Make the Difference!

My name is Terry Carpenter and I need a lifesaving kidney transplant at Oklahoma University and I could use your help. The journey I have been on began when I was only 4 years old. I was diagnosed with type 1 juvenile diabetes, which affects several different organs in the human body. As time progressed, that diagnosis changed my life tremendously. I loved spending time with friends and loved ones around a campfire and working on and restoring old vehicles. I can manage sometimes to a degree, but it is hard to handle the inability to pursue my passion of mechanics.

As each health issue began, the health I once knew was deteriorating. At just 36 years of age, I had a 5-bypass open heart surgery. I lost eye sight in my right eye due to diabetic retinopathy, a side effect of the disease. Even though I had more stents put into my heart, I now suffer from congestive heart failure (CHF). Today, I am in complete renal failure with strict orders from my doctors not to drive because of the progressively deteriorating eye sight in my left eye.

The downward spiral continued and, in August 2015, I had emergency surgery to have a dialysis port put in because my kidneys were only working about 2-3%. Dialysis became necessary every day for 10 hours. I am only allowed to eat certain foods, makes a cook-out with your friends and family a little hard. I am only permitted a fluid intake of 32 ounces a day, challenging on July days in Oklahoma. At times, it would be easy to give up but I continue to fight for my wife, my daughter, my grand-kids and my family and friends.

I am currently undergoing the required testing to be placed on the kidney transplant list. Transplantation is lifesaving but financially draining. Even with insurance, there are many uninsured expenses I must pay out-of-pocket including the 3-hour round-trip travel to the hospital for testing and then at the time of transplant and the months after while I recuperate. The cost of anti-rejection medications is astronomical, an expense I will have for the rest of my life. This is a financial challenge I cannot face alone but your help can make the difference! Don’t forget to sign the guestbook

To help offset such expenses, a fundraising campaign in my honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible to the full extent allowed by law, are held by Help Hope Live in the South-Central Kidney/Pancreas Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. Please consider a contribution.

For credit card contributions, please click the yellow Donate Now button.

This will be an ongoing fundraising effort. Without the help of family, friends, and even complete strangers, this precious gift of life would not be possible for me. Thank you in advance for your support and God Bless!

June 14, 2017

Now things have slowed down for a TINY bit at the moment I thought I would update everyone on the appointment we went Monday at the transplant center, it was for an appointment with the other transplant surgeon. We had to meet with him because depending on when the call comes in both surgeons are prepared and up to date on his case.

If the call comes in during the week both doctors will be in there, if the call for Rondel comes on the weekend the "on call doctor" will be the one performing the surgery. Just a kinda covering all basis thing.

This is the LAST step away from the final decision. When the transplant coordinator went before the transplant committee the first time we thought it was the final decision, but Rondel had to go and have some procedures done to better the chances so to speak, now all the testing and procedures are done and Rondel has been cleared the coordinators are very optimistic that he will pass the final committee meeting on Friday yes this Friday.

Also, not that anything is wrong but the coordinator and surgeons suggest he have 1 more EKG to make sure all is good. (scheduled later this month). He had one about a year ago but being this close being on the UNOs list they want cover all the necessary basis since he is on a moderate risk level due to him being a previous heart patient. But they told its not nothing to worry about.

Once he gets on the list they suggest to all their patients to try to find a living donor. Kidney's are the most needed organ in America.

He has come a long way in the last 5 years when we started this process. No he don't get credit (points) for the first 2.5 yrs but he does for the rest. What I mean by that is you get credit (points) for every year you are on dialysis, for making ALL appointments(not cancelling and rescduling, missing appointments). By making all the appointments scheduled that only shows the transplanation team that the patient is really serious about this process.

I have come to realize that posting these updates has been really good therapy for me at times. I will close for now, and will keep ya'll updated

April 11, 2017

On April 8, 2017 we had the 1st Annual Benefit Golf Tournament and it was a success. We had 16 4-man teams participate. We also were able to get 23 hole sponsors. We would like to send a HUGE THANK YOU to everyone who participated, volunteered, and donated. We are looking forward to having another one next year.

March 23, 2017

We went to OU Medical today for a check up on the procedure Rondel had on March 6th. Rondel told the dr that the procedure worked but it wasn't like the feeling of the first week after it was done and but is ready for the left leg to be done. So we scheduled April 10th to have the left one done. They are going to go back into the right leg and put stents in there as well as they are going to stent the left one instead of using a what he called a drugged balloon. The doc said that this should have lasted more then a week.

Rondel asked the dr why he had to go through this part and he said just to give the transplant surgeon better arteries to tie into when he transplants the kidney, will also give more better blood supply to the kidney too.

Thank you for the continued thoughts and prayers

March 11, 2017

Sorry it's been awhile since I last posted. Things have bee really crazy. We have been going to doctors appts sometimes 2 a week, but here is the lasted as of Monday March 6th.

We are here at OU Medical Center awaiting an angiogram.

With him being a diabetic his arteries get calcified, when we seen the dr a couple of weeks ago he said there was nothing impressive to be considered about but before he completely signed off he wanted to do an angiogram of his arteries (in the legs) and if they needed to be stinted he would go ahead and stint them to open them up more for better blood flow. Y'all don't know how much it means to us for all the thoughts and prayers, and kind words. And for following his journey...

As I sit here on the side of his bed trying to hold back the tears awaiting them to come get him for this procedure, I hear him in discomfort because of the restless leg syndrome he suffers from (when he lays back for a long period of time his legs start to hurt). I wish I could just crawl in the bed with him, hold him and make it go away and feel better.

**Update**

All went good as planned....His iliac artery pressure was 140 at the top and 80 at the bottom so he ballooned it and seems to have worked. The other leg is about the same so when we come back for a follow up in a couple of weeks and sees that this one is still working like it should they are going to schedule the other leg. This should help with decrease leg pains/cramps also.

Dr also said he didn't want to do both legs today cause it would have been too much at one time. He is going to be on bed rest for the next 4 hrs or so. I'm waiting for him to get to recovery and then I can go back with him.

December 15, 2016

Now it's waiting to hear how his lower extremities study and CAT scan went today. Hopefully tomorrow I will hear something from his transplant coordinator. This week has been a very stressful week and it's only Wednesday.

He goes Friday to have an MRI done to see what is putting pressure on his inner ear. That has been a crazy ordeal for him as well. It started out as vertigo and now not for sure what it is. All we know he cant hear out of his right ear and has very little hearing in the left. Maybe this will enlighten this issue.

Then it's next week back to OKC to see the nephrologist(kidney doctor) and pharmacist.

I haven't been in much of the Christmas spirit like years past but I am praying and wishing my Christmas wishes comes true soon.

Thank you all for the continued prayers, thoughts and kind words..

November 29, 2016

We got a letter in the mail from the transplant center and they have gotten his next appointments scheduled on December 14th. He has an appointment at 8:30am to have a lower extremity vascular study done, then it's off to see the transplant nephrologist at 10:30am then the pharmacist, and finally the cat scan of the abdomen/pelvis area at noon all in 1 day...it's going to be a long day but well worth it...Thanks for all the continuous prayers, kind words, and being such a wonderful group of family and friends.

November 15, 2016

Nov 14, 2016

We met with the transplant surgeon today and it went good. They are going to schedule a CAT scan of his lower abdomen for mapping purposes for the organs and schedule an ultrasound on the arteries in his legs so they can make sure the blood flow is good enough to support both organs.

Poor thing had 12 tubes of blood drawn today, but 5 of them were at the dialysis center. I'm not for sure how much blood he has left in his body to spare. LOL

We will keep everyone posted and we want to THANK YOU for all your continuous kind words, thoughts, and prayers.

GOD BLESS YOU

November 1, 2016

Oct 21

Today has definitely been a wonderful way to end this week. We got another call today from the OU Transplant Center, they have scheduled appointments to see his transplant surgeon, and the nephrologist. GOD IS SO WONDERFUL #onemorestepclosertoanewkidneyandpancreas

March 5, 2024

We join with all loving supporters of Terry to extend our heartfelt condolences to his family and friends. We wish you peace and comfort during this time of sorrow.

Help Hope Live Staff

November 15, 2016

I'm praying for you guys. I'll make a donation at the end of the week when my husband gets paid. OK I hope you don't mind I share this page. Hopeful if more people know what's going on they'll help. Love you guys.

Patty boucher

November 15, 2016

You are my soul mate, my best friend, and MY HERO. At times life makes you go through some very hard moments but remember never to give up..things WILL get better and you will overcome it all!! And I will be right by your side all the way. Love you

Danielle

Mail a Check

Make checks payable to:
Help Hope Live

Note in memo:
In honor of Terry Rondel Carpenter

Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087

Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.

In Memoriam
Terry Rondel Carpenter

Updates (8)

June 14, 2017

April 11, 2017

March 23, 2017

March 11, 2017

December 15, 2016

November 29, 2016

November 15, 2016

November 1, 2016

Guestbook

March 5, 2024

November 15, 2016

November 15, 2016

Mail a Check

Share Terry Rondel Carpenter's Page

In Memoriam Terry Rondel Carpenter

Updates (8)

June 14, 2017

April 11, 2017

March 23, 2017

March 11, 2017

December 15, 2016

November 29, 2016

November 15, 2016

November 1, 2016

Guestbook

March 5, 2024

November 15, 2016

November 15, 2016

Mail a Check

Share Terry Rondel Carpenter's Page

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In Memoriam
Terry Rondel Carpenter