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Rachelle Needs Your Help

My wife, Rachelle Ledbetter, has been suffering from pulmonary problems since she was a child. Eight years ago, she was diagnosed with severe Bronchiectasis. Her doctors have told us that her only option now is a life-saving lung transplant.

Updates (28)

May 7, 2018

Stop the world, I want to bail (get off)’.
Thus is the roller coaster of my journey to new lungs. After the utter high of my Dodger dream fulfilled on April 1st, the inevitable decline continued throughout the month. As predicted, I was hospitalized within a week, diagnosed with shingles, taken off the transplant list (temporarily until the shingles episode is resolved), and oh……how about a fractured rib from coughing that inhibits more coughing. Similar to a person with cystic fibrosis, daily clearance of the constant buildup of mucus is essential. The pain experienced with breathing, much less clearing, is excruciating.
Thus, my silence. I go inward. I don’t answer phone calls, return messages, go out in public. I barely leave my self imposed quarantined cell-we call it ‘the healing room’, a downstairs bedroom where, surrounded by all of my life preserving equipment, tv remote in my hand ready to binge on ‘Criminal Minds’, iPad poised for endless word games, and Sadie by my side totally content and watching my every move (which is minimal).
Three weeks of this indulgence, and a quick trip to UCSF to confirm I’m off the list for the moment, and I acknowledge the reoccurring cycle. Hope, despair, hope, despair, hope. There is no benefit to the despair….no benefit to me, my beloved, my daughters and those of you following my journey. It’s too easy to go there. But more advantageous, though extremely difficult, to dig deep, uncover my inner strength again, continue praying fervently for God to reveal His divine plan for me, and HOPE.
I am again, beyond grateful for your many words of love, prayers, and patience. So I continue to ‘Treat each day as if it’s my last. Pay it forward. Exist in the moment.’
And I think I’ll stay on this world.

April 3, 2018

When I was placed on the transplant list at UCSF in November 2016, I had no idea I would be still waiting for my new lungs 16 months later. I thought for sure I’d be transplanted within 6 months to one year, or dead. Okay, so my plan didn’t quite work out on my schedule. The good news? I am still very much alive, crappy lungs and all. My days are all over the place- sometimes I may not leave my Red Hill Cabin for a week, and other times, I’m heading to San Francisco to see ‘Book of Mormon’ or Los Angeles to be a guest for the Dodger Blue Wishes program (similar to ‘Make a Wish’ but adults with life threatening diseases are considered). My point? Life doesn’t have to be over just because my ‘normal’ has radically changed. I’m riding this one out to the end, luxuriating in every blessed moment.
Steven and I are now Ambassadors for Donate Network West and in April, our local Girl Scout Troop will be earning their Donate Life patch. We’ll be educating them on Organ Donation Awareness so they can sign up donors.
This Journey is exhilarating, even in its challenges.

Photo Galleries (3)

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Guestbook

March 15, 2017

We'll be thinking of you and praying for you each and every day. Keep the faith!

Jim and Peggy Entz

March 15, 2017

Rachelle, we are here for you! My heart is glad to help you. Your friends from Lemon Cove.

Teri and Ralph Blaser

January 19, 2017

One of my favorite sounds is to hear your unique laughter (however subtle) in the back during church. You are distinct, transparent and so endearing to my family and to our church family. You have encouraged our growth with your childlike fervor to grow in your faith. Our hearts are full with love and hope for your healthy future.

Robin Castro

January 19, 2017

How ya doing Rachelle? Eric wanted me to ask you what your Spider Solitaire record is! Thinking of you. Sending love and light your way.

Stephanie Skylar