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There is no cure for MS, however, I have tried every conceivable approach to mitigate the symptoms, including holistic medicine, Chinese herbs, and various pharmaceutical interventions to no avail. After extensive research on where to turn next, I discovered a promising treatment in clinical trials at Northwestern Memorial Hospital under the direction of Dr. Richard Burt. The treatment involves the extraction of my own stem cells, followed by chemotherapy, after which these cells are re-introduced into my body to hopefully reverse the symptoms of MS. This stem cell transplant is my best hope to live – and thrive.
There is so much I want to do with my life and I will not let this diagnosis take away my dreams for the future. Dr. Burt has had incredible success rates and I want to be a part of that success. I am excited and grateful and ready to make the leap, but I cannot do it alone.
The treatment is incredibly expensive and requires me to stay in Chicago for at least two months. There is going to be flights, hotel bills, food, a caretaker and many other expenses insurance does not cover. Additionally, my insurance company has denied coverage for the transplant. The team at Northwestern has estimated that I will have $175,000 in out of pocket costs.
To help offset these expenses, a fundraising campaign in my honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible to the full extent allowed by law, are held by Help Hope Live in the Southwest Stem Cell Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. To make a donation to this fundraising campaign, click on the Donate Now button.
This treatment is my very best bet at a big, beautiful, glorious life and anything you can donate would be so deeply appreciated. On behalf of my spectacularly supportive family and myself — thank you so much for taking the time to read my story. You are indeed the best! I hope to dance with you at my wedding!
Love,
Tori
Hello everyone! Fantastic news. After many months of fighting with insurance, my family and I decided to switch insurances. Our new insurance, BCBS, has approved the stem cell transplant. Thank you to everyone who has donated. The money raised will be used for travel, housing, and food expenses while I am in Chicago. I go in at the beginning of April and should be discharged the last week of May if everything goes as planned. I can't wait for this phase of my life to start and I can't wait to say that I used to have multiple sclerosis! Any money from this fund that isn't used will be donated to other people in similar situations. Again thank you so very much.
Hi everyone and thanks for viewing my page! The amount donated updates at the end of each day so don't be concerned if the number doesn't rise after you donate.
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We were honored to be able to share with you and the rest of the family for the family gathering at your mother's (Our niece & foster daughter) home. It was a privilege to be there for the kick-off in planning and initiating this fund raising program. We were so impressed at all the ones there that had stepped forward to contribute in various ways to make this work for you. Your in good hands with God and all those around you supporting you. I go to a men's Bible Study and prayer time Saturday mornings and I bring you up in our prayer request time.
We love you dearly and are trusting in God to complete your healing using all of your gracious supporters, the medical staff, the facilities, high tech equipment and God's healing power for you.
We love you immensely,
Aunt Ada & UncleCal
Stay strong! I know it will happen and I know it will work!!! Much Love-Adriane
Adriane
A big thank you to my co-worker Lupe G. who donated $50 today.
Aunt Deanne
You have such a beautiful heart Tori. I am lucky I got the chance to meet you. You will make it through this and we will all be here to support you along the way. <3
Kyle Ziff
Hi Victoria,
Just a couple of more strangers here who read your story.
My husband and I are fans of Jason Segel and his lovely lady friend!
So that means you have two new fans yourself! We wish we could give more, but we sincerely hope it helps.
We're thinking of you and your family this Thanskgiving. Stay strong and keep fighting.
- Sarah and Andrew in Greenville, NC
Good luck, Hope!
Spence McCall
Sending love your way!!
Marilyn Galvin
I don't know you, but my mom died of complications of MS 14 years ago. I hope you are able to get the treatment and it gives you the chance for a long and healthy life.
Meg G
I hope you reach your goal and have a long, healthy and happy life.
Annmarie
Keep your positive attitude! We love you so much.
Annie, Nik, Taylor & Paige
Dear Tori: I read about you in the newspaper and received an email from my dear friend, Rikki Horne. I wish you the best in your treatment. Sending love and prayers for your recovery.
Carolyn Olsen
Keep fighting! Best wishes,
Casey & Ruth Walker
We hope you reach your goals! Wishing you the best in your health challenges.
Holly, Badaoui, Kadin & Maya Mouderres
We Love You!
Mike, Denise, Claire & Paige
We shared many mornings together doing the coffee thang. I would like share my support. Luv you@ Fight on!
Rick C
Can't look in those eyes and ever see defeat! I love you!
Stacey Jones
Be strong Tori.......fight hard and kick this things ass! All the best.....hopes and prayers!
Sheri James
Tori you are a fighter. Keep up that strength and hope.
Dustin Talley
I love you Tori! Keep that smile going!
Aunt Deanne
So proud of your strength, confidence and honesty. I'm here for you always.
Barbara
Wishing you a bright future!
Brittney Ferro Simonds
You're one strong amazing girl. Keep dancing lady. I know you'll be okay! Sending so much love and support your way. ❤️
Marissa Luboff
Keep dancing, Tori... <3
Tenaya
Send blessings. That's all good. But be sure to click the "Donate Now" button and help this young lady get her life back !!
Chris Newell
Sending many blessing your way, your a beautiful young woman be strong, you can do this!!!
Laura
Laura
Tori,
You never complain. You are such a strong woman. I couldn't be prouder of you.
-Mommy
Mommy
Dear Tori,
I'm with you in every way I can be. You've brought joy to us for many years and I know that will continue.
Rikki
Tori - we are thinking of you tonight. Thank you for being so brave to share about your life and know that we are rooting for you every step of the way! Love you.
Kim, John, Kirsten, Jonah and Kelsie Hoj
Wish we could give more. Sending good thoughts your way.
Chris and Christina Barton
Love you Tori!! So happy to be able to help in any way possible!
Rainey
can we pay online?
Stacy M Potter
Anything to help you Tori! Stacy & Ian
Stacy M Potter
We love you Tori!!!! ❤️❤️❤️
Love Micah and Britt and Walker Reed
We love you Tori Taylor. Will get this done fast.
Lets make it go Viral.
Mike & Donna
HSCT has terrific promise for your condition. We don't know you, but Gillian and I want to help you get that treatment.
Chris Newell
To many many more years of dancing and laughter! Love you dearly.
Evan & Jill
Love you Toaster!! You are an inspiration!
Melissa and Family :)
To the many family wedding we will dance at together! We love you!!!
Kim & Patrick
We love you our sweet Victoria.
Love, Uncle Tim, Aunt Nona, Jojo, Casey, Micah, Brit, Kacy, Rainey
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Victoria Taylor
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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