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MS is an incurable autoimmune disease that causes your own immune system to attack your healthy central nervous system. I try not to complain about the symptoms, but having MS is a full-time job. It can attack at any time and we never know what the new disability will be, or if it will be permanent. I have endured hospitalizations, eye and Achilles surgeries, leg braces, tubes, needles, and toxic infusions, just to name a few. It has taken my ability to stand, walk, see straight, use my hands, or participate in normal daily activities. Pain, debilitating fatigue, loss of coordination, brain function, and joy of any social life are my new normal. Falls, sprains, and bruises are routine, and are the reason I’m no longer allowed in the kitchen. MS has robbed me and now I need your help.
After much research and waiting over a year, I have been accepted for a treatment called Hematopoietic Stem Cell Treatment (HSCT). It is a common cancer treatment that harvests my own stem cells from my bone marrow. Then my bad immune system is totally wiped out via strong chemotherapy. When it is down to 0-10%, the healthy stem cells are returned to reboot my old/bad autoimmune system. Sounds like a walk in the park, right? Well, it is a 30 day, in-patient, isolating, expensive walk in the park… but it is the closest thing to a cure that I will see in my lifetime.
This transplant will change my life. However, the costs associated with this procedure are monumental. I am trying to raise $18,000 for this treatment, travel, and aftercare. Our family is up against a challenge we cannot meet alone and we desperately need your help.
To help offset my expenses, a fundraising campaign in my honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax deductible to the full extent allowed by law, are held by Help Hope Live in the South-Central Stem Cell Transplant Fund, and are administered by Help Hope Live for transplant related expenses only. To make a donation to this fundraising campaign, click on the Donate Now button.
My kids, friends, family and strangers continue to give so much. I can never say how grateful I am for everyone’s efforts to help me get my life and future back. I am overwhelmed by your support and the positive outlook you have helped me maintain. Thank you for helping me take advantage of this opportunity of a lifetime.
The date is near and the funds are so close! I know I keep saying it but I am so grateful and amazed at all of you who have helped.
Just to let you know that anything over the goal will also be put to good use by helping me with my aftercare and home health when I return home.
It is a long recovery after the total wipe out of your immune system and not a penny will be spent that is not completely necessary in getting me back to my fighting weight.
Thank you everyone!
Ten days and away I go!
I have set up a facebook page to post updates while I'm in the hospital.
Search for Linda's Trek For A Cure.
Maybe I have made it sound like a fun and exciting adventure but it is a serious procedure and I can't lie, I'm scared. If you know me, you know those words don't come easy for me.
Thank you again for your boundless generosity.
Again I am speechless. Your generosity is incredible and I am so close to the goal for this treatment. I am truly blessed to have friends and family that have supported me and continue to display how much they want to help.
The cure for this monster is truly within my reach ONLY because of you.
Thank you,
Linda Gayle
There was a large jump in the donation amount in the past week. I hope I have thanked each of you individually. It is truly overwhelming to see the support from the donors who I have known for years, many for a short time, and some not at all.
It is humbling to say the least.
The date is getting closer and I'm now preparing to be in the hospital for a month and trying to focus on the long term instead of the fear.
Thank you all.
I hope that just have thanked each of you individually for your donations. It has been overwhelming and humbling at the same time.
Your support is making this a reality.
I am now preparing myself mentally to focus on the long term outcomes instead of the fear of the treatment.
Thank you all!
I have recently been informed of some potential additional costs involved with my treatment. My original request of $18,000. Should cover those however now more than ever it is very important to get as close as possible to that goal.
These items are; possible additional Hospital days beyond 26 days @$250 per day, the average stay is 34-36 days. Airfare change fees plus change in fare could easily reach over $1,000. Since my return date depends on my body's response to treatment it's impossible to predict the return date. Travelers insurance is mandatory and pretreatment dental work is required to eliminate risk of infection.
The total cost of this treatment should end up at about $40,000. I am on the edge.
Some of these were not pleasant surprises but are unavoidable.
Again I thank you all for your support and donations. I am not asking for more from you. Please just share my story. It will help me and it will help others. Thank you for sticking with me!
I'm so thankful for my family and friends, and their friends and family and many more. So many have donated, the help and outpouring of support has been overwhelming.
My latest two MRIs have shown new MS activity in my spine (not to mention a fractured tibia and torn meniscus from a fall) so February 3rd can come soon enough!
Thank you everyone!
Merry Christmas everyone! Thank you all for your donations and moral support. Thanks you for keeping me in your thoughts and prayers during my fundraising efforts and upcoming treatmentThe season's best to all of you.
Thank you to all my friends and family, and even anonymous, who have donated and shared my story.
No one wants to ask for money at this point in their life. Your help has humbled me but also reminded me of the generosity of the season.
I am scheduled for treatment beginning February 4th but have to pay $30k by December 31.
I am not allowed to see the individual donation amounts, any amount will make a difference.
THANK YOU ALL!
Linda,
You are in my prayers and thoughts.
Jim Wisdom
Stay strong Linda! Keeping you in my prayers,
Pete Alexander
Hi Linda
Praying for all the best for you. Be safe and God bless
Carol Ritchey Whetstone
My thoughts and prayers to you Linda. Have a safe trip my friend.
Jeff Schmidling
Positive thoughts and prayers going your way <3 Love you sweet dear Linda Gayle XXXOO
Jane Goold
Our love and faith are with you beautiful Linda! XOX
Leslie Blum Camilleri
My sweet friend - My prayers are with you that your goal will be met. I will continue to get the word out and pray it all turns out good. You are an amazing woman with such a kind heart❤❤❤
Cathy Chapman Posten
The Lord will make a way when there seems to be no way.
Terry Lee
Dear Linda, Thinking of you with positive thoughts and prayers! Hope you can enjoy the holidays!
Karen Day (Gelfand)
Linda! You have the support and love of so many, which speaks volumes to your character.
We shall dance to Sinatra once again.
Jim Schriver
Linda,
We are all pulling for you. I have faith that God is with you and for you. You still look like that beautiful, feisty 7th grader I met at Taylor Intermediate! We love you dear friend. XOX
Leslie
Linda, will keep you in my prayers and look forward to seeing you at the next reunion
Melinda (Gibson) Amistoso
Linda it's Denise now Shipley but was George. We worked together at USIR. God bless you and keep you.
Denise Shipley
Linda, you have waited for this and you deserve to get your spunk back! I'm so happy for you and will keep sharing with people in hopes of meeting your goal!
Wana
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Linda Himenes
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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